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Hearts of Hope
  June E-NEWS
In This Issue
Protein Losing Enteropathy
Warm Belly Wetsuits
New's about CHD's
HOH fundraiser
HOH Merchandise
Quick Links
About Us
Forever in our hearts
Ethan
Ethan Bilpo

Ethan passed away on May 20th, 2009 after a courageous 8 year battle with hypoplastic left heart syndrome.

We are comforted to know that he is no longer in pain; however, our hearts ache beyond expression. Ethan touched the lives of so many and we will never forget his joyful smile and zest for life. Please continue to pray for the Bilpo family as their lives will forever be altered after the tragic loss of their beloved son and our dear "heart buddy", Ethan.

Ethan
Protein Losing Enteropathy after the Fontan...
  .
Fontan Circulation
"Protein-Losing Enteropathy" or PLE, has been noted to occur in some children within a few weeks after the Fontan operation, or years later, in children who are otherwise doing well from a cardiovascular standpoint.

Click HERE to learn more
Make your
cardiac kids'
water fun
warmer this summer!
.
wetsuit.

Tired of watching you heart kids shiver all over with their lips turning various shades of of purple? Warm Belly Wetsuits insulate the body and keep kids warmer longer by slowing heat loss. Designed for water above 65° F, these wetsuits keep kids warmer and more comfortable, allowing them to be more attentive and to enjoy the water longer..
CALL TOLL FREE: 1-888 WARM KID (1-888-927-6543)
OR
Visit the website at:
WWW.WARMBELLY.COM

wetsuit orange

In the News
.
Featured below are some news articles  related to congenital Heart Defects...

Congenital Heart Defect Repaired By Stem Cell Regeneration

Cord Blood May Help Repair Children's Heart Defects
Heart pump for children needing heart transplant


Hearts of Hope Links





donation
golf

Please join us for the
 4th Annual Golf Classic
to benefit Hearts of Hope on
Friday, August 7th, 2009
.
We will have a great day of golf at the beautiful
Boulder Pointe Golf Club and Banquet Center 
located in Oxford, MI.
 
Boulder PointeThe Club is set amidst 1,825 acres of breathtaking scenery and is a semi-private facility with the amenities of outstanding clubs worldwide.
Boulder Pointe is rated one of the top 50 courses in the state of Michigan.

golfThe event will begin at 10:00 am.  A golf package will include continental breakfast, open driving range, a 4-person scramble, lunch, premium bar, dinner, as well as a silent auction and awards reception.

To register for the event as a participant or sponsor, you can register online, or click here to view the registration form and send in the completed form with your payment!

SPONSORSHIP OPPORTUNITIES

are still available. To learn more about our sponsorships, please click HERE.

To submit silent auction items, gift certificates and raffle items, please click HERE.

golf
ice cream
The 2009 Hope for Little Hearts Putt-Putt Tour will be held this Saturday,
June 6, 2009 from 10:00am-1:00pm!!


Support Children born with Heart Defects by joining your friends at Fenton's favorite, Uncle Ray's Dairyland, for Putt-Putt, Ice Cream, Halo Burger and more . . .   Click HERE to view the flyer!

  • Honey Bee Tickets include Putt-Putt & Uncle Ray's Ice Cream Treat (2 for $15)
  • Bee Hive Supreme Tickets include Putt-Putt, Halo Burger Snack & Uncle Ray's Ice Cream Treat (2 for $20)
fenton
100% of all proceeds will be donated to research through the U-M Congenital Heart Center at C.S. Mott Children's Hospital through the "Team Braylon Gift of Hope Fund".

Click HERE for more information
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LA Productions

Now through June 26, 2009, LA Productions will be selling personalized children's items and donating a minimum of 15% of the sales to Hearts of Hope.

In addition for every 10 people that join the LA Productions group page on Facebook before June 26, an additional 1% of total sales will be donated. So if another 100 people join, an additional 10% will be given back to Hearts of Hope. That equals a total of 25%!
Place An Order!

By making a purchase, you will be giving twice - once to the lucky recipient and again to this incredible cause. View the Product Flyer And, if you'd like to place an order, view the Order Form here!

To learn more click HERE

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CHD Awareness Shirts
.
Bella
 now available
on-line!!
.
You can now bring awareness to the #1 birth defect by wearing one of our HOH awareness shirts.
.
Click HERE to order yours today!

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There are many happenings within our community. If you know of an upcoming event or fundraiser, please contact us with any information about the event. We also ask that you update us if your home address, e-mail or phone number has changed so that we may keep you informed of upcoming events.

Lastly, you are invited to share your child's story on our website which provides "hope" to new families beginning their heart journey. If you would like to help us offer this "hope" or if you have an existing CarePage set up and would like to share your child's CarePage, please e-mail us with your CarePage name or bio and photo to storiesofhope@heartsofhopemi.org .

We appreciate your support. Together we will make a difference in the lives of those affected by congenital heart defects.
 
Sincerely,

Hearts of Hope S.E. Michigan

 

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T
carepage
Stay Connected with Friends and Family during your child's hospitalization!

CarePages are private personalized Web pages provided to you as a FREE service by Hearts of Hope.
Starting a CarePage is easy! We can help you set yours up in less than 10 minutes. To get started click here and then on the CarePages logo!
Legal Disclaimer: The information contained is made available by Hearts of Hope for informational purposes only and is not intended to substitute the services of a healthcare professional or to replace the medical advice of physicians. The reader should consult a physician in all matters relating to health issues.