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Hearts of Hope
  APRIL E-NEWS
In This Issue
Ebstein's Anomaly
Medication Dispensing
New's about CHD's
HOH Merchandise
Donate Life
4th Annual Golf Classic
Quick Links
About Us
Hearts of Hope
welcomes our newest
Board Member
anna
Anna Sherman

Anna and her family joined Hearts of Hope over three years ago when her daughter Lily was diagnosed with Hypoplastic Left Heart Syndrome. In April of 2007 God took Lily home. Looking back, the Sherman's are so grateful for their time with Lily and wouldn't take it back for anything. Lily touched their lives in such a great way and many others as well.

Anna is dedicated to keeping Lily's legacy alive. She has recently joined our team as
Event Coordinator.

Click HERE to read more about Anna and her family.
Featured Congenital Heart Defect
ebsteins
Ebstein's anomaly occurs when the tricuspid valve fails to develop normally while the baby is in the womb.Many children with Ebstein's anomaly do very well with little or no treatment required. If symptoms of congestive heart failure develop, medications such as digoxin or lasix may be used. In some patients, however, heart surgery is needed.

Read more about Ebstein's

If your child has Ebstein's anomaly and you would like to share your story on our website, please CONTACT us!
Are you in need of new syringes?
.
syringe.
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Are the caps broken? Can you still read the numbers on the side?
.
 Don't make a mistake with your child's dosage.
.
You can now purchase new syringes and adapter caps while helping raise money for Hearts of Hope!!

Simply register with iGive
and SEARCH for "abundant-heath4u.com" along with other brand name online stores through the iGive Mall. A portion of each purchase is donated to Hearts of Hope. SAVE money with exclusive coupons/free shipping deals. Plus, when you shop within 45 days of registering they will donate an extra $5 to Hearts of Hope!

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In the News
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Featured below are some news articles  related to congenital Heart Defects...

Genetics associated with HLHS

Environmental role in development of HLHS

Three procedures save girl with half a heart
Heart pump for children needing heart transplant


  Stay connected with other HOH members
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Hearts of Hope would like to help our members stay connected through our 
"Sharing Program"
.
 

If you would like to share you child's CarePage, blog page or webpage, please e-mail Kristy with the name of your child's webpage.
ATT: Kristy
kshadik@comcast.net

Hearts of Hope Links





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HOUSE OF REPRESN

HELP PASS THE CONGENITAL HEART FUTURES ACT
!

Assistant Senate Majority Leader Dick Durbin (D-IL) along with Senator Thad Cochran (R-MS) and Representatives Zack Space (D-OH) and Gus Bilirakis (R-FL), introduced bipartisan legislation that increases awareness, education and research for congenital heart disease!

The Congenital Heart Futures Act aims to prevent premature death and disability and increase the quality of life for nearly 1.8 million people living in the United States with congenital heart disease.

We need your help to get this important piece of legislation passed!

Please take a moment to visit our friends at
 The Congenital Heart Information Network
and learn how you can help by simply sending an email to your representatives today.

The Text of the Senate version of the Congenital Heart Futures Act is now online and can be read by clicking HERE

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CHD Awareness Shirts
.
Bella
 now available
on-line!!
You can now help bring awareness to this #1 birth defect by wearing one of our  HOH awareness shirts.

Click HERE to order yours today.

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DONATE LIFE
donate life


















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TICKETS ARE NOW AVAILABLE FOR ALIVE '09


A benefit for the Donate Life Coalition of Michigan will be held Thursday, May 14th, 2009 at the Detroit Science Center. Tickets are one for $60, two for $110 or 10 for $450.

Some highlights this year include, Secretary of State, Terri Lynn Land, will be welcoming everyone. The marvelous jazz band, CURRENT, will be performing. Amazing awards will be presented along with incredible eats from Edible REX, Tamales Express, Detroit Deli, Garden Fresh Salsa, Forte Belanger and Zoup!

The silent auction items are sure to please. The Science Center is a great time. Velet parking, thanks to Merrill Lynch, makes getting there and in the door a breeze!

FOR MORE INFORMATION
Call (248) 770-5172 or (248) 701-2323
or click HERE
 
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Save the Date for the
 4th Annual Golf Classic
to benefit Hearts of Hope on
Friday, August 7th, 2009
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We will have a great day of golf at the beautiful
Boulder Pointe Golf Club and Banquet Center 
located in Oxford, MI.
 
Boulder PointeThe Club is set amidst 1,825 acres of breathtaking scenery and is a semi-private facility with the amenities of outstanding clubs worldwide.
Boulder Pointe is rated one of the top 50 courses in the state of Michigan.

golfThe event will begin at 10:00 am.  A golf package will include continental breakfast, open driving range, a 4-person scramble, lunch, premium bar, dinner, as well as a silent auction and awards reception.

Brochures and invitations will be sent out soon. Please CONTACT us if you would like to help.

Click HERE for more information and to register on-line!!

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The Lil' Hearts Scrapbooking Extravaganza was a Huge Success!!
anna scrapping
We would like to thank everyone who attended and donated to the Lil' Hearts Scrapbooking Extravaganza in Memory of Liliana Sherman.  This charity event raised $4,750.00 for Hearts of Hope!!  We are especially grateful to Anna and her committee for all the hard work and dedication they put into this fundraiser.

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There are many happenings within our community. If you know of an upcoming event or fundraiser, please contact us with any information about the event. We also ask that you update us if your home address, e-mail or phone number has changed so that we may keep you informed of upcoming events.

Lastly, you are invited to share your child's story on our website which provides "hope" to new families beginning their heart journey. If you would like to help us offer this "hope" or if you have an existing CarePage set up and would like to share your child's CarePage, please e-mail us with your CarePage name or bio and photo to storiesofhope@heartsofhopemi.org .

We appreciate your support. Together we will make a difference in the lives of those affected by congenital heart defects.
 
Sincerely,

Hearts of Hope S.E. Michigan

 

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T
carepage
Stay Connected with Friends and Family during your child's hospitalization!

CarePages are private personalized Web pages provided to you as a FREE service by Hearts of Hope.
Starting a CarePage is easy! We can help you set yours up in less than 10 minutes. To get started click here and then on the CarePages logo!
Legal Disclaimer: The information contained is made available by Hearts of Hope for informational purposes only and is not intended to substitute the services of a healthcare professional or to replace the medical advice of physicians. The reader should consult a physician in all matters relating to health issues.