Circle eNewsletter | 4 Dots Logo
By IMPROVECARENOW for Patients & Families living with Crohn's disease and ulcerative colitis
October 2012 Edition 


Featured Article
Aug Rem Rates

Flu Shot | Get It
Flu is caused by a virus that can stimulate your immune system and trigger a flare of Crohn's or colitis.  Getting a flu shot is one good way to help prevent a flare.

A note of caution:  if you take drugs that block your immune system (such as: prednisone, azathioprine, 6MP, Imuran Remicade, Humira, methotrexate and others - talk to your doctor about the medications you take) be sure to get the killed vaccine (the shot), not the live vaccine (the nasal spray).   
     
Click here for CDC 2012-13 Vaccine Info Statement
Featured Stories
    
What's new?  What is the buzz in our community?  News, media, blogs, videos, and more.

43 and Counting
ImproveCareNow has 43 participating care centers, spanning 25 states and London - with 410 pediatric gastroenterologists caring for 13, 200 kids with IBD.  Are you getting cared for at an ImproveCareNow center?  What do you think? 

The Colonless Chronicles 
Sarah is a mom with UC.  Her 13 year old son wrote about how her illness impacted his life.  She shared it on her blog.  Read more

Girls with Guts.org 
This is the collaborative effort of two, confident IBD survivors.  Their goal is to empower other girls with IBD.  Check out Alicia's Story and be sure to watch her video - it is a must see!


Loop Logo
Are you in the LOOP?
LOOP is a place where everyone has a voice - patients, families, clinicians and researchers.  We are always on the lookout for new voices.  Would you like to share yours with us?  Email the editor.

Read LOOP posts:     
 
Greetings!
Welcome back to our CIRCLE.  Just as building strong bones requires certain nutritional components - like calcium - building a strong, sustainable collaborative learning network requires certain components as well.  The ImproveCareNow Network is under two weeks away from our Fall Learning Session.  As you will read below the Learning Session is a component of the model that we use to continually improve the care and health of all children and adolescents with Crohn's disease and ulcerative colitis. Not only are Learning Sessions intensive learning opportunities, but they also represent a time to reconnect with colleagues who are spread across the nation and the globe. 
 Richard Colletti | Signature 1

 

The Learning SessionLearn

September is a busy month for the ImproveCareNow Network! Senior leaders, Division Directors, Quality Improvement Consultants (QICs) and Network staff are all focused on planning the Fall Learning Session. Twice yearly, in the spring and fall, the ImproveCareNow Network (which is spread across 25 states and London) comes together for face-to-face meetings focused on learning, sharing, quality improvement (QI) skills and capacity development, goal setting and refreshing our collaborative spirit.

 

Learning Sessions are a component of the Institute for Healthcare Improvement Breakthrough Series  model. A quality improvement collaborative built upon that model would usually last for only six to 15 months while participating care centers worked toward improvement in a specific topic area. Ongoing learning networks, like ImproveCareNow (which includes 43 care centers as of September 2012), have adapted the Breakthrough Series model and continually identify and sustain changes and improvements in pediatric healthcare over time.

 

The James M. Anderson Center for Health Systems Excellence assisted in building and currently supports ImproveCareNow and several other sustainable collaborative learning networks. You can read more about these networks and the Anderson Center here.

 

What is the ImproveCareNow Learning Session like?

The Fall 2012 Learning Session will be held October 5 - 7, 2012. New teams and new members of existing team begin with a half-day session on Friday 10/5. Sessions for all teams begin at 8:30am on Saturday 10/6 and conclude at 12:30pm on Sunday 10/7. Currently 103 QI team members, 15 parents/guardians and four patients are registered to attend. The sessions will be facilitated by five ImproveCareNow leaders/directors, four QICs, and nine staff members.

 

As is our tradition, on Saturday evening participants are invited to a group dinner at a local restaurant. This year our illustrious event coordinator has chosen a spot called Colletti's. As you may know the Network Director of ImproveCareNow is Dr. Richard Colletti and oddly enough - as if by fate - the proprietor of Colletti's is none other than Mr. Richard Colletti.   

 

Are you curious about what is planned for the participants at the  Learning Session? You can click here to read the statement and objectives for the meeting. We will publish some of the outcomes from the Fall 2012 Learning Session in the November issue of CIRCLE.

Thinking about Calcium and Lactose
Dr. Colletti 2
Richard Colletti, MD

Building strong, healthy bones requires calcium. Approximately 90 percent of adult bone mass (strength and density) accumulates between the ages of 9 and 18. To support healthy bone growth kids need 1,300 milligrams (mg) of calcium each day.

 

The National Institutes of Health recommends (low or non-fat) milk and milk products, such as yogurt and cheese, as excellent sources of calcium. Most dairy foods have approximately 300 mg of calcium per serving (8 fluid ounces or 1 cup). This represents 25 percent of the recommended daily value of 1,300 mg. Thus, providing four servings of milk or milk products daily will deliver the calcium necessary to develop strong, healthy bones.

 

It sounds simple enough, but what if a child has trouble digesting lactose, the natural sugar found in dairy? This is called lactose intolerance. Lactose intolerance is characterized by difficulty or inability to digest lactose because of an inadequate amount of lactase (the enzyme that breaks down lactose).

 

Children with Crohn's disease or ulcerative colitis are generally no more likely than other children to have lactose intolerance. Those children with Crohn's disease affecting a large part of their small intestine may be at increased risk. A breath hydrogen test can diagnose lactose intolerance.

 

Clinical symptoms of lactose intolerance include stomach pain, diarrhea, bloating and gas. The severity of symptoms may vary depending on the amount of lactase that is in the body and how much lactose is consumed. Some people with lactase deficiency can still consume a small amount of lactose (in 8 to 12 ounces or 1 to 1 ½ cups of milk) without experiencing symptoms.

 

The National Institutes of Health reports the following dietary strategies can help people with lactose intolerance get enough calcium in their diet, while minimizing symptoms of lactose intolerance:

 

* Drink milk in servings of 1 cup or less.

* Drink milk accompanied by food, such as breakfast cereal.

* Eat hard cheeses (such as Swiss, cheddar or provolone) or yogurt. These foods contain a lower amount of lactose per serving compared with milk and may cause fewer symptoms.

* Buy special lactose-free milk and other lactose-free milk products, which have an equivalent amount of calcium as regular milk.

* Use over-the-counter pills or drops that contain lactase, which can eliminate symptoms altogether.

* Consume calcium-fortified foods that have no lactose, such as orange juice with added calcium, soy beverages with added calcium, and some fortified breads and breakfast cereals.

 

It is important to note that lactose intolerance is not the same thing as a milk allergy. A milk allergy is related to the proteins in milk rather than the sugar lactose.

 

For more information on calcium, including a table of recommended foods, you can read the Milk Matters Calcium Fact Sheet published by the National Institute of Child Health & Human Development. If you are concerned that you or your child may not be getting enough calcium through diet it is important to talk with your doctor about alternatives.

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You are invited to join ImproveCareNow online on Facebook, Twitter, YouTube and LOOP.  These are places where you can learn more and interact with a community of patients, families, clinicians and researchers who are sharing stories and information about ImproveCareNow and IBD.
  

CIRCLE is an official publication of IMPROVECARENOW  | October 2012