| The Pulse...Let the Beat Go On!
May 2011 |
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Save the Date!
7th Annual National Conference Set for New Orleans January 13-15, 2012
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Astor Crowne Plaza
New Orleans |
Book your flights to the Big Easy today for the 2012 PHW National Conference next January. Enjoy the majesty of the Astor Crowne Plaza, a 4-diamond hotel located at the Gateway to the French Quarter, where Canal Street meets Bourbon Street.
Learn from medical, media, legislative and advocacy experts, in large and small group settings, who present the latest information on SCA in youth. Share ideas, best practices and comraderie with others from around the country.
SCA in youth has finally entered the national consciousness. It is more important than ever to come together in New Orleans...
Raise YOUR voice! Prevent SCA in Youth. |
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Upcoming Events..
The 2nd Annual Crawmaggedon benefiting Parent Heart Watch is being hosted by PHW members and SCA survivor Brian Brunson and his wife Paula on Saturday, June 4 in Dallas, TX...Jose and Michelle Ortega and the Andrew Ortega Foundation are holding the 1st Annual "Touch a Heart" 5K & 1 Mile Run/Walk on June 12 in Rutherford, NJ... Christy and Steve Silva are organizing  the 5K for Aidan J. to benefit PHW on Saturday, June 18 in Downingtown, PA...Also on on June 18, SCA Survivor Michaela Gagne-Hetzler is organizing a "Kids Day" at Spencer Borden Elementary School in Fall River, MA...Jim and Karen Zilinski and The Janet Fund will be hosting Janet's Night at the Ballpark on July 3rd in Bridgewater, NJ.
Congratulations!
PHW Member and young SCA survivor Tori Sorenson hosted a cardiac screening event at her hometown high school in Ellensburg, WA on April 19, where 253 students were screened...Candace Walker hosted the Clinton Ron Walker Day at Stockbridge High in April to raise money towards an AED. Kelly Stanford Warren held the 1st Annual Kayla Stanford Memorial 5K Run/Walk on May 7 in Ypsilanti, MI... Correll and Robby Seidel held the annual Powder Puff Game in memory of Kaitlin Seidel on May 13 to benefit PHW...Laura and Luther Friend were joined by thousands of friends at the 6th Annual Run for Sarah 5K & 1 Mile Fun Walk on May 14 in North Richlands Hills, TX ... Michelle Tompkins and The Zachary M. Tompkins Memorial Fund hosted a Murder Mystery Dinner on May 7th in New Hampshire...PHW Member Laura Regalado held the 1st Annual Robert Regalado Walk-a-thon on May 8 in Burbank,IL.
Following the tragic death of basketball player Wes Leonard in March, PHW members Rachel Moyer with The Greg Moyer Fund and Nicole Cunha with the Raven Maria Blanco Foundation, donated AEDs to Leonard's Fennville High School.... Check out the Nick of Time Foundation and Sue Apodaca and Darla Varrenti in the June 2011 issue of Good Housekeeping Magazine... |
National CPR/AED Awareness Week
 The national focus will be on the importance of CPR and AEDs during the first week of June. This is a perfect time to use the PHW educational resources, such as posters, brochures, public service announcements and more, to spread awareness about SCA in youth. Write a letter to your editor, call your local television station, post a link to Parent Heart Watch on your Facebook page or make a presentation in your community.
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NEW! Ask the Genetic Counselor
 PHW is proud to offer a new feature on the PHW website. "Ask the Genetic Counselor" will be available to anyone interested in submitting a brief question about the genetics of sudden cardiac death, the process of genetic counseling and testing, and to find out if genetic counseling is right for you. Emails will be answered by board certified genetic counselor, Heather MacLeod.
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NHLBI Publishes Report on Screenings
In April of 2010 a Working Group convened at the National Heart, Lung and Blood Institute (NHLBI) in Bethesda, MD to develop a research agenda and to identify resources to evaluate whether screening for SCD in the young would effectively reduce SCD and add health care value. PHW Medical Advisory Board members, Drs. Victoria Vetter and Jonathan Drezner are part of this esteemed group, which concluded that more research is needed to fill in the knowledge gaps identified by the Group. They suggested various research approaches to address the gaps and identified needed resources and potential ethical barriers.
The complete report is available to PHW members via the "Members Only" section of the website. |
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Your Donations Make A Difference. |
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