| The Pulse...Let the Beat Go On!
July 2010 |
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PHW Exhibits at Key National Conference
PHW was represented by Laura Friend and Michele Snyder at the Heart Rhythm Society 31st Annual Scientific Sessions in Denver, CO on May 12-15, 2010. More than 12,000 attended the event that brought together leading experts to feature the latest research, technologies, therapies and approaches to improve patient care. |
PHW Members Raise Awareness During
National CPR and AED Awareness Week
June 1-7, 2010
In honor of National CPR/AED Awareness Week, Pennsylvania PHW members  Skip Over and Rhonda Foster proved in front of 4,000 Harrisburg Senators baseball fans that an AED will not shock the heart if it's not needed. The pads of the AED were applied to Rhonda's chest, and shown live on the stadium's huge video screen! The AED analyzed Rhonda's heart rhythm as the crowd silently watched... no shock was delivered. PHW members also had a PHW booth and demonstrated CPR.
Christine Puricelli of Arizona had a double hit in one week! Christine took the CPR/AED Awareness Week Letter to the Editor template all PHW members received in May, and sent it to several newspapers. One responded asking her to expand upon the letter and actually do a guest column! The beautifully written article about her beautiful daughter Emilie and Long QT Syndrome can be viewed here. She also taped a news piece with her local ABC television affiliate later in the week.
New Jersey PHW Board Member Jim Zilinski also had four letters published in newspapers throughout the week.
If you receive media coverage, please e-mail info@parentheartwatch.org. |
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Teri Covington Named to PHW Board of Directors
 Teri Covington, Executive Director of the National Center on Child Death Review has been appointed to the PHW Board of Directors. Teri, who presented at the 2010 PHW National Conference, has been instrumental in bringing key stakeholders to the table and guiding the organization towards the establishment of a National Registry of SCD in youth. |
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NHLBI Recommends SCD Cardiac Screening Study and
Case Registry for Infants, Children and Young Adults
PHW Medical Advisory Board Members Part of Working Group
On April 12-13, 2010, a Working Group convened at The National Heart, Lung, and Blood Institute (NHLBI) in Bethesda, MD to develop a research agenda and to identify resources to evaluate whether screening for sudden cardiac death (SCD) in the young would effectively reduce SCD and add health care value. The Working Group consisted of experts in pediatric cardiology and electrophysiology, adult cardiology, epidemiology, biostatistics, sports medicine, child psychiatry, health economics, ethics, oncology and newborn screening.
Parent Heart Watch Medical Advisory Board Chair Dr. Victoria Vetter and member Dr. Jonathan Drezner were part of the esteemed Group, whose summary recommendations, among other things, included a SCD registry for infants, children and young adults and a pilot ECG screening study. Read the complete executive summary here. |
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Members Taking Action
"Crawmageddon" Raises Awareness and Over $6,200 for PHW
PHW Member Brian Brunson of Texas experienced SCA on May 16, 2009 while playing  basketball at his local fitness club. The quick thinking of the club's trained staff and the availability of an AED saved his life. it wasn't for these factorscoming into play, Brian knows he wouldn't be here today. Realizing how lucky he was, Brian and his wife Paula decided to host a crawfish boil - Crawmageddon 2010 - on June 7 to benefit PHW. The event was a huge success!
Run for Sarah
 PHW Co-Founder Laura Friend and The Sarah Friend Heart Foundation hosted the 5th annual "Run for Sarah" on Saturday, May 22 in Dallas, TX. Over 1,300 runners and walkers registered for the 5k Run and 1 Mile Fun Walk held in memory of 12 year old Sarah Friend. Congratulations to the Friend family!
The Kaitlin Seidel Powder Puff Game
PHW Members Correll and Robby Seidel of Texas hosted the 4th annual Powder Puff game in memory of their daughter Kaitlin. Planned entirely by students, the flag football game between the junior and senior girls raised $5,000 for PHW. Special thanks to the Seidels and all the kids that helped raise awareness of SCA in youth in memory of Kaitlin.
Tell us what you are doing by e-mailing michele@parentheartwatch.org. |
6th Annual PHW National Conference
January 14-16, 2011
Westin San Diego
San Diego, California
SCA in Youth: Act Now. Save Lives.
Early Detection/Early Defibrillation
www.parentheartwatch.org |
Your Donations Make A Difference.
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