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autismMatch |
C AR uses a tool called autismMatch to link families like yours with autism research studies at CHOP and other research institutions.
- treatment studies
- diagnostic studies
- genetic studies
- brain imaging studies
- studies on common co-occurring problems, like sleep and anxiety
- qualitative studies on autism's effects on the family
Some studies are available only to
autismMatch members.
Both children and adults with or without ASD can enroll in autismMatch. |
| Contact Us | |
Mail:
3535 Market Street, Suite 860
Philadelphia, PA 19104
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| March 14, 2011 | Volume II Issue 2 | |
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Upcoming Events
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 Next Steps Workshop for Families
Wednesday, March 30th, 2011
8:30 am to 3:00 pm
3535 Market Street,
16th Floor, Room B
Philadelphia, PA
This workshop is for families who have a young child recently diagnosed with an autism spectrum disorder. Presenters will include fellows in developmental pediatrics, speech and language therapy, occupational therapy, and special education law. A panel of family members who have made the next steps with their children will also speak. Register for this event>>
 Distinguished Lecture Series
Marshalyn Yeargin-Allsopp, MD
Chief, Developmental Disabilities Branch,
National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention
Wednesday, April 6th, 2011
7:00pm to 9:00pm
Abramson Research Center, Room 123ABC
Philadelphia, PA
In her leadership role at the Centers for Disease Control (CDC), Dr. Yeargin-Allsopp designed and implemented the first U.S. population-based study of developmental disabilities in school-age children. RSVP for this event>>
 Huddle Up for Autism
Sunday, April 10th, 2011
11:00am to 2:00pm
Lincoln Financial Field
Philadelphia, PA
Join the Philadelphia Eagles and the Center for Autism Research as we team up at Lincoln Financial Field for the 2nd annual Huddle Up for Autism. This free, fun-filled day will include field and locker room tours, arts and crafts, games, face painting, and more. Plus, special appearances by Eagles cheerleaders and SWOOP! Individuals who enroll in autismMatch prior to Huddle Up for Autism and bring proof of enrollment will receive an Eagles poster the day of the event. For more information please visit the Gift of Childhood website. Reserve your tickets now>>
 Next Steps Workshop for Professionals
Wednesday, April 27th, 2011
8:00am to 4:00pm
3535 Market Street, 16th Floor, Room B
Philadelphia, PA
This workshop is for professionals working with young children recently diagnosed with an autism spectrum disorder (ASD) and their families. Topics include an overview of ASD and accompanying conditions, available therapies and treatments and how to decide which interventions to pursue, and tips for supporting families living with ASD. Presenters include fellows in developmental pediatrics, speech and language therapy, occupational therapy, special education law, and researchers from the Center for Autism Research. Continuing Education Credits will be offered. Register for this event>>
 Distinguished Lecture Series
Sally Rogers, PhD
Professor, Psychiatry and Behavioral Sciences,
U.C. Davis MIND Institute
Thursday, April 28th, 2011
7:00pm to 9:00pm
Abramson Research Center, Room 123ABC
Philadelphia, PA
Dr. Rogers' research is focused on early social, cognitive, and emotional development, development of motor skills, communication, imitation, and language in children with autism spectrum disorders. She is also interested in treatment efficacy. RSVP for this event>>
 Next Steps into Adolescence
Tuesday, May 24th, 2011
8:30am to 3:30pm
Health and Wellness Center
Warrington, PA
Children with ASD approaching adolescence have greater physical and social transition needs than most typically developing pre-teens. Likewise, parents need support in developing a transition plan for their child. This workshop is for parents of an adolescent child with ASD and will include presentations from experts in neuorpsychology, behavior, medicine, and social work. Register for this event>>
 Save the Date
Camden Riversharks Autism Awareness Game
Sunday, June 15th, 2011, 1:05pm
Campbell's Field
Camden, NJ
New Jersey's minor league baseball team will host an afternoon autism awareness game this summer. Tickets are $11. The Riversharks are donating $5 from every ticket sold to the Center for Autism Research. The "Group Password" is CAR. Purchase Tickets>>
 The last Friday in January was a huge night in fundraising for the Center for Autism Research. Two events were held to benefit research and outreach at CAR - the Philadelphia Auto Show Black Tie Tailgate and the Friends of Celi Benefit. A special thanks to the Auto Dealers Association of Greater Philadelphia, the tailgate sponsors, Megan and Ed Schmidt for their continued generosity, and to everyone who attended one of the benefits. Thank you!
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| CAR in the News | |
 Brain Waves Detect Babies Potential Risk of Autism There is currently no medical test to screen for autism spectrum disorder (ASD). But a new study from the Children's Hospital of Boston found that measuring brain activity during infancy could help determine whether a baby might be at higher risk for developing ASD. Researchers found that children who have an older brother or sister on the autism spectrum - and thus are already at a greater risk for developing ASD - showed a different brain wave pattern than infants who are not at greater risk. Dr. Sarah Paterson, director of the infant neuroimaging lab and co-principal investigator of the Infant Brain Imaging Study (IBIS) at the Center for Autism Research at The Children's Hospital of Philadelphia, was interviewed by ABC and CNN and weighed in on the findings. Read/view the ABC story>> Read the CNN story>>  Scientists Link 'Sets' of Genetic Abnormalities to Autism Risk
Researchers from the Center for Biomedical Informatics at The Children's Hospital of Philadelphia are the first to establish a connection between gene mutations, impaired brain development and the onset of autism. The scientists analyzed the DNA of over 1,000 children and uncovered entire collections of genes with similar neural roles potentially associated with a greater proportion of autism risk. Read full article>>
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Featured Study
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Infant Brain Imaging Study
CAR is actively seeking to enroll families who have a child with an autism spectrum disorder and an infant sibling 12 months or younger for this study. We are also enrolling families who have a typically developing child and an infant sibling 6 months old or younger. Developmental evaluations and MRI scans of your infant's brain will be completed at 6 months (if applicable), 12 months, and 24 months of age. Families will be compensated for their time and reimbursed for travel expenses.
Twin and family studies have shown that younger siblings of children with autism are at a higher risk of developing autism than those children who do not have a relative with the disorder. Information gained about early brain development in children with autism may improve methods of early detection and intervention for infants who may be at risk for developing autism. Earlier identification and treatment may lead to better outcomes for these young children and their families. Learn more about IBIS>>
 "What really impressed me were the things that they did to make it comfortable for my daughter. The IBIS team looked at every detail to make sure that she could get through the MRI asleep. That made it really great for me as a parent." - Naidonna Ott, IBIS participant.
Learn more about the Ott family's experience with IBIS - view their video interview>>
For more information or to participate, contact us at 1-866-570-6524 or autism@email.chop.edu.
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CAR Team Profile
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 Susan Epstein, PhD Clinical Neuropsychologist
In the field of psychology, symptoms and behaviors don't often present themselves in nice, neat packages, and making a diagnosis isn't as easy as interpreting test scores. Susan Epstain, PhD, a supervising psychologist at the Center for Autism Research (CAR) at The Children's Hospital of Philadelphia knows this reality well. Read full article>>
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Introducing Driven:
CAR's New Blog | |
Researchers are working hard every day to find more answers about autism. Parents are working hard every day to ensure that their child is safe, happy, and healthy. CAR has created a blog called Driven that we hope can be a portal for families, scientists, and the community to gain a better understanding of each other. In the end, it is this kind of collaboration that will help find the answers that matter. All families are invited to contribute to Driven by writing a blog entry about challenges and triumps related to autism, research, and family. You can find the entry guidelines by clicking here. The blog currently contains the following entries:  Is My Child Ready for Summer Camp?By Gail Stein, MSW Social Worker, Center for Autism Research
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Trying to Understand the Causes of Autism