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Our Mission:  To Promote and Encourage Independence
for All People with Disabilities.
1705 South Saginaw Road 
Midland, MI 48640
(989) 835-4041  (800) 782-4160
September 2011 Newsletter  

angelSending An Angel: Transitioning Out of a Nursing Home 

 

Cindy Martin
Cindy Martin

The following letter was sent to Cindy Martin and Victoria Finazzi. Cindy is the Nursing Facility Program Leader at Disability Network of Mid-Michigan. Victoria works at the Region 7 Area Agency on Aging. The writer (Susan Allen) refers to the transition of her mother from a nursing home into an independent living environment.

 

Dear Cindy and Victoria,

 

I just can't believe that no one else but you two were able to bring us together and I can't believe everything you were able to send to us. It's like you sent an angel!

 

After more than 9 months of hoping the nursing home would help or at least answer my questions, it took your efforts to finally make things happen. How can I ever thank you enough???

 

It's obvious to me our caseworker at the home just ignored us and passed us to the next person. Luckily, that next person was you and I am so glad.  Like I have said many times....you are the only ones that have ever taken any interest in our situation. And when I get my mom fully moved-in, I will make sure everyone knows who did the work!!!!  And hopefully you get lots of credit for it. 

 

We owe you the world for what you did to help us.  Cindy offered us more than I/we could have ever expected.  I felt like I was on Oprah, with everything she was telling us that was available for my mom. But you both delivered!

 

Cindy knows more than our own caseworker knows!  Our caseworker told us things that Cindy said we never had to do in the first place.  She even helped me fill out the application forms you sent to me for the Bridge Card, etc.

 

I just can't thank you enough for how you turned a pretty depressing day yesterday into the best day ever today.

 

Thank you from the bottom of my heart!

Susan Allen

staffVondra and Carter Join Disability Network Staff

 

Amber Vondra and Gail Carter have joined the staff of the Disability Network of Mid-Michigan in the skills development program. Amber is working as a Vocational Rehab specialist while Gail is a representative payee.

 

Amber VondraAmber received her Bachelor's degree in Family Studies from Central Michigan University, while also double minoring in Communication Disorders and Psychology. Amber spent several months as a paid intern at Disability Network, working in the skills development program. Amber is an avid swimmer and she has played water polo for many years. In her spare time, Amber enjoys bike rides with her dog "Battie," watching movies and creating Do-It-Yourself craft projects.

 

Gail CarterGail Carter worked previously at Guardianship Services of Saginaw County as a representative payee. Gail earned a Bachelor of Professional Accountancy degree from Saginaw Valley State University in 2010. Gail also has a Bachelors Degree from the University of Louisville. Gail has an extensive background in human resource management in a retail environment. She enjoys traveling to Louisville, as well as Virginia and New Mexico to visit her sisters. Gail spends her spare time renovating their 1927 home with her husband, Scott. 

 

The Skills Development program works with individuals to reduce and eliminate barriers to employment while building the necessary skills for full participation in the community. As part of that program, representative payees help prevent guardianship by providing assistance with day-to-day expenses and money management.

 

For more information on these programs, contact Disability Network of Mid-Michigan at 1-800-782-4160 or at www.dnmm.org.

cmuCMU Disability Awareness Fair

cmuCentral Michigan University is holding its third annual disability awareness fair at Finch Fieldhouse on Saturday, October 29th, from 10am - 2pm.  

 

This family focused event will highlight the university's month-long effort to increase disability awareness this October. In addition to information tables and vendors, the fair will include interactive demonstrations, guest speakers, therapy dogs, engaging activities for children (who are encouraged to come dressed in their favorite costume), and concessions.

 

For more information, please email Beth Kennedy or visit www.cmich.edu

disability awareness 

mdchMDCH Needs Your Input!

 

MedicaidThe Michigan Department of Community Health (MDCH) is pleased to issue a Request for Input (RFI) to solicit input from diverse stakeholders regarding its initiative to integrate Medicare and Medicaid for individuals who are eligible for both programs (dual eligibles). MDCH is interested in hearing from any interested party, including those who are eligible for both Medicare and Medicaid, providers of services, and potential contracting entities.

 

The RFI poses several questions that will help MDCH build on the input we have received through the public forums.  You can access the RFI, including a letter from Michigan's Medicaid Director Stephen Fitton, which is located on the Public Sector Consultants website: 

https://janus.pscinc.com/dualeligibles

A link to this website can also be found on MDCH's website:
www.michigan.gov/mdch.

 

Please pass the RFI on to anyone you believe may be interested in responding. 

 

Responses can be submitted using the online survey or paper mailed. All responses must be submitted by 5:00 PM on Friday, October 7, 2011.

hpHewlett-Packard To Produce Free Autism Apps

 

Hewlett-Packard is teaming up with a pair of organizations to develop apps to help people with Autism handle everything from scheduling and communication to bullying.

Ideas for the apps were selected from over 250 suggestions submitted to Autism Speaks and the Doug Flutie Jr. Foundation for Autism, which partnered with HP on the "Hacking Autism" initiative.

 

At a "hackathon" scheduled for Oct. 11, the computer giant plans to bring together a slew of volunteer developers tasked with creating apps to address seven core areas of need for people within the autism community.

 

Why Touch Technology
Why Touch Technology

Some of the apps are expected to be designed for individuals with Autism to use themselves. These might include apps featuring social stories, help with time management, assistive communication software or a tool to report bullying. Other applications will be designed to help parents and professionals track progress with behavior or other medical concerns.

 

Once complete, the apps will be provided to the public free of charge, according to officials at Autism Speaks.

Organizers said it's not yet clear what platforms the apps will work on, though they hope to make the software available for smart-phone and tablet users.

 personalPersonal Perspectives  

The following is the first in a series of articles submitted to Disability Network from people with disabilities. We hope these personal stories will offer a unique insight into the day-to-day life of a person with a disability.
 

My "Disability"   by  Samuel McLennan

 

Austism Awareness RibbonI've struggled to live amongst the "norm" throughout my entire life. One reason is my questioning and unwillingness to deal with what I view as "silly, trivial collective drama." But the real reason has been with me since birth: I have Autism.

 

In the old days, many called us impaired, insane or idiot savants. Now there are new labels like "High Functioning" or Asperger's. But these are just labels and labels ignore the person. So the question remains: What is Autism and how does it affect the person?

 

In a general sense, Autism is a disorder that affects a person both mentally and socially. We tend to not socialize well, and we generally have trouble seeing and doing things that those without Autism would see as "normal." We also tend to be very organized, to the point where everything has to be in order, and by order I mean our own order; whatever order makes sense to us.

 

Again, this is only a general sense of what Autism is. Every trait of Autism is as unique as the individual. With regard to how Autism affects a person, I can only speak of my own past experiences; my own personal reflections as a person with Autism.

 

From birth, I had "autistic tendencies." Usually, when infants want or need something, they cry. I never cried, even when I needed something. Not crying turned into not talking until I was around seven. Until that time, I relied on bodily behaviors, such as flapping my arms, to communicate.

 

I did not eat foods with certain textures, like macaroni and cheese. Not even as a kid! When I needed something, I would hit the cupboard, or even my parents. Even when I didn't need anything, like if I was too full to eat while at a restaurant, I would throw a tantrum. To know what I was saying, my parents had to read my body language and they spent many hours learning psychology.

 

In school, I needed an aide at my side, not because I had trouble with anything, but because I wouldn't focus on the assignments. It was a tough childhood for sure, but it did eventually get better. However, I was still lacking socially, especially with regard to understanding slang and sarcasm.

 

Living a normal lifestyle was difficult, especially through puberty. I won't reveal much of my teenage years here, but I was troubled. Not depressed or addicted to drugs, but I was nihilistic and somewhat aggressive. However, everything I had interest in, everything I had a knack for, I actually did rather well and I had numerous awards, such as perfect attendance, honor roll and a music award.

 

So now I've graduated high school, I've earned my Associate's Degree, and I've even received a driver license. I'm attempting to do things independently, socially, academically and personally. I've come a long way these past years, and I thank many people for that; family, teachers and students. It was these last few years that I've really matured and seasoned. And now it's time to move forward again. Hopefully, I'll be able to find work and then I can write another chapter in my success story about overcoming my "disability."

... 

Editor's Note: If you are a person with a disability and you are interested in sharing your story, please feel free to email Matthew Ivan or call 989-835-4041.

surveyDisability Statistics Center Public Survey

Are you a person with a disability (including cognitive, hearing, vision, or physical) who receives benefits from the Social Security Administration? Benefits can mean SSI, SSDI, or retirement.
 

 

If so, we hope you'll consider participating in a survey. 

 

Researchers at the UCSF Disability Statistics Center want to know more about your experience applying for Social Security benefits and your interactions with the Social Security Administration. They are conducting a needs assessment for the Social Security Administration so that they can communicate better with their beneficiaries who have disabilities. Phone interviews will be approximately a 30-45 minutes long.  

 

For more information, or to participate, please call this toll-free number: 1-855-209-9538 

 

Please speak clearly and slowly to leave your name and number. A UCSF researcher will get back in touch with you to tell you more about this study.  You can also email: 

 

 alice.wong2@ucsf.edu 

Alice Wong, Staff Research Associate II

UCSF Disability Statistics Center

Email us:

info@dnmm.org

 
Board of Directors
 
 Officers:
 Jerry Pritchett
 President

 Teresa Oliver 
 Vice President

 Harry Leaver
 Secretary

 Bill Bateman
 Treasurer

 Members at Large:
 Tim Troy 
 June Price  
 Peter Jensen            
 Frank Champagne
 Greg Purtell 
 

 

 Executive Director: 

 Sara Grivetti, M.A.,C.R.C.

 
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Disability Network of
 Mid-Michigan celebrates 21 years of promoting  & encouraging independence.

 

Events Calendar 
   
October 9th
Resource Fair and Fundraiser Walk
1pm - 3pm
989-295-7328
Freeland Sports Zone

October 12th

Midland Senior Expo

10am - 3pm 

Midland Mall

 

October 25th

Disability Mentoring Day

Contact:

Linda Leahy 

989-835-4041

 

October 29th

CMU Disability Awareness Fair 

Contact:

Beth Kennedy 

  

 

Peer Group Calendar

 
October 5th

Midland Peer Group 

3pm - 4pm

DNMM Office

1705 S. Saginaw Rd.

Midland, MI 

 

October 17th

Saginaw Peer Group 

10am - 11am

Butman - Fish Library

1716 Hancock

Saginaw, MI


  October 15th

Bay Peer Group 

10am - 11am

Westminster Church

103 E. Midland St.

Bay City, MI