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Our Mission:  To Promote and Encourage Independence
for All People with Disabilities.
1160 James Savage Suite C 
Midland Mi 48640
989-835-4041  800-782-4160
January 2010
 

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Disabilities and Parenting

When parents learn that their child has a disability or a chronic illness, they begin a journey into a life that often is filled with strong emotion, difficult choices, and interactions with many different professionals and specialists. The journey includes an ongoing need for support. Initially parents may feel isolated, alone, and uncertain about where to begin their search for information, information, assistance, understanding, and other types of support.
 
When learning about a disability most parents react in similar ways that have been shared by parents before them who have also been faced with this enormous challenge. One of the first reactions is denial. Denial rapidly merges with anger, which may be directed toward the medical personnel who were involved in providing the information about the child's problem. Anger can also color communication between husband and wife and other family members. Early on it seems that anger is so intense that it touches almost everyone as it triggers feelings of grief and inexplicable loss, feelings that parents don't know how to explain.
 
Fear is another immediate response. People often fear the unknown more than they fear the known. Fearing the future is a common experience: "What is going to happen to my child at five years old? At twelve? at twenty-one? What is going to happen to my child when I am gone?"
 
Where does a parent begin? Try to remember to take it one day at a time. Fears of the future can be immobilizing. Living with the reality of the day is at hand is more manageable if we throw out the "what if"and "what then" worries of the future.
 
Reaching out to organizations such as Disability Network of Mid-Michigan can really alleviate some of your anxiety and help you get your life back on track. If you have questions about any disability, please call 989-835-4041.

 

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Census

The U.S. Census Bureau kicks off its $300 million campaign today to encourage the nation's residents to fill out their census forms. The bureau will begin mailing out the 10-question forms in March. The U.S. Constitution requires the population count every decade to draw Congressional districts and to apportion Electoral College votes to the states. Congress uses the count to distribute more than $400 billion each year in federal aid to states, local and tribal governments for numerous programs and services, including those that are for persons with disabilities. In 2000, only 67% of households mailed back their forms.

 

 

 

NDRN Releases "A Decade of Little Progress Implementing Olmstead"
 
Curtis L. Decker, Executive Director of the
National Disability Rights Network (NDRN),
recently released the report, "A Decade of
Little Progress Implementing Olmstead".
 
NDRN reviewed the ten-year efforts of the
U.S. Department of Justice (DOJ) and the
U.S. Department of Health and Human
Services (HHS), two agencies charged
with enforcing the Supreme Court's
mandate.
Here, in Decker's words, is a little taste:
"With every year that passed in the last Administration, it appeared that federal efforts to spur Olmstead enforcement waned. This report highlights problematic
trends like this and recommends a more
effective, aggressive federal approach to
bring about community integration. The
research for the report was largely
completed in September 2009.  Since that
time new leadership has been appointed to
the U.S. Department of Justice (DOJ) and
we've seen a renewed focus on Olmstead enforcement. Some welcome signs include:
DOJ has been more proactive to reach out to members of the disability community to
identify potential Olmstead cases where
their participation might advance the law
and help to clarify questions that remain
unsettled after the Supreme Court's decision. Questions which, if resolved, may remove
barriers to individuals transitioning to the community.
Recent DOJ investigations and filings under
the Civil Rights of Institutionalized Persons
Act (CRIPA) have made clear that Olmstead
issues are deeply intertwined with problems
of inadequate conditions, and solving these problems must look at whether the people
in the facility belong there and whether the
institution is complying with laws governing discharge planning and transition.

"Hopefully, we will see a similar sense
of urgency at the new HHS, Office of
Civil Rights; and this aggressive
commitment to enforcement of the
Olmstead mandatewill continue throughout
the full Obama Administration and beyond.
The ebbs and flows of budgets may
pressure DOJ and the U.S. Department of
Health and Human Services (HHS) to slow
their commitment. However, America can't afford to slow down community integration. 
We have a generation of baby boomers facing
disabilities as a result of aging, and thousands of recently wounded Iraq and Afghanistan
veterans who deserve afuture outside of institutions."
 
 
 
Disability Scoop Reports that Obama Administration Pushes to Provide Community Living Opportunities
By Michelle Diament, December 2, 2009
 

Community-based living for people with
disabilities got a boost recently when the Department of Justice filed friend of the court briefs in lawsuits against three states. The briefs were filed in support of the Supreme Court's decision in Olmstead v. LC and EW. In that decision, the court said that states have
an obligation to give people with disabilities
the option to receive care in a community
setting, where medically possible.
President Barack Obama said earlier this
year that his administration would beef up enforcement of the court decision, which
dates back to 1999. And, in late November
the Justice Department took action by filing
briefs in lawsuits against the states of
Connecticut, Virginia and New York.
Read more of this article at Disability Scoop:
The Premier Source for Developmental Disability News - http://www.disabilityscoop.com/2009/12
/02/justice-briefs/6367/ 
or explore
Disability Scoop at www.disabilityscoop.com 
 
 
IN THIS ISSUE:
 
  • Disabilities and Parenting
  • Piano Palooza
  • Census
  • NDRN on "Olmstead"
  • Disability Scoop
  • Letter from the Director
 
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BOARD OF DIRECTORS

Officers:
Jerry Pritchett, President

Sharon Leenhouts,
Vice President

Vacant, Secretary

Harry Leaver, Treasurer

Members-at Large:
 

Tim Troy
 

Bill Bateman 
 
June Price
 
Peter Jensen
 
Frank Champagne
 
Teresa Oliver

Executive Director:
Sara Kristal, M.A., C.R.C

BE AN ADVOCATE
 
Share this newsletter with your friends, family and
co-workers.
 
Together we can make a difference.
 
 
 
 
 
 
 
 
 
 
  
 
 Adult Peer Group Calendar
 
 
JOIN THE FUN!!!
 
 
January 16, 2010
Bowling at Northern Lanes in Sanford
11-2 PM
 $7.00
 
January 25, 2010
Movie Day
11:30-2:30 PM
DNMM
Bring your favorite snack
 
February 3
Peer Meeting at DNMM 3-4 PM
 
February 12
Valentine's Lunch
Grand Traverse Pie Company 11:30-1 PM
$8.00
 
February 22
Movie Day
11:30-2:30 PM
DNMM
 
If  you have any questions about  the Peer Support Group or Mentor Information
 please call
835-4041
800-782-4160
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
As we seek to grow, and to increase the number of people we are able to help, we will strengthen our network, allowing us to provide increased services to those who need them.
At the Disability Network, we believe that it's not the disability that prevents people from
participating in our communities... it's the barriers placed in front of people.
LETTER FROM THE DIRECTOR
 
 Our newsletter starts out with a great article on disabilities and parenting; an article in which I certainly relate to. As many of you know I am a mother of three children, two of whom have learning disabilities and AD/HD. The years have been filled with many challenges, learning opportunities and fulfilling moments. But, then again, what parent wouldn't say that.
 
I thought I'd write my article this month about my experience with their education. My son graduated last year from high school and my youngest daughter is a freshman in high school. One lesson I learned very early on is that parents are their child's best advocate. The teachers care; but I care more!
 
I also learned that developing a win-win relationship with the teachers and school personnel was much better than being adversarial. If you know your child's rights; then you know what to advocate for in an Individualize Education Planning (IEP) meeting.
 
Also, don't hesitate to bring your child to the IEP meeting at an early age. While this often got me a few dirty looks, it taught my kids how to advocate for themselves. I'll never forget the time my daughter did not receive the accommodation she was entitled to for test taking; she refused to take the test without it.
 
Don't forget that teachers are human beings, too. While teachers care about the success of your student they also have many other students to teach. A child with AD/HD can exhaust a teacher, so make sure you are working together to reinforce the rules at school and support the teachers expectations.
 
Your child has the right to be in the least restrictive environment; therefore push for mainstreaming where appropriate. Students will learn more skills being in regular education and push themselves further when they see their peer's pushing themselves. Students in restrictive environments will absorb the behaviors from other students...my goal was to always have the best examples around my children.
 
Listen and show empathy to the challenges your child is facing. They often struggle with their self-esteem and as parents we can create opportunities for success to balance out the feelings of failure a student sometimes faces.
 
My last bit of advice is to make sure you are taking care of yourself and your relationship with your significant other. Don't let parenting get in the way of "alone" time or "couple" time. You will be a much more relaxed and calm parent if you take a few moments a day to yourself.