CFCF       

2012 E-Update Number 4

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In this Issue
NET Community Takes LA By Storm
Clinical Trials and Collaboration
Share Your Story
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CFCF is pleased to announce that this E-Update is supported by Novartis Pharmaceuticals Corporation
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Survivor Story Photo  
 Sandra Becham
(submitted 3/26/12)
  
CFCF is honored to present Survivor Stories. They reflect remarkable courage and determination. Thank you to our Survivors for sharing their courage and words of hope with other patients.

Read our newest survivor stories:
Candye Kane, Pamela Ter Gast,
 Ivan StarrJoy Hasty
Give hope and a future to  neuroendocrine tumor patients: donate to CFCF where 100% of all individual donations go to carcinoid and related neuroendocrine tumor research.

CFCF is a 501(c)(3) organization-all contributions are tax-deductible.  We want our donors to know that we are allocating their donations responsibly and wisely to achieve a carcinoid cure as quickly as possible. 


To learn more, view CFCF's:
Audited Financial Statements
IRS Form 990

Caring for Carcinoid Foundation
198 Tremont Street, Box 456
Boston, MA 02116
617.948.2514
www.caringforcarcinoid.org
BBB Accredited Charity
CFCF meets all 20 Wise Giving Alliance standards for charity accountability established by the Better Business Bureau. Click here to check out the CFCF Wise Giving Report.
NET Community Takes Los Angeles By Storm

Thank you to everyone who attended the Caring for Carcinoid Foundation's Patient Education Event at the Intercontinental Hotel in Los Angeles on March 17.

   

The event exceeded our wildest expectations, more than doubling the attendance of last year's seminar at Cedars-Sinai.  Despite the difficult weather, nearly 200 members of the carcinoid/ neuroendocrine cancer community joined us for this year's event. Some traveled hundreds or even thousands of miles across the country to share experiences and learn more about the current research and treatment options.

 

We heard presentations from expert clinicians across Southern California on the latest therapies for neuroendocrine cancers. Patients and wellness experts shared their perspectives on maintaining a positive mind-body connection. The event also included awards and prizes for caregivers and patients, including the presentation of the Warner Advocacy Award to Jan-Naritomi Hart.  

 

At the Caring For Carcinoid Foundation, we are committed to making these education programs meaningful and accessible for you. Slides from the faculty presenters and  photos from the event  are now on our website. Video will be available soon - so stay tuned!

Clinical Trials and Collaboration

Ron HollanderOn February 29, CFCF's Executive Director Ron Hollander traveled to Washington, D.C. to participate in events surrounding Rare Disease Day 2012. In his latest blog, Ron discusses opportunities for research, advocacy and collaboration with other organizations. 

 

On the research front, Ron met with Dr. Stephen Wank from the National Institutes of Health (NIH). Dr. Wank is leading a study of familial carcinoid tumors involving the small intestine. His team in Bethesda, MD is interested in enrolling eligible families.  If you are aware of a family that may be eligible, please refer them to this website where they can learn about the study, who to contact for questions about the study, and possible enrollment.

 

To learn more about these and other clinical trials, please visit CFCF's Clinical Trials Database. 

Support the NET Community, Share Your Story

Novartis Example

CFCF welcomes your Survivor Story submissions.

 

Survivor Stories provide an opportunity for patients to support each other through their personal experiences using their unique voices. The stories reflect remarkable courage and determination, providing hope for patients and caregivers alike.  They also help motivate your fellow patients to action and serve as a forum to connect.

 

Check out the featured stories on our website and in this week's E-update, and consider sharing your story with our community today!