|
CFCF is pleased to announce that this E-Update is supported by Novartis Pharmaceuticals Corporation |
 Follow us on Twitter!
 Join us on Facebook!
Visit us on Navigating Cancer! |
Survivor Stories
Submitted 5/2010
CFCF is honored to present Survivor Stories. They reflect remarkable courage and determination. Thank you to our Survivors for sharing their courage and words of hope with other patients.
|
|
Join Us for a Cure
Make a difference and get involved with CFCF! Unite, meet fellow members of the carcinoid community, and spread awareness at upcoming CFCF events! |
Give hope and a future to neuroendocrine tumor patients: donate to CFCF where 100% of all individual donations go to carcinoid and related neuroendocrine tumor research. CFCF is a 501(c)(3) organization-all contributions are tax-deductible. We want our donors to know that we are allocating their donations responsibly and wisely to achieve a carcinoid cure as quickly as possible.
To learn more, view CFCF's:
Audited Financial Statements
IRS From 990
|
|
We are proud to be a BBB accredited charity!
CFCF meets all 20 Wise Giving Alliance standards for charity accountability established by the Better Business Bureau. Click here to check out the CFCF Wise Giving Report. | |
|
|
|
|
|
CFCF Executive Director Lauren Erb to speak at FDA public hearing on rare diseases
 On June 29, 2010 CFCF Executive Director Lauren Erb will be speaking at the "Considerations Regarding FDA Review and Regulation of Articles for the Treatment of Rare Diseases" public hearing on behalf of the neuroendocrine tumor community.
Lauren will discuss the difficulties in bringing drugs to market for rare diseases like neuroendocrine tumors. Lauren will share patient stories and serve as a voice of the neuroendocrine tumor community.
Click here to view Lauren's slide presentation. Stay tuned as Lauren's full speech with recommendations for the FDA will be posted in coming weeks. Let Lauren know what you think about the FDA review process for rare diseases - write with stories and experiences to lauren.erb@caringforcarcinoid.org. |
|
CFCF Founder Nancy Lindholm invites YOU to make a difference
 In her most recent blog, CFCF Founder Nancy Lindholm encourages carcinoid cancer and neuroendocrine tumor patients to stand up and make a difference! Nancy offers a number of ways YOU can make a difference for your fellow neuroendocrine tumor patients and the rare disease community as a whole. Nancy celebrates fellow CFCF Director and carcinoid cancer survivor Carrie Host as a tremendous advocate for neuroendocrine tumor patients. Nancy declares Carrie's cancer memoir "Between Me and the River" a wonderful resource for all cancer patients and their caregivers. Click here to read Nancy's blog. |
|
CFCF Patient Liaison Daniel Joo blogs on rare disease advocacy
 CFCF Patient Liaison Daniel Joo has posted the second part of a series on Rare Disease Advocacy on CFCF's Patient Advocacy blog. Daniel's post discusses the current lack of treatments for patients with rare diseases like neuroendocrine tumors and encourages the neuroendocrine tumor community to get involved and speak out. Click here to read the full blog. |
|
Advocate for change on Research!America
 Research!America is the nation's largest not-for-profit public education and advocacy alliance committed to making research to improve health a higher national priority. Research!America is a tremendous resources for patients, caregivers, and anyone looking to make a difference by advancing medical, health, and scientific research.
With the FDA Public Hearing on Rare Diseases approaching what better time than now to speak up and make your voice heard! Speak out and tell your representatives what YOU think about the FDA, healthcare reform, whatever is on your mind. Research!America offers a number of resources to advocate for those living with carcinoid cancer and related neuroendocrine tumors. Click here to access these resources and learn how YOU can make a difference. |
|
CFCF Partnership with NORD
 The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
NORD is a wonderful resource for the rare-disease community; they provide information, research grants and fellowships, advocacy for the rare disease community, Medical Assistance Programs that help patients obtain treatment, and referrals to patient organizations like CFCF. To access these resources, or to learn more about NORD, visit their website: www.rarediseases.org. |
|
AARP
 The AARP provides valuable information on Medicare, insurance, treatment, and prevention and is a great source for the latest news in health discoveries and healthcare services. Visit the Health section of the AARP website to access the variety of information and patient resources that AARP has to offer. |
|
Advertisement from our Sponsor   | |
|
|
|
