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CFCF is pleased to announce that this E-Update is supported by Novartis Pharmaceuticals Corporation |
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Survivor Stories
Submitted 5/2010
CFCF is honored to present Survivor Stories. They reflect remarkable courage and determination. Thank you to our Survivors for sharing their courage and words of hope with other patients.
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Join Us for a Cure
Make a difference and get involved with CFCF! Unite, meet fellow members of the carcinoid community, and spread awareness at upcoming CFCF events! |
Give hope and a future to neuroendocrine tumor patients: donate to CFCF where 100% of all individual donations go to carcinoid and related neuroendocrine tumor research. CFCF is a 501(c)(3) organization-all contributions are tax-deductible. We want our donors to know that we are allocating their donations responsibly and wisely to achieve a carcinoid cure as quickly as possible.
To learn more, view CFCF's:
Audited Financial Statements
IRS From 990
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We are proud to be a BBB accredited charity!
CFCF meets all 20 Wise Giving Alliance standards for charity accountability established by the Better Business Bureau. Click here to check out the CFCF Wise Giving Report. | |
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CFCF Founder Nancy Lindholm Blogs on the Upcoming Marathon Season
 In her newest blog, CFCF founder and carcinoid survivor, Nancy Lindholm, encourages the carcinoid community to join her in running and / or recruiting for the 2010 Chicago Marathon and Marine Corps Marathon. Join Team CFCF today!
Click here to read Nancy's blog. For more information on CFCF's 2010 marathon program please call us at 617 848 3977.
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Join CFCF in the 2010 Chicago Marathon!  Join CFCF's Executive Director, Lauren Erb, and returning team captain, Katie Effler, in the 2010 Bank of American Chicago Marathon. The Caring for Carcinoid Foundation invites you, or someone you know, to come join us on October 20th to run or walk for a cure. All funds raised will go to support the first large-scale genome study of carcinoid cancer, so put on your running shoes and register today!
General registration for the marathon has closed, the only way to register is with a charity partner like CFCF. Click here for details on how to register and to see this year's team. |
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Upcoming CFCF Events
 The season for running, cycling, and swimming events is upon us! Join Team CFCF in any number events nationwide to run, bike, or swim to a cure.
Team CFCF participants raise awareness for carcinoid cancer and related neuroendocrine tumors and raise much needed funds for scientific research. 100% of every dollar raised at our fundraising events goes to cutting-edge carcinoid cancer and neuroendocrine tumor research. |
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Advocate for Change: FDA Hearing on Treatments for Rare Diseases
 The Food and Drug Administration (FDA) will hold a public hearing on June 29 and 30 in order to gain input from patients, healthcare providers, academic researchers, and others to help shape the future work of FDA's committee for rare diseases. This is an important opportunity for patients to provide input on approval and post-marketing surveillance of products for rare diseases like neuroendocrine tumors. The free hearing will be held in Silver Spring, Maryland and it is open to the public. To learn more, or for information on how you can participate and have your voice heard click here. |
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Research!America Poll Reveals Concerns About the Pace of Medical Research
 A recent Research!America poll found that while 72% of respondents feel the FDA is a trustworthy source of medical information, 41% feel it takes too long to approve a drug and allow it to be sold to consumers. Click here to read more about the results of this poll.
The poll found very strong support (94%) for the idea that institutions conducting medical and health research should work together, including government, industry, and universities. This point highlights the importance of collaboration, a critical tenet of CFCF's Research Road Map.
CFCF has been a proud member of Research!America since 2007 and supports Research!America's mission to make research to improve health a higher national priority. |
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