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CFCF is pleased to announce that this E-Update is supported by Novartis Pharmaceuticals Corporation |
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March 27, 2010
Patient Education Seminar
Cedars-Sinai
Attention Patients! Spots still remain for CFCF's upcoming Patient Education Seminar at Cedars-Sinai on March 27, 2010. Please call 617 848 3977 or email ashley.malins@caringforcarcinoid.org today to reserve your spot or for more information. |
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Survivor Stories
Submitted 2/2010
CFCF is honored to present Survivor Stories. They reflect remarkable courage and determination. Thank you to our Survivors for sharing their courage and words of hope with other patients.
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Join Us for a Cure
Make a difference and get involved with CFCF! Unite, meet fellow members of the carcinoid community, and spread awareness at upcoming CFCF events!
CFCF Fundraising Events |
Give hope and a future to neuroendocrine tumor patients: donate to CFCF where 100% of all individual donations go to carcinoid and related neuroendocrine tumor research. CFCF is a 501(c)(3) organization-all contributions are tax-deductible. We want our donors to know that we are allocating their donations responsibly and wisely to achieve a carcinoid cure as quickly as possible.
To learn more, view CFCF's:
Audited Financial Statements
IRS From 990
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We are proud to be a BBB accredited charity!
CFCF meets all 20 Wise Giving Alliance standards for charity accountability established by the Better Business Bureau. Click here to check out the CFCF Wise Giving Report. | |
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CFCF Founder and Carcinoid Survivor Nancy Lindholm Featured in March Issue of SELF Magazine!
 In the March 2010 issue of SELF Magazine, the article "Becoming your own best hope" profiles the lives of three courageous women diagnosed with orphan cancers.
Like many patients diagnosed with rare cancers, these women faced uncertain futures and discouraging prognoses. In the article, Nancy shares details about her journey as a carcinoid cancer patient and her reasons for starting the Caring for Carcinoid Foundation. Click here to read the full story. |
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Managing Carcinoid Cancer Symptoms with Nutrition
 Dana-Farber Cancer Institute (DFCI) has released a set of recommendations for patients living with carcinoid and related neuroendocrine cancers.
In managing the symptoms associated with these cancers, DFCI recommends eating healthy foods high in protein and calories. Click here to view these guidelines and learn more about how to manage carcinoid symptoms with nutrition. |
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Y-90 to Treat Symptomatic Carcinoid Patients
 A new study published in the Journal of Clinical Oncology found Y-90 to be effective in improving symptoms associated with malignant carcinoid among subjects with no treatment alternatives.
The study, " 90Y-Edotreotide for Metastatic Carcinoid Refractory to Octreotide," which enrolled 90 patients, suggests that carcinoid patients that are refractory to octreotide therapy could benefit from Y-90, experiencing reduced symptoms as well as an acceptable adverse event profile. Click here to read the full article. |
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Brief Survey for Carcinoid and Neuroendocrine Tumor Patients
The  Singapore support group, Carcinoid & Neuroendocrine Tumor Society, has created a poll to measure NET misdiagnosis.
The question asked in the poll is simple: "From symptom onset until NET diagnosis, were you misdiagnosed as having IBS, Chrohn's or another gastric disorder?" The poll does not require personal information, asks only a single question and all the data gathered in the poll belongs to the community. To participate in this survey and see responses from your fellow patients, click here. |
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Attention Houston Neuroendocrine Tumor Community!
 The Caring for Carcinoid Foundation is proud to host a Neuroendocrine Tumor Patient Education Conference in Houston, Texas!
The conference will take place on Friday, April 30 at the AT&T Auditorium at MD Anderson Cancer Center. CFCF is dedicated to empowering patients by equipping them with a comprehensive understanding of treatment options so that they can make the best informed decisions regarding their care. In the spirit of empowering patients, CFCF is pleased to bring together our extensive community of patients, loved ones, medical professionals, and supporters for this conference. Topics discussed at the conference will include Surgical Management of Neuroendocrine Tumors, Targeted Therapies for Neuroendocrine Tumors, Current and Upcoming Clinical Trials, Symptom Management, and more! For more information, please visit our website. Note: all attendees must pre-register for the conference. To register, please send your name, address, phone number, and number of guests attending to ashley.malins@caringforcarcinoid.org. |
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