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2010 E-Update Number 1
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In this Issue
Nancy's Blog
CFCF Partners with Navigating Cancer
March for a Cure!
AMG 479 Clinical Trial
Breaking News for Pancreatic Neuroendocrine Tumor Patients
Boston Seminar DVDs
Share Your Survivor Story
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CFCF is pleased to announce that this E-Update is supported by Novartis Pharmaceuticals Corporation
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Survivor Stories
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Bear Dude
Submitted 01/2010
 
CFCF is honored to present Survivor Stories. They reflect remarkable courage and determination. Thank you to our Survivors for sharing their courage and words of hope with other patients.
 
Read our newest survivor stories:
Ralph Bixner, Richard Hendel, John Washkalavitch, Alice Hallett

Join Us for a Cure
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Make a difference and get involved with CFCF!  Unite, meet fellow members of the carcinoid community, and spread awareness at upcoming CFCF events!

CFCF Fundraising Events
Quick Links...
Give hope and a future to  neuroendocrine tumor patients: donate to CFCF where 100% of all individual donations go to carcinoid and related neuroendocrine tumor research. CFCF is a 501(c)(3) organization-all contributions are tax-deductible.  We want our donors to know that we are allocating their donations responsibly and wisely to achieve a carcinoid cure as quickly as possible. 

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To learn more, view CFCF's:
Audited Financial Statements
IRS From 990
Caring for Carcinoid Foundation
198 Tremont Street, Box 456
Boston, MA 02116
617.848.3977
www.caringforcarcinoid.org
CFCF in Action!

Sunflower CFCF is excited to premier a new blog on patient rights and advocacy.
CFCF Partners with Navigating Cancer
The Caring for Carcinoid Foundation is pleased to announce that it has partnered with Navigating Cancer, a new free website to empower cancer patients to take control of their journey. Among its services, Navigating Cancer provides a forum for patients to connect with each other, learn and share from their experiences, ask for help when needed, and keep loved ones updated on their journey. Click here to join Navigating Cancer and click here to check out CFCF's Navigating Cancer page!
March for a Cure on March 27, 2010!
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Join race captain Jan Peine in Houston, TX on March 27, 2010 for the 2010 MD ANderson SCOPE 5k and 1k Fun Run/Walk.
Join Team Caring for Carcinoid in MD Anderson's SCOPE Race on March 27, 2010. Although the race is a fundraiser for colon cancer, Team CFCF will be raising awareness for carcinoid cancer and funds for neuroendocrine tumor (NET) research at MD Anderson. Both colon and carcinoid cancers are treated at MD Anderson in the gastroenterology department; both cancers may be detected through colonoscopies. Click here for details.
AMG 479 Clinical Trial
Doctor-Patient PhotoDana-Farber Cancer Institute launched an interventional phase II clinical trial in November 2009 to determine the objective response rate with AMG 479 in patients with carcinoid and pancreatic neuroendocrine tumors. Evidence from other research studies suggests that AMG 479, a laboratory-made antibody, may help to prevent the growth of some neuroendocrine tumors. For more information on this clinical trial click here.
Radiotherapy for Pancreatic Neuroendocrine Tumor Patients
learnAn article entitled Radiotherapy for Pancreatic Neuroendocrine Tumors was published In the November 2009 issue of the International Journal of Radiation Oncology. Researchers conclude, "Radiation Therapy (RT) is an effective modality for achieving local control in patients with pancreatic neuroendocrine tumors (PNTs). RT produces high rates of symptomatic palliation and freedom from local progression. Prospective trials of radiotherapy for PNTs are warranted." Click here for the full article.
Boston Patient Education Seminar DVDs are In!
If you would like a free copy of the Caring for Carcinoid Foundation Patient Education Conference DVD held in Boston, MA, please send your name and mailing address to: ashley.malins@caringforcarcinoid.org.
Attention All Carcinoid and NET Patients!
Click HERE to share your Survivor Story today. Carcinoid patients from around the world draw inspiration from these accounts. 
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