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2009 E-Update Number 9

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In this Issue
New Expert Interview with Dr Richard Baum
Sunflower Grant Awarded to Heartland Carcinoids
Nancy Lindholm Writes New Blog
Breaking News
Join Us for a Cure!
Survivor Stories
 
Kim Spears
Kimberly Spears
Submitted 9/2009
 
CFCF is honored to present Survivor Stories. They reflect remarkable courage and determination. Thank you to our Survivors for sharing their courage and words of hope with other patients.
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seatle to portland 08

Make a difference and get involved with CFCF!  Unite, meet fellow members of the carcinoid community, and spread awareness at upcoming CFCF events!

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Give hope and a future to  neuroendocrine tumor patients: donate to CFCF where 100% of all individual donations go to carcinoid and related neuroendocrine tumor research. CFCF is a 501(c)(3) organization-all contributions are tax-deductible.  We want our donors to know that we are allocating their donations responsibly and wisely to achieve a carcinoid cure as quickly as possible. 

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Caring for Carcinoid Foundation
198 Tremont Street, Box 456
Boston, MA 02116
617.848.3977
www.caringforcarcinoid.org
New Expert Interview with Dr. Richard Baum
BaumCFCF recently conducted a comprehensive interview with Dr. Richard Baum of Zentralklinic Bad Berka in German. Click HERE to listen to Ben Blackwood's full length interview with Dr. Baum.

Dr. Baum has treated hundreds of neuroendocrine tumor patients with Peptide Receptor Radiotherapy (PRRT). His reputation for providing excellent care to neuroendocrine tumor patients is world-renowned. In this interview, Dr. Baum describes his role at Zentralklinic Bad Berka and provides information about PRRT and the Gallium-68 scan.
Sunflower Grant Awarded to Heartland Carcinoids
CFCF is proud to award a $1200 Sunflower Grant to Heartland Carcinoids
 
As part of CFCF's mission to end the suffering of those affected by carcinoid/related NETS, CFCF issues Sunflower Grants to Support Groups across the country who are instrumental in doing this.  

We are grateful to Molecular Insight Pharmaceuticals for funding all 2009 Sunflower Grants. Click HERE to learn more about applying for a Sunflower Grant.  CFCF is open to all ideas that will support patients!
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Nancy Lindholm Writes New Blog
Nancy LindholmRecently, some patients voiced concerns over the use of  vascular endothelial growth factor (VEGF) pathway inhibitors in treating neuroendocrine tumors. Regarding the use of VEGF inhibitors in patients with neuroendocrine tumors, CFCF supports the statement issued by the 17 members comprising the Neuroendocrine Tumor Task Force. 

Click here to read CFCF Founder and Director, Nancy Lindholm's latest blog where she discusses the Neuroendocrine Tumor Task Force statement.   Nancy is included on the statement as a member of the Neuroendocrine Tumor Task Force.
Breaking News
Author, carcinoid survivor and CFCF Director, Carrie Host, recently submitted a letter to the editor of the New York Times, expressing her reaction to their recent article on palliative care, which featured a carcinoid patient's struggle.
 
Carrie is the author of "Between Me and the River," a candid and uplifting memoir of how she found the strength and fortitude to triumph over a rare form of cancer, and craft a new and meaningful life. 
 
Dear Editor,
 
As a patient with carcinoid tumors, "Months to Live" struck a chord with me, as it touched upon an issue so many of us living with cancer are afraid to look at, the specter of death.
 
That Dr. O´Mahoney and others like him are pursuing the field of palliative care brings great comfort to me as I face the uncertainty of living with an incurable cancer. Death is something most people have the luxury of thinking about "later." But for anyone who has had to have a conversation like the one described in the article, "later" comes sooner, and we need more doctors like Dr. O'Mahoney to help us continue to find meaning in our lives. I applaud him for his ability to courageously hold the lamp for his patients as he helps them make this difficult transition.
 
Carrie Host
Author of Between Me and the River: Living Beyond Cancer
Director, Caring for Carcinoid Foundation
Join Us for a Cure! 
DaveClick here to support Dave Mitchell as he runs the Marine Corps Marathon in loving memory of Joan Murphy.
 
Support Dave and all the members of the Team CFCF-Marine Corps Marathon by visiting CFCF's Marine Corps Marathon page. You can also follow the team captains in action by visiting Stephanie and Megan's blog.