Caring for Carcinoid Foundation Logo
2009 E-Update Number 8

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In this Issue
Attention All Carcinoid and NET Patients
Awareness Weekend Boston September 12th and 13th - RSVP Today!
CFCF in Action
Calling All Volunteers
Survivor Stories
 

Marisa Panicola
Submitted 6/2009
CFCF is honored to present Survivor Stories. They reflect remarkable courage and determination. Thank you to our Survivors for sharing their courage and words of hope with other patients.
 
Read our newest Survivor Stories:
Join Us for a Cure
seatle to portland 08

Make a difference and get involved with CFCF!  Unite, meet fellow members of the carcinoid community, and spread awareness at upcoming CFCF events!

Jimmy Fund Walk
Chicago Marathon
Marine Corps Marathon
Quick Links...
Give hope and a future to  neuroendocrine tumor patients: donate to CFCF where 100% of all individual donations go to carcinoid and related neuroendocrine tumor research. CFCF is a 501(c)(3) organization-all contributions are tax-deductible.  We want our donors to know that we are allocating their donations responsibly and wisely to achieve a carcinoid cure as quickly as possible. 

Donate Now

To learn more, view CFCF's:
Audited Financial Statements
IRS From 990

Caring for Carcinoid Foundation
198 Tremont Street, Box 456
Boston, MA 02116
617.848.3977
www.caringforcarcinoid.org
Attention All Carcinoid and NET Patients!
Breaking News
The Caring for Carcinoid Foundation is pleased to announce an opportunity for patients with carcinoid syndrome and related neuroendocrine tumors (NETS) to take part in a national quality of life survey.  Conducted by Northwestern University and sponsored by Novartis Pharmaceuticals Corporation, the quality of life study will be submitted for publication in medical journals and will help inform newly diagnosed patients about what to expect from a diagnosis of carcinoid and related NETs.  
 
After completing the survey you will have the option of donating your honorarium to carcinoid research and advocacy - Please choose the Caring for Carcinoid Foundation to ensure that 100% of your honorarium goes to cutting-edge research of carcinoid and related NETs.  The Caring for Carcinoid Foundation donates 100% of all individual donations to carcinoid and related NET research.  This is made possible by the generous support of our Board of Directors and Corporate Sponsors.
 
Please click here to learn more about how Quality of Life will be measured and about this survey.  
 
Please click here to take the survey and don't forget to designate your honorarium to the Caring for Carcinoid Foundation.  
 
Please call us with any questions, 617 848 3977.
Awareness Weekend Boston September 12th -13th, RSVP TODAY!
AW LA Nancy"Knowledge is power" Francis Bacon

Are you or someone you know interested in learning more about the latest treatment options for carcinoid/NET patients and the most up-to-date research being conducted in pursuit of a cure? Are you interested in raising funds to find a cure while having fun and meeting your fellow patients? If so, then why not come to CFCF's first Boston Awareness Weekend and RSVP today

CFCF is pleased to host this weekend of events which will include a free Ask the Experts Patient Education Seminar, the first ever Boston Benefit for Carcinoid Research, and the option of participating in the Jimmy Fund Walk.

If you are interested, please call CFCF today at 617-848-3977 or email Ashley for more information!

CFCF would like to thank our co-sponsor, the Network for Patients and Families at the Massachusetts General Hospital Cancer Center, for generously sponsoring this educational event!

All proceeds from this weekend's events will go to finding a cure for carcinoid by supporting CFCF's large-scale genome study of carcinoid
CFCF in Action 
Blackwood Family TriathlonCFCF's Director of Patient Support, Ben Blackwood, has written a new blog.  In his blog he writes about the importance of finding a carcinoid/NET specialist and tips for those who are struggling to do so.



Join Us for a Cure
PMC 2009Congratulations to all Team CFCF's PMC riders on a job well done.

This year, our riders efforts raised over $115,000 (and counting) towards a cure for carcinoid!  Thank you everyone for your hard work, and support. Click here to see pictures from this weekend's event.

Remember! It is not too late to support our riders.  To do so, please visit the PMC's website and make a donation to Team CFCF.

Although it is too late to participate this year, it is the perfect time to begin thinking about next year.  If you are interested, please email events@caringforcarcinoid.org and reserve August 7 and 8, 2010 in your calendar.

This year, our PMC team has appeared in local newspapers and news.  Please click here to read more about team CFCF PMC, and click here to watch how one team member is "blending" for a cure.
 

Calling All Volunteers
partial sunflowerCFCF is looking for volunteers committed to working hard for a great cause. 

We are currently seeking volunteers to assist with our Boston Awareness Weekend. Volunteer slots exist on Wednesday 9/9, Thursday 9/10, Friday 9/11, Saturday 9/12 and Sunday 9/13. 

To join us, please email ashley.malins@caringforcarcinoid.org