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Welcome!
The Caring for Carcinoid Foundation (CFCF) is the only 501(c)(3) nonprofit that directs 100% of all individual donations to research into a cure for carcinoid cancer.
Did you know?
Did you know that on March 28-29 (yes, this March, 2009), CFCF is hosting its first Patient Awareness Weekend in Los Angeles? This weekend provides anyone and everyone the opportunity to walk/run to a cure, to dance with the ones you love, and to learn about the latest treatment options and NET research being conducted.
For more information on this great opportunity to Learn, Dance and Run/Walk, see below or click here.
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Leap Into Life! by Nancy Lindholm O'Hagan
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Nancy Lindholm O'Hagan, metastatic carcinoid patient, and CFCF Founder and President, blogs about 2009 and surviving a 200 foot fall off the Torrey Pines Cliff in La Jolla, CA.
Learn about triumph, courage, and the additional $2 million that CFCF has pledged for a number of new carcinoid/related NET initiatives.
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You Asked, Dr. Coleman Answered. Ask the Doctor Presents Radiolabeled Pharmaceuticals
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 Dr. Edward Coleman, M.D., Professor of Radiology and Director of the Division of Nuclear Medicine at Duke University Medical Center.
Please note, Ask the Doctor is a complimentary, informational service. The information is not intended as and shall not be relied upon as medical advice. Please see CFCF's User Agreement for more information. |
| Awareness Weekend: Run! |
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 Pick your path and your pace at the Great Race of Agoura Hills!
The morning of March 28th, will be your first chance in 2009 to run or walk for a cure with CFCF! Choose from 5 different distances at the Great Race of Agoura Hills: from a fun family walk to a half-marathon through one of California's beautiful National Parks.
Join Dr. Wolin, Nancy O'Hagan, and many others as we walk and run to a cure in Agoura Hills.
To register for this event, visit The Great Race of Agoura Hills website, and then make sure to contact Ben Blackwood so he can add you to Team CFCF!
Also, be sure to join us afterwards for the "Best Post-Race Party" in Los Angeles to celebrate your success. At this party, we will also celebrate the partnership between CFCF and the Mary Terese Hartzheim (MTH) Foundation. Fred Herlitz, Director of the MTH Foundation, will appear in person to present a check to CFCF.
CFCF is proud and honored to partner with the MTH Foundation. Together, we will fund a prestigious $150,000, 2009 American Gastroenterological Foundation, two-year award to attract young investigators to neuroendocrine tumor research.
For more information and to apply for the award, click here.
For more about the MTH Foundation, please click here.
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Awareness Weekend: Dance! |
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 Sunflower Gala: An Evening Under the Stars!
The focus of the Sunflower Gala is fellowship. Join us on the evening of March 28th and enjoy the company of your closest friends, family members, and fellow survivors. There will be live music, food, a silent auction, and dancing. Carrie Host, author, CFCF Director, and carcinoid patient, will be in attendance to discuss and read excerpts from her upcoming book, Between Me and the River. Host's book has been described as "...an intensely intimate journey into the unseen and unspoken aspects of a catastrophic illness."
Harlequin Enterprises, Host's publisher, has generously agreed to provide each person in attendance with a free copy of Between Me and the River.
This is an evening you will not want to miss!
Location: Beverly Hills
Date: March 28th
Time: 6 pm - 9 pm
Cost: $50 per person or $75 per couple
To RSVP, please contact Ben Blackwood.
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Awareness Weekend: Learn!
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 Ask the Experts: Patient Seminar!
This is your chance to ask the experts the questions you want answered. Join your fellow NET patients for a day of question and answer as well as other educational events.
Guest Speakers Include:
Dr Jean Botha: Liver Surgery
Dr George Fisher: Oncology
Dr Greg Fitzke: Surgery
Dr Nirmala Hidalgo: Pain Management
Dr Pamela Kunz: Oncology
Dr Matthew Meyerson: Genomics
Dr Joseph Pisegna: Internal Medicine
Dr Edward Wolin: Oncology
Dr Michael Zaruba: Primary Care
CFCF is pleased to announce that Nancy Lindholm O'Hagan will be moderating this special program for patients to interact with this diverse field of specialists!
Location: Thalians Auditorium, Cedar-Sinai Medical Center
Date: March 29, 2009
Time: 9 am - 3 pm
Cost: Free
Make sure to RSVP and send your questions to Ben Blackwood so we can tailor the discussion to your interests!
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Breaking News for Pancreatic Net Patients
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 CFCF-funded researcher, Dr Matthew Kulke, reports in "Clinical Cancer Research" that MGMT deficiency may correlate with treatment response to temozolomide-based therapy for pancreatic NET patients.
MGMT
is a DNA repair enzyme that is often overexpressed in certain cancers.
In this study, Dr. Kulke and his team report that pancreatic neuroendocrine tumors which were
deficient in MGMT were sensitive to temozolomide-based therapy.
To contact Dr Kulke, please click here.
To read the article from "Clinical Cancer Research" click here.
To learn more about this treatment option, contact CFCF.
CFCF is proud to announce the results of this study since it highlights the strides that CFCF-funded researchers are making to provide patients with personalized medicine. These researchers are identifying each patient's specific characteristics to determine the most effective treatment course.
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More Breaking News for Pancreatic NET Patients
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 Researchers report 6-month progression-free survival rate almost double historical control in a phase II trial of metastatic pancreatic NET patients.
At the 2009 Gastrointestinal Cancer Symposium, researchers announced their findings from "A phase II trial of daily oral RAD001 (everolimus) in patients with metastatic pancreatic neuroendocrine tumors (NETs) after failure of cytotoxic chemotherapy." This two arm study evaluated treatment with RAD001 in metastatic pancreatic NETS both with and without depot octreotide therapy.
Lead author James Yao, MD, Associate Professor at the University of Texas MD Anderson Cancer Center in Houston, writes, "Progression-free survival at 6 months was more than double the rate of
historical controls," and also that "Durable objective
responses and stable disease were observed in both arms of the study."
To contact James Yao, please click here:
To read this abstract and learn more, click here or call CFCF: 857-222-5492.
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CFCF Survivor Stories
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 CFCF is honored to present Survivor Stories. They reflect remarkable courage and determination. Check the Survivor Map on the CFCF website and make sure that you are represented.
Thank you to our Survivors for sharing their courage and words of hope with other patients.
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Put Carcinoid/NET Research on the 111th Congress' Agenda
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Join the Caring for Carcinoid Foundation in support of Research!America.
Research!America, reminds us that a new Congress means new opportunities to increase funding for research to improve health, "President Barack Obama has called for investing in the science, research, and technology that will lead to new medical breakthroughs, new discoveries, and entire new industries." Seize this opportunity to advocate for increased funding for research to improve health.
Take action now and contact your representatives and senators of the 111th Congress and let them know that carcinoid/NET health research must be a priority this session!
The Caring for Carcinoid Foundation has been a proud supporter of Research!America since 2006-the first carcinoid/NET non-profit to partner with them for a better future.
Before you contact your elected officials, be sure to read Lauren Erb's most recent blog to learn how increased funding benefits you and your state's economy!
To contact your congressperson, click here.
To contact you senator, click here.
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Support CFCF Every Time You Search the Internet
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GoodSearch.com is a new Yahoo-powered search engine that donates
half of its advertising revenue, about a penny per search, to the
charities its users designate. Use it just as you would any search
engine, get quality search results from Yahoo, and CFCF reaps the benefits!
To support CFCF simply go to www.goodsearch.com and be sure to enter Caring for Carcinoid Foundation as the charity you want to support.
You can follow the on-screen directions to make it your default search engine.
Start searching and donating today
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Give Hope to a Patient - Give to Research
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100% of all Individual Donations Fund Carcinoid and Related Neuroendocrine Tumor Research
Give hope and a future to carcinoid and neuroendocrine tumor patients: donate to CFCF where 100% of all individual donations go to scientific research of carcinoid and related NETs.
CFCF needs your generous support to make rapid progress towards treatments and a cure.
CFCF is a 501(c)(3) organization-all contributions are tax-deductible.
We want our donors to know that we are allocating their donations responsibly and wisely to achieve a carcinoid cure as fast as possible.
To learn more view CFCF's:
Audited Financial Statements
IRS From 990
Caring for Carcinoid Foundation
198 Tremont Street, Box 456
Boston, MA 02116
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