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Welcome!
The Caring for Carcinoid Foundation (CFCF) is the leading 501(c)(3) nonprofit dedicated to discovering a cure for carcinoid cancer. Did you know?
Did you know that an international group of researchers have recently identified 26 genes that are mutated in lung cancer? According to the lead author, Dr . Matthew Meyerson , of the Broad Institute of MIT and Harvard and an associate professor at the Dana-Farber Cancer Institute, "These genes could soon be new targets for lung cancer treatments."
Let's make this happen for carcinoid cancer!To read more about this exciting discovery and how genomics research can lead to personalized medicine for patients see the full article in US News and World Report.
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| NANCY O'HAGAN WRITES NEW BLOG |
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Nancy O'Hagan, metastatic carcinoid patient, CFCF Founder and President, blogs about (1) CFCF's L.A. Gala and (2) CFCF's Genome Project.
Learn about CFCF's March 28 and 29 Event: join your fellow Californians to Learn, Dance, and Run!
Learn!
On
March 29, CFCF will hold a patient education conference that will be
interactive and discussion-oriented. Bring your questions and increase
your understanding of NETs. CFCF will have leading carcinoid and
pancreatic endocrine experts there to answer your questions.
Dance!
The evening of March 28th, CFCF will host its gala--Dancing Under The Stars with The
Stars! Join us for a fun-filled evening with friends, a silent auction
and live music.
Run!
On March 28, Team CFCF members will pick their path to a cure when they run/walk in the Great Race of Agoura Hills. Join Team CFCF and bring a friend.
Visit the Great Race of Agoura Hills Website
Join us for all or part of this wonderful weekend. RSVP to events@caringforcarcinoid.org and don't forget to include your family and friends. Remember, 100% of all proceeds from the Great Race and gala will go to launching CFCF's Whole Genome Study. Email Nancy. Nancy wants to know what you think about the Genome Project and our Awareness Weekend? |
ASK THE DOCTOR - RADIOLABELED PHARMACEUTICALS
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 On call now through Dec. 22nd:
Dr. Edward Coleman, M.D., Professor of Radiology and Director of the Division of Nuclear Medicine at Duke University Medical Center.
Have you ever had questions about radiopeptide therapy? Well, now is your chance to ask them. Dr. Coleman has spent a long time working with radiolabeled molecules and neuroendocrine tumors. These molecules are used for diagnosis and treatment of many cancers including carcinoid and NETs. Read Dr. Coleman's scientific blog entry and then ask him your questions--for example, what is the difference between Lu-177 and Y-90? What are the pros and cons of these treatments? Read Dr. Coleman's Scientific Blog EntryTo submit your questions for Dr. Coleman, please email: askthedoctor@caringforcarcinoid.org
Please note, Ask the Doctor is a complimentary, informational service. The information is not intended as and shall not be relied upon as medical advice. Please see CFCF's User Agreement for more information. |
| ASK THE DOCTOR - YOUR QUESTIONS ANSWERED |
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 Dr. Daniel Chung answers your questions
Question:
I am seeing a lot of great research on Carcinoid/NETs related to GI track tumors. Is their research working in parallel on non-GI related tumors (lungs, appendix, ovaries, thymic, etc) affecting other Carcinoid and NET patients?
Answer: Yes, there is parallel research going on that examines carcinoid tumors that do not arise from the GI tract. The GI tract is the most common site of carcinoid tumors... however, there are certainly going to be some common themes between GI carcinoids and non-GI carcinoids.
See below for the rest of this answer and answers to all of your submitted nutrition questions.
View Full List of Questions and Answers
Please note, Ask the Doctor is a complimentary, informational service. The information is not intended as and shall not be relied upon as medical advice. Please see CFCF's User Agreement for more information.
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PANCREATIC ENDOCRINE TUMOR PATIENTS
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 Drs. David Metz and Robert Jensen have co-authored an in-depth article on Pancreatic Endocrine Tumors.
At the University of Pennsylvania, Dr. David Metz is a gastroenterologist and Associate Chief, GI Division for Clinical Affairs; Clinical Director,
Hospital of the University of Pennsylvania; Co-Director,
Motility-Physiology Program; and Director, Acid-Peptic Program. Dr. Robert Jensen is the Chief of the Digestive Diseases Branch at the National Institutes of Health.
They write:
"Pancreatic endocrine tumors (PETs) have long fascinated clinicians and investigators because of their unusual and florid symptoms as well as the insights they provide into the actions of gastrointestinal (GI) hormones."
Read the full article in Gastroenterology
Dr. David Metz will answer questions about this article through the end of January.
To submit your questions for Dr. Metz, please email: askthedoctor@caringforcarcinoid.org
Please note, Ask the Doctor is a complimentary, informational service. The information is not intended as and shall not be relied upon as medical advice. Please see CFCF's User Agreement for more information.
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DOES YOUR DIET MATTER?
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 The first prospective study of dietary factors and carcinoid of the small intestine was recently published in Cancer Research.
Researchers from the NCI used questionnaires to track diet in half a million people enrolled in the NIH-AARP Diet & Health Study. Among those tracked in the study, 60 patients were diagnosed with adenocarcinoma and 80 patients were diagnosed with carcinoid tumors of the small intestine.
The authors state, "In our study, there was a clear positive association between saturated fat intake and carcinoid tumors of the small intestine, in addition to a suggestive elevation in risk for adenocarcinoma with polyunsaturated fat intake, but no association for monounsaturated fat."
Read the full article in Cancer Research
From the CFCF Archives:
Listen to Registered Dietitian Suzanne Dixon's Expert Interview on Nutrition for Carcinoid Patients
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TEAM CFCF RAN TO A CURE IN CHICAGO AND WASHINGTON, DC
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 Over $40,000 raised for research into carcinoid and related neuroendocrine tumors! Join Team CFCF!
Team CFCF ran to a cure this October in both Chicago and Washington, DC.
Thank
you to Team CFCF members for your blood, sweat and tears over 26.2 miles! Each person is helping to fund cutting-edge scientific research for carcinoid and
related NET patients.
Lauren Erb, CFCF's Executive Director, was present for each Team CFCF event. Read Lauren's thoughts about 2008 here.
To view photos please visit CFCF's Photo Gallery and chose either Chicago or Marine Corps Marathon:
Visit Team CFCF Photo Gallery
Every dollar CFCF receives will directly fund cutting-edge carcinoid and NET research. Join your fellow teammates! Click below for more information. Visit Team CFCF Website Team CFCF is sponsored by the generous support of Molecular Insight Pharmaceuticals |
JOIN TEAM CFCF IN NORFOLK FOR THE JINGLE BELL WALK!
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 Join Team CFCF's last event of 2008!
Team CFCF proudly announces its first annual Jingle Bell walk. The Jingle Bell Walk will take place at 2pm on December 19th at Norfolk Academy. Help make this a success by joining us or by making a donation here! For more information contact Ben Blackwood.
Team CFCF Motto:
3 C's--Cost effectiveness; Create awareness; Cure!
Do you want to start a Team CFCF for your city?
E-mail us with your idea at events@caringforcarcinoid.org. Golf tournaments, 5K fun runs, half-marathons, silent auctions, and potluck dinners are just some of what Team CFCF has in store for 2008-2009.
Or join existing Team CFCF and swim, bike, run or walk to a cure:
CFCF Fundraising
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SUNFLOWER SQUAD MEMBER & NEUROENDOCRINE CARCINOMA SURVIVOR STEVE MURRAH
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 The Sunflower Squad's Steve Murrah is proving how one person can make a difference!
Steve, a six-year survivor, participated in the Grateful Gobbler Turkey Day 3 Mile Run/Walk. At this time, Steve has raised over $2,100 for the Caring for Carcinoid Foundation, but that number continues to climb. Way to go Steve!
All of the dollars that CFCF receives will go to scientific research into carcinoid and related neuroendocrine tumors.
From all patients and CFCF, THANK YOU TO STEVE AND EVERYONE WHO SUPPORTED HIM! For fun Gobbler Day photos, please click here or click to Steve's blog from his Survivor Story: Steve's Survivor Story
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| CFCF SURVIVOR STORIES |
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CFCF is honored to present Survivor Stories. They reflect remarkable courage and determination. Check the Survivor Map on the CFCF website and make sure that you are represented.
Thank you to our Survivors for sharing their courage and words of hope with other patients.
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SUPPORT CFCF EVERY TIME YOU SEARCH THE INTERNET
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GoodSearch.com is a new Yahoo-powered search engine that donates
half its advertising revenue, about a penny per search, to the
charities its users designate. Use it just as you would any search
engine, get quality search results from Yahoo, and CFCF reaps the benefits!
To support CFCF simply go to www.goodsearch.com and be sure to enter Caring for Carcinoid Foundation as the charity you want to support.
You can follow the on-screen directions to make it your default search engine.
Start searching and donating today
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GIVE HOPE TO A PATIENT--GIVE TO RESEARCH
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 100% of all Individual Donations Fund Carcinoid and Related Neuroendocrine Tumor Research
Give hope and a future to carcinoid and neuroendocrine tumor patients:
donate to CFCF where 100% of all individual donations go to scientific research of carcinoid and related NETs.
CFCF needs your generous support to make rapid progress toward treatments and a cure.
CFCF is a 501(c)(3) organization-all contributions are tax-deductible.
We want our donors to know that we are allocating their donations responsibly and wisely to achieve a carcinoid cure as fast as possible.
To learn more view CFCF's:
Audited Financial Statements
IRS From 990
Caring for Carcinoid Foundation
One Kendall Square, PMB 180
Cambridge, MA 02139
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