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Welcome!
The Caring for Carcinoid Foundation (CFCF) is the leading 501(c)(3) nonprofit dedicated to discovering a cure for carcinoid cancer. Did you know?
Did you know that the incidence and prevalence of gastroenteropancreatic neuroendocrine tumors have been increasing faster than other cancers in the U.S.? - Bronchial carcinoids are on the rise.
- Diagnosis in African Americans has increased sharply.
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| NANCY O'HAGAN WRITES NEW BLOG |
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Nancy O'Hagan, metastatic carcinoid patient, CFCF Founder and President, blogs about (1) clinical trials and (2) the latest Carcinoid and NET Scientific Conference jointly sponsored by the Raymond and Beverly Sackler Foundation and the Caring for Carcinoid Foundation.
Please e-mail Nancy about your clinical trial experience. What should have been done differently? Did you receive proper care?
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DR. DANIEL CHUNG DISCUSSES A NEW CARCINOID- RELATED DISCOVERY
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| Discovery about the role of HoxC6 may lead to new treaments.
 Dr. Daniel Chung is a funded CFCF scientist and Clinical Director of the Gastrointestinal Cancer Genetics Department at Massachusetts General Hospital.
Dr. Chung blogs about his discovery (published in Gastroentereology and linked below) that a protein (HoxC6) is dramatically overexpressed in GI carcinoids, but is at normal levels in normal tissues-implying that this protein and its corresponding Hox gene have a role in tumor formation.
Dr. Chung's research implies that new targets exist for treatment. Translational discovery now becomes critically important.
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ASK THE DOCTOR - GI CANCER GENETICS
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 Dr. Daniel Chung Gives You Answers
Dr. Chung, CFCF-funded scientist and Clinical Director of the Gastrointestinal Cancer Genetics Department at Massachusetts General Hospital is on-call through October 31st.
Ask Dr. Chung about:
- His publication or blog described above and what it means for patients;
- GI cancer genetics; or
- the September 2007 NCI NET Conference. Dr. Chung helped to co-author the publication summarizing this conference, which CFCF and other non-profits and companies helped to sponsor. For this publication-see below (Priorities For Improving the Managment of Gastroenteropancreatic Neuroendocrine Tumors).
To submit your questions for Dr Chung, please email: askthedoctor@caringforcarcinoid.org
Please note, Ask the Doctor is a complimentary, informational service. The information is not intended as and shall not be relied upon as medical advice. Please see CFCF's User Agreement for more information. |
| ASK THE DOCTOR - YOUR QUESTIONS ANSWERED |
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 Suzanne Dixon answers your nutrition questions
Question:
Is sugar-corn syrup, white sugar, etc-harmful to cancer patients? That is, does it cause tumors to grow? A lot of people say this. I love desserts, so I'd like to know if I need to reduce my daily sugar consumption or if sugar is fine in moderation.
Answer:
This is a great question and I get asked this often. Unfortunately, the facts about sugar and cancer can be confusing and often are presented in a way that is misleading and anxiety- producing for people with cancer...
See below for the rest of this answer and answers to all of your submitted nutrition questions.
View Full List of Questions and Answers
Please note, Ask the Doctor is a complimentary, informational service. The information is not intended as
and shall not be relied upon as medical advice. Please see CFCF's User Agreement for more information.
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PRIORITIES FOR IMPROVING THE MANAGEMENT OF GASTROENTEROPANCREATIC NEUROENDOCRINE TUMORS
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 Recently published in the Journal of National Cancer Institute are the September 2007 NCI NET Scientific Conference results.
A National Cancer Institute summit meeting on gastroenteropancreatic neuroendocrine and carcinoid tumors was held in September 2007 to present the currently accepted standards of care for patients with these tumors and to identify areas requiring investigation and development.
The authors identify "[t]he most pressing needs were public and physician education, identification of molecular markers for early diagnosis and therapeutic monitoring, improved imaging modalities and molecular prognostication, development of a standardized pathological classification system, and creation of regional centers of expertise with tumor and laboratory data banks. In addition, adequately validated neuroendocrine tumor models and cell lines should be established to investigate the molecular mechanisms involved in the control of their growth and secretion, and to facilitate the development of specific therapies that should be examined in well-designed multicenter studies of defined patient groups."
Read the full article in Journal of National Cancer Institute
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PANCREATIC TUMOR PATIENTS:
RAD001 IN PHASE III TRIALS
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 New data show that
combination treatment with RAD001 (everolimus) and Sandostatin LAR(R) Depot
(octreotide acetate for injectable suspension) and
RAD001 given alone control
tumor growth in patients with pancreatic neuroendocrine tumors.
In the RADIANT-1 (RAD001 in Advanced Neuroendocrine Tumors) trial, patients with pancreatic NET who became resistant to
chemotherapy were given either daily RAD001 combined with monthly Sandostatin
LAR Depot or daily RAD001 alone. The results showed that 82% of patients
receiving combination therapy and 77% receiving monotherapy had tumors that
either decreased in size or remained stable.
Two Phase III trials investigating the use of RAD001 and Sandostatin LAR
Depot are underway in patients with pancreatic NET and carcinoid tumors. The
endpoints will be progression-free survival and overall survival. These results were presented at the 33rd European Society for Medical Oncology (ESMO) Congress in Stockholm, Sweden. For more information see below: New data on RAD001Please ask your doctor for more information. Note that this information is not intended as and shall not be relied upon as medical advice. Please see CFCF's User Agreement for more information.
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RUN TO A CURE WITH TEAM CFCF!
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 Support Team CFCF's runners in Washington, D.C. (Oct. 26, 2008)
Do you live in Washington D.C.? Join us and cheer on the runners-look for the blue and yellow singlets!
Support Team CFCF:
Team CFCF Marine Corps Marathon
Thanks Team CFCF Chicago for a great race and a fun weekend in the windy city. Stay-tuned to the next E-Update for photos and results from this past weekend's Chicago Marathon. So far Team CFCF Chicago has raised over $40,000 for a cure!
Team CFCF Motto:
3 C's--Cost effectiveness; Create awareness; Cure!
Thank you to Team CFCF for your blood, sweat and tears over 26.2 miles. Each of you is funding cutting-edge scientific research for carcinoid and related NET patients.
Do you want to start a Team CFCF for your city?
E-mail us with your idea at events@caringforcarcinoid.org. Golf tournaments, 5K fun runs, half-marathons, silent auctions, and potluck dinners are just some of what Team CFCF has in store for 2008-2009.
Or join existing Team CFCF and swim, bike, run or walk to a cure:
CFCF Fundraising
To view photos please visit CFCF's Photo Gallery and then click on the appropriate link:
CFCF Photo Gallery
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TEAM CFCF-BOSTON WALKED TO A CURE
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 September 21, 2008 Boston Marathon Jimmy Fund Walk
Team CFCF-Boston walked to a cure on September 21, 2008.
Our team raised $15,000 for research and raised awareness for carcinoid and neuroendocrine tumors.
These CFCF walkers then joined CFCF bikers at a potluck dinner hosted by Anne Doyle and her family. Together this group cheered their success in raising over $300,000 for carcinoid/NET research.
The Boston Marathon Jimmy Fund Walk gives participants the opportunity to follow the course of the 26.2-mile Boston Marathon in honor or memory of friends, family, co-workers, and patients facing all forms of cancer. Every dollar raised will directly fund cutting-edge carcinoid and NET research. Walk to a cure! Put it on your calendar for next fall.Visit Team CFCF Page Team CFCF is sponsored by the generous support of Molecular Insight Pharmaceuticals |
| CFCF SURVIVOR STORIES |
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CFCF is honored to present Survivor Stories. They reflect remarkable courage and determination. Check the Survivor Map on the CFCF website and make sure that you are represented.
Thank you to our Survivors for sharing their courage and words of hope with other patients.
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TWO CFCF-SPONSORED PATIENT SUPPORT CONFERENCES
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 In September, CFCF supported two patient conferences through it's Sunflower Grant Program.
On September 20, the SEA4 Carcinoid Support Group held an informative conference on carcinoid and NETs. Included in the program were presentations from esteemed clinicians on the basics of carcinoid treatment and diagnosis, the importance of a "team" approach to care, management of liver metastasis, new therapeutic options, new clinical trials and wellness.
On September 26, the New England Carcinoid Connection held it's regional conference for carcinoid and neuroendocrine tumor patients. This conference drew many esteemed clinicians whose presentations included information on: angiogenesis & angiogenesis inhibitors, liver-directed therapies, as well as new treatments and clinical trials for NET patients.
CFCF proudly supported these conferences because CFCF believes strongly in educating and empowering patients. CFCF is grateful to the many patients, physicians and volunteers who made these conferences available to patients.
For more information on these support groups and conferences pleas see the link below:
CFCF Sunflower Grants
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SUPPORT CFCF EVERY TIME YOU SEARCH THE INTERNET
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GoodSearch.com is a new Yahoo-powered search engine that donates
half its advertising revenue, about a penny per search, to the
charities its users designate. Use it just as you would any search
engine, get quality search results from Yahoo, and CFCF reaps the benefits!
To support CFCF simply go to www.goodsearch.com and be sure to enter Caring for Carcinoid Foundation as the charity you want to support.
You can follow the on-screen directions to make it your default search engine.
Start searching today
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GIVE HOPE TO A PATIENT--GIVE TO RESEARCH
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100% of all Individual Donations Fund Carcinoid and Related Neuroendocrine Tumor Research
Give hope and a future to carcinoid and neuroendocrine tumor patients: donate to CFCF where 100% of all individual donations go to scientific research of carcinoid and related NETs.
CFCF needs your generous support to make rapid progress toward treatments and a cure.
CFCF is a 501(c)(3) organization-all contributions are tax-deductible.
We want our donors to know that we are allocating their donations responsibly and wisely to achieve a carcinoid cure as fast as possible.
To learn more view CFCF's:
Audited Financial Statements
IRS From 990
Caring for Carcinoid Foundation
One Kendall Square, PMB 180
Cambridge, MA 02139
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