|
|
Welcome!
The Caring for Carcinoid Foundation (CFCF) is the leading 501(c)(3) nonprofit dedicated to discovering a cure for carcinoid cancer.
|
| NANCY O'HAGAN WRITES NEW BLOG |
|
Nancy O'Hagan, metastatic carcinoid patient, CFCF Founder and President, blogs about ground-breaking surgery for a carcinoid patient, Ask the Doctor segments, and exciting opportunities for patients to collaborate, receive expert advice and work together to achieve our common goal of a cure.
|
| DR. LEE ELLIS WRITES SCIENTIFIC BLOG ENTRY |
|
| Why are Cell Lines Crucial for Developing Drugs for Patients?
 Dr. Lee Ellis, M.D., of MD Anderson Cancer Center and CFCF's Board of Scientific Advisors writes a new scientifc blog titled, "New Cell Lines and Potential Therapy Targets." Dr. Ellis explains why cell lines are critical for developing new therapeutic approaches.
|
| CFCF-FUNDED RESEARCHER STUDIES EFFECTS OF SUNITINIB IN NEUROENDOCRINE TUMOR PATIENTS |
|
 Dr. Matthew Kulke reports results published in "The Journal of Clincal Oncology."
PET patients: sunitinib is associated with objective tumor responses.
Carcinoid AND PET patients: sunitinib was associated with preserved quality of life.
Ask YOUR doctor.
Sunitinib malate is an oral tyrosine kinase inhibitor that inhibits the
VEGF pathway. In this study sunitinib was evaluated in a phase II
open-label study to assess the safety and efficacy of sunitinib in
patients with advanced neuroendocrine tumors.
The authors summarize the results as follows: "This multicenter, phase II study demonstrated that sunitinib is associated with antitumor activity in patients with advanced neuroendocrine tumors. The ORR was greater in patients with pancreatic neuroendocrine tumors (16.7%) than in patients with carcinoid tumors (2.4%) In both patient populations, administration of sunitinib was associated with preserved quality of life. Our observation that sunitinib seems to be more active in pancreatic neuroendocrine tumors than in carcinoid tumors mirrors similar observations with more cytotoxic agents."
Read the full article in Journal of Clinical Oncology
|
| ASK THE DOCTOR - YOUR QUESTIONS ANSWERED |
|
 Dr. Matthew Kulke Gives You Answers
Dr. Kulke provides answers to the questions that matter most to you.
Question:
Once a carcinoid tumor has been found and removed, are you at an increased risk for developing additional carcinoid tumors? For instance, if a rectal carcinoid was found, are you at risk of developing one in your small bowel or stomach?
Answer:
It would be very unusual to develop a second primary carcinoid tumor. There are some studies suggesting that carcinoid tumor patients may have a slightly greater risk of developing other malignancies like colon or breast cancer. Often, when one cancer is diagnosed, patients and their physicians stop screening for other cancers. Carcinoid patients who are otherwise healthy should generally continue normal screening procedures (e.g mammogram and colonoscopy).
|
ASK THE DOCTOR ABOUT NUTRITION
|
|
ON CALL this week is Suzanne Dixon, M.P.H., M.S., R.D., a nationally renowned dietition, nutrition expert, and founder of www.caring4cancer.com
First listen to Suzanne Dixon's Expert Interview on Nutrition for Carcinoid/NET Patients:
Nutrition for NET patients
Then, to submit your nutrition questions, please email:
Responses to the most frequently asked questions will be in the next E-Update. Unfortunately, E-mails that ask for medical advice about an individual's personal medical situation cannot be answered. Please see CFCF's User Agreement for more information. |
TEAM CFCF RAISED OVER $200,000 FOR CARCINOID AND RELATED NET RESEARCH THIS SUMMER!
|
|
 Team CFCF beats the heat in events across the nation.
This summer, Team CFCF successfully completed the Pan Mass Challenge, Seattle to Portland Bike Ride and the Swim Across America Boston Harbor Swim. Thank you to all the participants and supporters who came out!
Thanks to our enthuiastic particpants and generous sponsors Team CFCF raised over $200,000 this summer! As always, 100% of all donations fund cutting-edge research.
Join Team CFCF and swim, bike, run or walk to a cure:
CFCF Fundraising
To view photos please visit CFCF's Photo Gallery and then click on the appropriate link:
CFCF Photo Gallery
Please see below for details on how to join Team CFCF and walk to a cure this fall!
|
WALK TO A CURE WITH TEAM CFCF!
|
|
 September 21, 2008 Boston Marathon Jimmy Fund Walk
Walk to help a carcinoid/NET patient!
Join Team CFCF to raise money for carcinoid and NET research.
The Boston Marathon Jimmy Fund Walk gives participants the opportunity to follow the course of the 26.2-mile Boston Marathon in honor or memory of friends, family, co-workers, and patients facing all forms of cancer.
Every dollar raised will directly fund cutting-edge carcinoid and NET research. Walk to a cure!
|
CARCINOID/NET IN THE NEWS!
|
|
Some truly inspirational stories
from this year's Pan-Mass Challenge
Taking It In His Stride
Craig Berkson, diagnosed with a fist-sized carcinoid in
2004, observes, "It's funny: I'm in the best shape of my life right now." The
42 year old from Framingham
lives a life full of optimism, hope and lots of cycling. Although he underwent
more than 12 hours of surgery to remove the tumor and had to spend a month
recovering in hospital, he now works full time and also cycles as much as 120 miles
per week to prepare for his 153-mile PMC route. "I want to live my life. I want
to try to find a cure for this thing", Berkson says.
Beating the Odds
When diagnosed with carcinoid cancer, Lisa Paiva faced 90 percent
odds that the cancer would be terminal. Now, seven years later, the 35 year-old Bedford resident prepares for her second Pan-Massachusetts challenge. "Riding a bike has been a major stress reliever
for me. Hopefully it is only a matter of time until they find a cure for
carcinoid cancer. Since my diagnosis, I have never taken a single second of my
life for granted. Every day is a gift," Paiva says.
Sunflower Jerseys Getting Media Attention Coast to Coast
PMC rider, Jeff Levin-Scherz, is featured in a video displaying his colorful CFCF jersey:
Jeff Levin-Scherz, Pedal Power Video
PMC rider, CFCF Director and TripAdvisor President and CEO, Stephen Kaufer, is featured in a YouTube video:
Stephen Kaufer, TripAdvisor Google Maps API Video
Join your fellow patients and supporters! Contact your local media or hometown paper and raise awareness of carcinoid and related neuroendocrine tumors!
|
| CFCF SURVIVOR STORIES |
|
| CFCF is honored to present Survivor Stories. They reflect remarkable courage and determination.
Read our newest Survivor Stories:
|
NEW NORTHERN CALIFORNIA SUPPORT GROUP
|
|
 This new support group aims to provide increased awareness,
education and support for those living with, affected by, or interested in
carcinoid cancer.
Meeting Details
When:
First Saturday of each month 1:00 - 4:00
Where:
Kaiser
Permanente Medical
Center
Medical
Office Building
3rd Floor, Classroom 1
1600 Eureka
Road,
Roseville,
CA 956661
For more informaiton please contact Toni:
(916) 789-9199 or
thussain@wefit2u.com
|
| SHOP LOCALLY AND SHARE LOCALLY THROUGH THE BOSTON COMMUNITY CHANGE PROGRAM |
|
 Support CFCF while supporting local businesses!
By signing up for the FREE Boston Community Change Card, you can help fund carcinoid/NET research. When you shop at participating businesses, a portion of each transaction is returned to you as a cash rebate and a portion is directed to a non-profit or school of your choice, encouraging you to SHOP LOCALLY and SHARE LOCALLY.
Instructions
The cardholder process:
1. Apply for FREE Boston Community Change Card (need email and postal address)
2. Show the card when you make qualified purchases
3. Pay in any form you choses
5. Receive a monthly cash reward reimbursement through mail or direct deposit
|
CFCF FUNDRAISING
|
|
100% of Funds for Carcinoid and Related Neuroendocrine Tumor Research
CFCF needs your generous donations to make rapid progress toward curing carcinoid.
CFCF is a 501(c)(3) organization, so all donations are fully tax-deductible.
100% of donations go to cutting-edge research.
Donate to CFCF
|
|
|
|
|
