|
|
Welcome!
The Caring for Carcinoid Foundation (CFCF) is the leading 501(c)(3) nonprofit dedicated to discovering a cure for carcinoid cancer.
|
| NANCY O'HAGAN WRITES NEW BLOG |
|
Nancy O'Hagan, CFCF Founder and President, introduces CFCF's new Executive Director and upcoming events.
"I'm so pleased to introduce Lauren Erb, the new Executive Director of the Caring for Carcinoid Foundation."
|
| DR. SEUNG K. KIM WRITES SCIENTIFIC BLOG ENTRY |
|
 CFCF presents scientific updates to patients.
Dr. Seung K. Kim, M.D., Ph.D., an Associate Professor at Stanford University, was recently selected as one of the 2008 Howard Hughes Medical Institute (HHMI) investigators. To read about Dr. Kim's appointment go to:
Dr. Kim writes a new scientific blog discussing his progress in developing a mouse 'model' of carcinoid, which "if successful, could lead to better understanding about the molecular and cellular changes that lead to formation of carcinoid tumors, and to better ways of testing and discovering new therapies for carcinoid."
Read Dr. Kim's blog |
| CFCF-FUNDED RESEARCHERS STUDY CHROMOSOMAL ABNORMALITIES IN PRIMARY AND METASTATIC SMALL BOWEL CARCINOID TUMORS |
|
 Dr. Matthew Kulke and Dr. Ramesh Shivdasani report results published in the peer reviewed scientific journal, "Genes, Chromosomes, and Cancer."
The authors state:
"In summary, focal deletions and high-level amplifications, as reported in other malignancies, appear to be rare in small bowel carcinoid tumors; regional amplifications that occur in the region of the antiapoptotic gene DAD1 and the G protein-coupled odorant receptor gene OR4A5 on chromosome arm 11p warrant further investigation. Instead, ileal carcinoid tumors carry large regions of genetic loss or modest gain in both primary and metastatic lesions, suggesting that such changes occur relatively early in carcinoid pathogenesis and that modest gains in CN may have a strong impact on cell behavior in this disease. "
|
| STILL ACCEPTING QUESTIONS FOR ASK THE DOCTOR |
|
 Please stay tuned to CFCF's next E-update for Dr. Kulke's responses to your questions.
Do you have questions about science or clinical treatment? Ask the Doctor! Dr. Kulke is on-call.
Dr. Kulke is still accepting questions through July 11, 2008.
Dr. Matthew Kulke of the Dana Farber Cancer Institute and co-Chairman of CFCF's Board of Scientific Advisors recently highlighted progress in the field of neuroendocrine tumor research.
Responses to the most frequently asked questions will be in the next E-Update. Unfortunately, E-mails that ask for medical advice about an individual's personal medical situation cannot be answered. Please see CFCF's User Agreement for more information |
| JOIN TEAM CFCF IN THE MARINE CORPS MARATHON |
|
 October 26, 2008 Marine Corps Marathon
Join Team CFCF to raise money for carcinoid and NET research.
CFCF still has 20 spots remaining in the The Marine Corps Marathon. Only 3 weeks left to join. Please invite your friends and family to join Team CFCF and run to a cure!
CFCF is honored to dedicate its first Marine Corps Marathon to the memory of Susan Elizabeth Brice.
Every dollar raised will directly fund cutting-edge carcinoid and NET research. Run to a cure!To register please go to: CFCF MCM Registration
|
DONATE TO DR. KULKE IN HIS TEAM CFCF SWIM
|
|
 July 11, 2008 Boston Harbor Island Swim
Is Dr. Kulke your physician? Root for him and support Team CFCF in the Swim Across America Boston Harbor Swim.
Swim Across America is a national organization dedicated to raising money and awareness for cancer research, prevention and treatment through swimming- related events. Starting from Rowes Wharf in Boston, Team CFCF will swim TWENTY TWO miles through open water.
Team CFCF has a $5K matching pledge. We have raised $4 K-help us reach the 5 K maximum and take full advantage of the pledge. Let's double our money!! Only ONE THOUSAND to go!
To support Dr. Kulke and Team CFCF without getting into the water please go to:
Team CFCF page
Every dollar raised by Dr. Kulke and Team CFCF will directly fund cutting-edge carcinoid and NET research.
Team CFCF is sponsored by the generous support of Molecular Insight Pharmaceuticals.
|
| JOIN TEAM CFCF IN THE 2008 RUN FOR HOPE |
|
 July 26, 2008 Run For Hope
Join Team CFCF to raise money for carcinoid and NET research.
CFCF proudly supports the annual Run for Hope hosted by Jeanne Lambert.
Jeanne has dedicated this year's event to Lee Curtis who died of carcinoid cancer on Aug 21, 2007. Jeanne's dedication is as follows:
"The 2008 Run for Hope 5K is dedicated in honor and memory of Lee Curtis (our #1 registrant from our first 5K, committee member, brother, husband and friend to all). Lee was unable to attend this past race due to his end of life struggle with carcinoid cancer. Pictured above are Lee and I the afternoon of the 5K event, August 11th, 2007. It was clear to me our earthly hellos and goodbyes were imminent. Needless to say, that afternoon was a difficult and tearful time - not just that day, but for the next ten days when it was time to say our forever goodbye. Lee died of complications from carcinoid cancer on August 21st, 2007. The good news is, one blessed day, we will say hello again and he will be so proud of all for our continual effort as each 5K event will be equal to a pebble thrown into the ocean and finally a wave will result...then as with HOPE comes REALITY, Cancer will be NO MORE! It will not have been in vain but truly a completed "RUN for HOPE"!"
To register please go to:
|
| JOIN TEAM CFCF IN THE CHICAGO DISTANCE CLASSIC |
|
 August 10, 2008 Chicago Distance Classic
Join Team CFCF to raise money for carcinoid and NET research.
The Chicago Distance Classic will be a training run for the Chicago Marathon Team. Please invite your friends and family to join Team CFCF and run or walk to a cure!
Every dollar raised will directly fund cutting-edge carcinoid and NET research. Run or walk to a cure!
Team CFCF is sponsored by the generous support of Molecular Insight Pharmaceuticals.
|
JOIN TEAM CFCF IN THE JIMMY FUND WALK
|
|
 September 21, 2008 Boston Marathon Jimmy Fund Walk
Join Team CFCF to raise money for carcinoid and NET research.
The Boston Marathon Jimmy Fund Walk gives participants the opportunity to follow the course of the 26.2-mile Boston Marathon in honor or memory of friends, family, co-workers, and patients facing all forms of cancer.
Every dollar raised will directly fund cutting-edge carcinoid and NET research. Walk to a cure!
|
| CFCF SURVIVOR STORIES |
|
 CFCF is honored to present Survivor Stories. They reflect remarkable courage and determination.
Read our newest Survivor Stories:
|
RUTH GERDES SHARES HER STORY
|
|
 Ruth Gerdes, member of CFCF's Board of Patient Advisors, shares her story of partnering with her physicians.
"There's nothing wrong with Ruth Gerdes' hearing. But when an oncologist in Lincoln told her the carcinoid tumors in her liver were inoperable and that she had no hope for a cure, she refused to listen..."
Read Ruth's story
Stay tuned for more updates on Ruth as she continues to share her story to promote awareness of carcinoid and the need for research. The Board of Patient Advisors provides CFCF with advice about how to support patients and partner in the fight against carcinoid. Visit CFCF's Board of Patient Advisors page |
CFCF PROUDLY AWARDS SUNFLOWER GRANTS TO TWO PATIENT SUPPORT GROUPS
|
|
CFCF is impressed by the hard work and exceptional Sunflower Grant applications of the SEA4 Carcinoid Support Group and the New England Carcinoid Connection. CFCF has awarded a 2008 Sunflower Grant of $2,500 to SEA4 and $20 per attendee to the New England Carcinoid Connection for its Regional Conference.
For more information about CFCF's Sunflower Grant Awards please click here. CFCF believes strongly in supporting patients and achieving a cure-- its mission since inception. Let's unite together!
New England Carcinoid Connection Regional Conference
The New England Carcinoid Connection (NECC) and
An ita O'Brien are bringing carcinoid and neuroendocrine specialists to Randolph, MA on September 26, 2008!
CFCF is subsidizing the ticket price by $20 per attendee. For more information on the conference, please visit NECC's website:
New England Carcinoid Connection
SEA4 West Coast Conference
SEA4 and Nickolette Way are bringing carcinoid and neuroendocrine specialists to Los Angeles, CA on September 20, 2008!
For more information on the conference, please visit SEA4's website:
SEA4 Carcinoid
Do you live in or near these areas? Make sure you mark these conferences on your calendar- they will be terrific opportunities to meet fellow patients and hear from carcinoid/related NET experts.
|
NEW INDIANA PATIENT SUPPORT GROUP
|
|
 Indiana Carcinoid Awareness Network Kick-Off Meeting July 19, 2008
The Indy Carcinoid Awareness Network (ICAN) is Indiana's first and only carcinoid support group; established to support those living with carcinoid cancer and neuroendocrine tumors in the Central Indiana region.
Carcinoid cancer fighter Kari Jones will host the first meeting of ICAN on July 19, 2008. For more information, please visit ICAN's website:
Indy Carcinoid Awareness Network
CFCF congratulates Kari Jones and her hard work!
To learn more about Kari please visit her survivor story:
Kari Jones' Survivor Story
|
| SUNFLOWER SQUAD |
|
|
 Join Now!
Sunflower Squad is CFCF's team of committed fundraisers who work hard to cure carcinoid. CFCF is grateful for their dedication!
Fundraising is fun and easy, and it takes less than 10 minutes to start. There are so many exciting ways to fundraise. For example:
- Host a mini-golf or bowling tournament
- Walk, run, bike, or swim
- Create artwork
- Write to friends and families
Visit our team members' sites for inspiration:
Every dollar will directly fund cutting-edge carcinoid research.
| |
|
|
|
