Canadian Immunodeficiency Society NewsletterDecember 2010
In This Issue
Canada Israel Immunodeficiency Research Alliance
Take Action for the Kids Auction
Jeffrey Modell Canadian Immunodeficiency Network Update
CSL Behring recongized
Monthly Giving Program
Caring Companies


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Greetings!

As 2010 comes to a close, we wish to thank you for supporting the CI Society and our efforts to raise awareness of Primary Immunodeficiency Disease in Canada, improve treatments for patients and fund research into a cure. We are proud of our accomplishments made possible by the generous support of sponsors, donors, volunteers, and the hard work of staff and healthcare professionals. Read about some of our accomplishment in this newsletter.

If you have not made your 2010 contribution, there is still time. We process 2010 donations for tax purposes up to mid-January. Click here for a donor form which can be faxed or mailed in. Donation form 

Online donations can also be made at Donate now. Your support will ensure we continue to provide quality programs and services.

Thank you.
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CI Society Centers of Excellence

Canada Israel Immunodeficiency Research Alliance, Toronto Hospital for Sick Children & E. Wolfson Medical Centre, IsraelIsrael plaque presentation

 

Dr. Chaim Roifman, Chair, CI Society is joined by Dr. Ilan Dalal, Head of Pediatric Emergecy Unit and Dr. Yitzhak Berlovitz, Director Edith Wolfson Medical Center for the unveiling of the Canada Israel Immunodeficiency Research Alliance plaque at the entrance to the pediatric ward. The CI Society is honoured to have the support of Talecris Biotherapeutic in building international collaborations for research in Primary Immunodeficiency Disease. Dr. Dalal's research is focused in the area of Pediatric Immunodeficiency.

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Take Action Logo

On November 15th the CI Society launched its first annual "Take Action For the Kids Auction" on Ebay Canada. The auction will run nationally until February 2011. Every 10 days the lots of items change. In January the auction will focus on health and fitness with a selection of items ranging from yoga clothing to areboic classes. Please visit Online Auction to view current lots of items. We extend a special thank you to our generous sponsors.


For more information contact Shelley Maynard, Sponsorship and Event Officer for the CI Society, at smaynard@cisociety.com.
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Jeffrey Modell Canadian Immunodeficiency Network Update

by Linda Pires

The Jeffrey Modell Canadian Immunodeficiency Network serves as a highly respected healthcare resource across Canada fostering early diagnosis of Primary Immune Deficiencies. Through networking, knowledge dissemination and communication among healthcare professionals, patients and the general public, the Network can ensure that patients have access to excellent care.

 

Great Grants on the Go

The Network continues to support its community in the educational and diagnostic developments of PID. Dr. Anne Des Roches of Sainte Justine  Hospital was recently awarded a seminar series grant to aid in the training of her fellows in both basic and applied immunology/immunodeficiency. To further aid in fellow training, June 2010 marked the JMCIN's third national distribution across Canada to trainees in Immunology--Dr. Chaim Roifman's edition of Immunology & Allergy Clinics of North America Part 2. This second book on hematopoietic stem cell transplantation will facilitate the education of Canadian fellows on best practices for transplantation in PID. Our desire to educate does not end with our fellows. The JMCIN strives to reach out to all physicians and patients.  The CI Society's What is PID webpage is now in its production phase. This tool will aid patients and physicians in understanding how the immune system works, what is a PID, and how it is diagnosed and treated in Canada.  If you have an educational or diagnostic project to better the lives of patients with PID, submit a grant request by visiting Grant Application to download an application.  

 

Lights, Camera, Action on Primary Immunodeficiency Video Conference Rounds

With great success since its inception, this highly valuable medium continues to faciliate discussions of difficult cases with expert physicians across the country and better care for patients. Immunologists across Canada at JMCIN sites rotate hosting video presentations in which two complex cases are presented by trainees and discussed. Accredited by the Royal College of Physicians and Surgeons of Ontario for 1.5 hours per seminar, attendance has been spectacular. Participation continues to be accessible through telemedicine network sites and webcasting. Site participation increased to 11 national sites from 7 sites in 2008, ensuring physicians in remote areas can listen in to our JMCIN Canadian experts and enhance their own personal knowledge on PID patients. With permission, case studies continue to be archived on the CI Society Physicians Only Webpage. 

  

Join The CI Society as an Affiliated Member 

The JMCIN is pleased to announce the expansion of our membership to Affiliated Members. If you are a physician who does not specialize in Immunology but finds a growing need for it in your practice, join the JMCIN today. Your membership will provide you with the opportunity to participate in all JMCIN educational events, along with direct access to all 10 Network sites for expert guidance with you patients. These sites include:

 

Dr. Stuart Carr - Capital Health, Edmonton
Dr. Tom Issekutz - IWK Health Centre, Halifax

Dr. Peter Dent - Hamilton Health Science Centre
Dr. Reza Alizadehfar - Montreal Children's Hospital
Dr. Elie Haddad - CHU Sainte-Justine, Montreal
Dr. Aubert Lavoie - H˘pital CHUQ-CHUL, Quebec City
Dr. Adelle Atkinson - Toronto Hospital for Sick Children
Dr. Amin Kanani - St. Paul's Hospital, University of B.C.
Dr. Stuart Turvey - BC Children's Hospital

Dr. Chrystyna Kalicinsky - Winnipeg Health Science Centre

 

If you are a physician treating Primary Immunodeficiency Disease patients, please indicate your interest to join the network.

 

For all Network enquires, please contact Linda Pires, Manager, JMF Network of Centres at network@cisociety.com.

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CSL Behring presentationCSL Behring recognized as a Benefactor Sponsor of the CI Society

On July 29, 2010, Richard Thompson, Executive Director of the CI Society, presented a plaque to CSL Behring for their 2010 support recognizing them as a Benefactor Sponsor of the CI Society. Mr. Thompson noted "We are very appreciative of CSL Behring's continued support over the years".

Pictured here in a cheque presentation, from left, Richard Thompson, Executive Director and Dr. Chaim Roifman, Chair of the CI Society, Lynn Powell, Senior VP North American Commercial Operations, Joe Farago, Director Sales and Marketing Canada and Brian McMaster, Product Manager, CSL Behring.

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Start 2011 by joining the Monthly Giving Program

 

Monthly giving allows you to make your charitable donation without having toGirl thank you worry about forms, stamps, envelopes or forgetting to give before year-end. When you sign up, each month the amount you chose is charged to your credit card. At the end of the year you receive a tax receipt for your total contributions. You can sign up here at Yes I want to join!  or online through our donation button for Canada Helps.  You may direct 100% of your donation to the Alastair Fund which provides emergency financial assistance, or to the Chaim Roifman Scholar Award Endowment which provides much needed research dollars, or to one of our many funds established in honour of an individual.

 

With the CI Society your donation dollars go further.

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Events

Baden Klein Cup Baden with team

The Guelph Gryphon soccer teams hosted the 7th Annual Baden Klein Cup on August 25th, at the University of Guelph's Alumni Stadium with the women kicking the event off at 4:00 p.m. and the men at 6:00 p.m. For the past seven years Keith Mason, the Gryphon men's soccer head coach, has organized the event for his nephew Baden who was diagnosed with a severe immune deficiency disorder (Wiskott Aldrich Syndrome [WAS]) at two months of age. It was a sunny, fun filled event for all. Thanks goes out to the players and volunteers who made it happen and to Joanne and Fred Klein, Baden's parents, for their ongoing support of the CI Society.

 

 

Adam's Game Golf Classic 2010

The rain held off and everyone enjoyed the day at the Royal Ontario Golf Course, located in Milton just south of the 401. Blair and Carol Cleveland expressed their gratitude to all the golfers, sponsors, donors and volunteers who helped raised just over $18,000 for education and research into a cure for Primary Immunodeficiency Disease. New sponsors for 2010 included Pizzarustica, Closet & Storage Concepts, Unisync as Golfer Gift Sponsor, and RonKorb.com as Entertainment Sponsor. Dr. Adelle Atkinson of Toronto Hospital for Sick Children gave a capativating presention after dinner.

 

 

Toronto's Kids Picnic 2010HSC Team

On July 25, kids, families and friends enjoyed a variety of activities at Camp Green Acres in Markham, Ontario. Made possible by a World Immunodeficiency Network grant from the Jeffrey Modell Foundation, the kids picnic is a chance for those born with the most severe form of a Primary Immunodeficiency Disease to get together with other families and the healthcare professionals who were there throughout the long treatment. Pictured here are some members of the team from Toronto Hospital for Sick Children.

 

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Volunteers who make a difference!  

Halls and Clevelands

Pictured from the left, Sarah Kennedy-Hall and Kevin Hall, Blair, Carol and Adam Cleveland at a volunteer recruitment barbeque for Adam's Game Golf Classic hosted by Sarah and Kevin.

 

Special thanks to all Adam's Game Golf Classic volunteers... 

Caryn & Shayne Beechey, Marion Benson, Chris Brown,  Debbie Dickenson,  Bill Dickenson, Sandra Dwyer, Leslie Brooks-Jesse, Mark Jesse, Sarah & Kevin Hall, Randy Harding, Stacey & Peter Kay, Ron Korb, Karen Livingston, Michael Moralejo, Steve Naylor, Dave Saunders, Michelle Somers-Naylor, Josee Patton, Yvonne Young.

If you are interested in volunteering in any of our programs reach us at contactus@cisociety.com .
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Caring Companies
 
Please consider your patronage of those who support our efforts in patient support, education and research for a cure.

Adam's Game Golf Classic 2010 Sponsors
Acme United, Baxter BioScience, Closet & Storage Concepts, Concept Ford-Georgetown, CSL Behring, Donnell Insurance Brokers Ltd., Esselte, Kids Horizons Air Canada, Pizzarustica, Rands Watson Group, Ron Korb, Talecris Biotherapeutic, The Jewel 88.5, UNISYNC, Vaughan Mills,
and the many Hole and Prize sponsors found at
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Thank you for supporting the CI Society in 2010. We couldn't do it with you. Watch for exciting new developments in 2011.

Richard Thompson, CFRE
Executive Director
Canadian Immunodeficiency Society
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