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CI Society Newsletter
Canadian Immunodeficiency Society 
providing patient support, education and research for a cure
In This Issue
Dr. Stuart Turvey chosen as award recipient
Jeffrey Modell Canadian Immunodeficiency Network
Physicians' Webpage -- New Resources Added
Night at the Museum --Toronto Movie Release
2009 Adam's Game Golf Classic
Shop 'til You Drop Toronto
Get Involved!
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Join our list
Join Our Mailing List
June/2009
Greetings!
 
Welcome to our summer issue. In this recession, we are most grateful to those who continue to support our important work. We value your contributions and work to make sure each dollar has the most impact. The CI Society's leadership continues to be forward thinking and strives to be cost effective in the provision of programs. We use telephone & video conferencing technology to bring together physicians across Canada, saving travel costs. Electronic distribution of newsletters and materials is used wherever possible to save on printing costs. Our staff of six (most part-time)  provide their own offices and equipment. We are proud to report that administration costs for the CI Society in 2008 were just 8%.  We set up the Alastair Fund, which provides emergency assistance to families in need, so that 100% of donations towards this fund go directly to families in financial need.

In 2009, the CI Society will continue to use your donor dollar wisely in providing quality programs and services. We rely on the generosity of individuals like you, and the support of foundations, groups and corporations. The CI Society does not receive any government funding. This year, we especially want to thank our Cornerstone Supporter Talecris Biotherapeutics, and two other pharamaceuticals, CSL Behring and Baxter Canada for their belief and ongoing commitment to supporting our efforts in patient support, education and research for a cure.

Dr. Stuart Turvey chosen as award recipient
Stuart TurveyThe CI Society is pleased to annouce that Dr. Stuart Turvey has been chosen as the 2009 recipient of The Chaim Roifman Scholar Award for Young Investigators. Dr. Turvey, MB BS, DPhil, FRCPC, is Assistant Professor, Division of Infectious and Immunological Disease, Department of Pediatrics, University of British Columbia. His research application is entitled  "From rare severe primary immunodeficiencies to common subtle immune defects".
 
The Chaim Roifman Scholar Award, first launched in 2007, is supported by Talecris Biotherapeutics and the CI Society.
 
A call for Letters of Intent due September 25, 2009. 
 
For further information on the Award please click here:

Jeffrey Modell Canadian Immunodeficiency Network
The Jeffrey Modell Canadian Immunodeficiency Network is a highly respected healthcare resource across Canada fostering early diagnosis of primary immune deficiencies. Through networking, knowledge dissemination, and communication among healthcare professionals, patients and the general public, the Network ensures that patients have access to excellent care.
 
Great Grants on the Go
The Network continues to support its members in the educational and diagnostic developments of PID. In April 2009 the JMCIN funded the national distribution of Immunology & Allergy Clinics of North America, Dr. Chaim Roifman, editor, to trainees in immunology. This book on IVIG treatment will facilitate the education of Canadian fellows on best practices for PID. However, our desire to educate does not end with Canadian trainees. We are pleased to announce the funding of the CI Society's What is PID booklet. This tool will aid patients and physicians in understanding how the immune system works, what is a PID, and how it is diagnosed and treated in Canada. Distribution to hospitals across Canada is scheduled for late November 2009. If you have an educational or diagnostic project to better the lives of patients with PID, you may submit an application. Visit: Network Grant Applications to download an application form.  
 
Lights, Camera, Action on Primary Immunodeficiency Video Conference Rounds
 Night at Museum PosterThe Network is pleased to announce the success of our first two accredited rounds (February 2nd and May 4th).  The caliber of these seminars has resulted in two additional sites joining our broadcast, giving us a
total of 10 telehealth locations plus a live webcast. We welcome The Children's Hospital of Eastern Ontario and Alberta Children's Hospital to our rounds. The PID Video Conference Rounds are accredited through the Royal College of Physicians and Surgeons of Canada for 1.5 hours. Join us on September 14th and December 7th  as we travel across Canada for stimulating case based discussions on PID. For additional information please contact Linda Pires, Manager, JMF Network of Centres, at network@cisociety.com  
 
The Chair goes to?
The Jeffrey Modell Canadian Immunodeficiency Network is delighted to announce  Dr. Elie Haddad of CHU Sainte-Justine in Montreal is the Chair of the Network for 2009.  We are confident that his expertise and his ardour to better the lives of patients with PID will lead the JMCIN to new heights for 2010.
 
Join The CI Society as an Affiliated Member: 
The JMCIN is pleased to announce the expansion of our membership. If you are a physician who does not specialize in immunology, but finds a growing need for immunology resources  in your practice, join the JMCIN as an Affiliated Member today. Email Linda Pires, Manager, JMF Network of Centres, at network@cisociety.com. Your membership will provide you with the opportunity to participate in all JMCIN educational events, along with direct access to all 10  Network sites for expert guidance with your patients. The Network includes:
 
Dr. Stuart Carr - Capital Health, Edmonton
Dr. Tom Issekutz - IWK Health Centre, Halifax
Dr. Peter Dent - Hamilton Health Science Centre
Dr. Reza Alizadehfar - Montreal Children's Hospital
Dr. Elie Haddad - CHU Sainte-Justine, Montreal
Dr. Aubert Lavoie - H˘pital CHUQ-CHUL, Quebec City
Dr. Adelle Atkinson - Toronto Hospital for Sick Children
Dr. Amin Kanani - St. Paul's Hospital, University of B.C.
Dr. Stuart Turvey - BC Children's Hospital
Dr. Chrystyna Kalicinsky - Winnipeg Health Science Centre
 
This month the Network welcomes Dr. Nicole Wright, Alberta Children's Hospital. We look forward to being affiliated with you.
 
If you are a physician treating Primary Immunodeficiency Disease patients, please indicate your interest to join the network by contacting Linda Pires, Manager, JMF Network of Centres, at network@cisociety.com  
Physicians' Webpage-- New Resources Added
Doctor eyeThe CI Society has launched a physicians' webpage. Here you will find diagnostic tools, presentations and resources to assist in diagnosing and treating individuals with Primary Immunodeficiency Disease (PID). 
 
Recently added under Diagnostic Tools: "Indications for Haemopoietic Stem Cell Transplantation" compiled by: Maite de la Morena, Alain Fischer, Luigi Notarangelo, Reinhard Seger, Chaim Roifman (Chair).
 
Recently added under Case Studies: "Autoimmune and Inflammatory Complications of Primary Immune Deficiency" presenter: Nicola Wright, Alberta Children's Hospital, Calgary, May 2009 and "Autoimmunity in Combined Immune Deficiency " presenter: Nicola Wright, Alberta Children's Hospital, Calgary, May 2009.
 
Please sign up for a username and password here:
 NIGHT AT THE MUSEUM -- Toronto Movie Release
Night at Museum PosterOn May 24, 2009, over 100 kids and parents enjoyed the CI Society's first Family Movie Day featuring the movie release of "Night at the Museum, Battle of the Smithsonian".
 
Our special thanks go to:
 
Bailey's Home Hardware
Help We've Got Kids
Kernels Popcorn
Rainbow Cinemas Market Square
Rotblott's Discount Warehouse
Spin Master Toys Ltd.
 
for their donations and support in making this day such a success.
Adam's Game Golf Classic, September 30, 2009

Night at Museum Poster Night at Museum Poster

 
Adam invites you to join him and enjoy the full tournament experience at Lionhead Golf and Country Club.
 
 
$145 per person for a full day including lunch and dinner 
 
Support a good cause--the CI Society!
 
 

Golfer Sign Up

 
SHOP 'TIL YOU DROP - COME SHOP FOR A CAUSE
Save the date-- Sunday, October 25, 2009 
Night at Museum PosterWe are at it again and bigger and better for 2009!

Rain or shine we will be open 10 AM - 4 PM, indoors,  Edward's Gardens, Toronto. Free admission.  Free parking too!

We have over 40 vendors, old favourites and new ones too, 

including American Apparel, Admiral Road Designs, Baggy Pants, Ecstatic, Esther Gould's Finest Biscotti, Jelly Boys, Hygeia, The Cocoa Room, Fit to Be Tied, Gem'n'i Desgins, Glamour Gems, Naked Lamb, P.S. Jewelry, Silver Lining Designs, Silver Sports Tags, Snapdragon Designs, and many more!

Come on out! Bring family and friends and get an early start to holiday shopping or find that "gotta have it" item at great show prices. There will be something for everyone--women's and children's clothing, giftware, jewelry, stationery, accessories, gourmet foods and more. 
 
If you have wares you would like to sell, we have limited but good spots available for more vendors. Please contact jrothblott@rogers.com
 
To learn more about this event visit: Shop 'til You Drop

Get Involved!
Are you on Facebook? Do you want to help raise awareness?
If you are a member of Facebook, click:
CI Society on Facebook to join our group,
  
Are you available during the day?
Wendy Shama, MSW, RSW, works with volunteers at the Toronto Hospital for Sick Children to provide support to patients and parents. In our patient support program a volunteer is matched to a family in hospital. This is an opportunity to establish a very special one-on-one relationship with a child in need.
 
Do you enjoy volunteering at events?
Volunteers are welcome to join us at Adam's Game Golf Classic, September 30 and Shop 'til You Drop Event, October 25. Volunteers are needed to help promote these events, secure sponsorships, and assist on the day of the events. 
  
Let us know at:  contactus@cisociety.com   
If you have questions, please feel free to contact us. We look forward to hearing from you.
 
Sincerely,

Richard Thompson, CFRE
Executive Director
Canadian Immunodeficiency Society
 
Newsletter sponsored by:
 Talecris, Behring, Baxter