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 Making Our Voices Heard
October can be OVERWHELMING
In This Issue
Legislative Update
Jeanette Caliguri
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Legislative Update
We are very pleased to announce that this year the Department of Defense's Breast Cancer Research Program was funded at the full amount requested, $150,000,000.  We know that is the result of your relentless efforts to contact your elected officials and remind them of the importance of this program. In Pennsylvania, almost all of our members of congress and both senators supported this program. Their overwhelming support is also responsible for this year's success. To see how your representative stood on this issue, CLICK HERE
 
 
The Breast Cancer and Environmental Research Bill was recently passed and signed into law. As with all legislation, it evolved during the process. For more information, Click Here
 
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Musings on October
 
 
Every year, this month takes on monumentally pink proportions and this year was definitely hot pink. Somehow, even under the shimmering pink lighting and bubbling pink fountains, the profound ugly truth of breast cancer remains.   
 
   We still do not know what causes it or how to cure it!   
 
How can that be? Our homes are filled with pink products. We run in those races. We undertake torturous bike rides and camp out during our walks. Yet, we are still taken aback by the horrific statistics and tragic tales of young women stricken by a disease that continues to baffle our brightest scientists and talented physicians. 
 
   For children, October ends with fun-filled portrayals with the donning of costumes and assuming roles of someone or something they want to be. Can we celebrate the end of our October by also taking on a new role?  You can dress any way you want, but for even one day, join our advocacy efforts and help us ensure the money raised is spent wisely. 
 
    A very wise young woman, Annette Rodriguez, recently told me that "sometimes stepping out of your comfort zone leads to fruitful rewards." Please, join us and reap those rewards.
 
 
As always, thank you for all you do
 
until next time....
This busy, busy month finds many of us trying to catch our breath while looking back at so many events and accomplishments. We were pleased to present some of our first annual ACE awards. This award is presented to legislators that have demonstrated their support of important breast cancer legislation.  Many thanks to those who joined us at these ceremonies. We expect to have pictures on our website in the near future. 
 
Many of you watched the LIfetime movie "Living Proof," based on the true story of Doctor Slamon's struggle to bring Herceptin to market. For those of you that missed the movie, you can watch it online.  Amy Madigan does an amazing job playing Fran Visco.
 
Susan Love unveiled a new project aimed at registering one million women interested in partnering with researchers to finally end this disease. I urge you to visit the Army Of Women site and join in this exciting venture.
 
We invite you to participate in a short survey about cognitive changes after treatment. The results of this survey will help researchers do a better job of designing an appropriate study with input from people who have been treated for breast cancer. 
 
This month's featured advocate is Jeanette Caligiuri. She is a dynamic, remarkable woman. She took proverbial lemons (some very rotten lemons in her case) and made delicious lemonade. You are going to love getting to know her. 
 
And finally, some musings on October to end this month's issue. 
 
Remember Halloween is more than just a spooky kid's holiday - enjoy the candy! 
 
Wouldn't it be great if they found a chocolate cure? I would be the first volunteer for that trial.  
Jeanette Caligiuri
 
Everyone describes their diagnosis as "life altering." For Jeanette it moved a bit beyond that. Her breast cancer caused her to rethink her life, her goals, and her career. Many of you know about the business she and her sister Bonnie began. It is so much more than a mastectomy boutique. It is a safe haven, a comfortable environment that provides not only the stylish items you want but the support you need. When you enter the Faith & Hope Boutique you truly can find everything you need to "embrace your body and empower your soul."  Jeanette tells us how and why she found her own way to make a difference. 
 
 
At the age of thirty-nine I heard the words that I'd been dreading. The biopsy results had come back, "it's cancer." The doctor's assistant went on in a seemingly unending deluge of instructions that I was no longer hearing. My mind centered on one thought: "it's my turn."
 
Unfortunately, through a bad draw of the genetics card, I was no stranger to the disease. After the deaths of my grandmother and my mother, that left me alone with many unanswered questions at the age of fifteen, I had the realization that I too would be forced to confront my fate. 
 
  
When I began my treatment, I found the hardest part wasn't losing my breasts or my hair but losing control. While I was thankful for all the advances in medicine that were available  my doctors, and clinicians and personnel all carried out their individual missions with strategic accuracy,  and few took the time to say my name. I reasoned that personal attachment in their chosen field would be a luxury that they couldn't afford and deduced that I needed their expertise, not compassion. I turned to family and friends to fill the void, but became frustrated that they were blessed with never having to journey down the path I was stepping with trepidation. I searched out support groups that offered comrades that easily shared battle scars, victories, laughter and tears.
 
During my recovery, with found time on my hands, I became transfixed with purpose. I was filled with a passion that no woman should have to go through this alone. After all, what kind of soldier would march off to battle unarmed? I envisioned a safe place to offer comfort and knowledge to newly diagnosed women, stocked with items to help with every phase of treatment conveniently gathered in one place. I shared my idea with my sister, who at the time was recovering from her own prophylactic mastectomy, and Faith and Hope Boutique was born. 
 
The boutique has grown to two locations over the past year and we have reached thousands of women. The shop offers pre and post-operative care along with head coverings, wigs, and specialty skin care products. The most important part of my new found career is that along with hugs, hope, and assurances that we are not alone, is the opportunity to educate about advocacy. I have seen first-hand that there is safety in numbers. I no longer feel the isolation of a fifteen year old orphan.

I have been lucky enough to see my passion mirrored in women who have won their own battles and stand united to continue to fight the war. The fight is for education, for funding of new research, and for legislation that will one day change the meaning of this disease.  

Each one of us not only has been given a diagnosis, we have been given a gift. How we use it is up to us.
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