Action Alert Network
Making Our Voices Heard
Lobby Day Issue
In This Issue
Congratulations & Thank you
Happenings at the Conference
Joy Simha
Congratulations & Thank You 
Baker invitation lower dpi
Please join us in congratulating and thanking Pennsylvania's Certificate of Excellence Award winners
 
Rep. Fattah D-02)
Senator Casey
 
Everyone on this list not only received this award for 2007, they have all signed the DoD letter for this year and are cosponsors of the Breast Cancer and Environmental Research Act !
 
For non-PA residents See how your legislators stand
 
 
Update On This Year's Agenda
 
NBCC continues to maintain the same four legislative priorities.  They remain the most focused legislation and issues for breast cancer research and treatment.
 
They are:
Priority #1:
 
Priority #2:
 
Priority #3:
 
Priority #4:
 
 Remember - we love to be forwarded - so use the link and share us with a friend.
 
As always, this newsletter continues to evolve. We want to hear you comments and suggestions. If you want to recommend someone to be our Monthly Featured Advocate, tell us about them. 
 
We are easy - just hit reply & type!
 
 
until next time....

We are happy to report this year's NBCCF Annual Advocacy Training Conference and Lobby Day were a resounding success. 
 
Every year, at the Congressional Awards Reception, awards are presented to members of Congress who work tirelessly with NBCC in the fight to end breast cancer.  We are proud to announce Senator Arlen Specter was one of those honored this year. 
The advocates also presented Certificate of Excellence Awards to legislators that have responded to NBCC's legislative priorities. 
 
Pennsylvania is proud! Our state tied with California for second place for the most legislators honored by this award.That is amazing because California has 53 congressional districts to our 19! Of those 19 - 14 achieved a perfect record. We are also proud that both senators received this honor. 
 
We know that you are responsible for this extraordinary achievement. Your calls, emails and letters motivate and remind them of the importance of these issues and the need for their support.
It is a pleasure to be able to thank them and now thank you for a very successful year.
 
One person can make a difference.... you have!!
Happenings at the Conference
 Every year, the National Breast Cancer Coalition Fund's Annual Advocacy Conference presents the most up to date scientific and political information. This conference seeks to educate and enlighten by including varied points of view at each workshop and session. The agenda is driven towards preparing advocates to critically review and process information before making decisions. Political speakers are chosen for the knowledge they impart, not for their point of view. NBCCF has never shied away from presenting speakers of opposing viewpoints. 
 
This year, a session on the healthcare issues included experts from all three presidential campaigns. Research workshop topics included stem cells, genomics, and epidemiology as well as information technology. 
 
Fran Visco unveiled the Framework for a Health Care System Guaranteeing Access to Quality Care for All in a speech on Monday morning. 
 
On Tuesday evening, conference attendees were invited to the senate gallery to hear Senator Harry Reid, again, introduce the Breast Cancer and Environmental Research Bill to the floor for a unanimous consent. "It was Déjà vu all over again."
 
Women from all over the United States and from 14 other countries attended. It was an exhausting, exhilarating and empowering event. We cannot wait until next year.
 
 
Joy Simha
 
 
I met Joy 8 years ago and she has been a constant inspiration to me. I value her advice and guidance and I treasure her friendship. She is an extraordinary woman that has had a worldwide impact on the lives of young women with breast cancer. One of the co-founders of the Young Survival Coalition, she chose advocacy over anxiety and we are all grateful she did.  

 

I was diagnosed with breast cancer 14 years ago at the age of 26.  I was a single career gal living in New York City.  My lump was 3.9 cm and the road to recovery seemed very challenging.At the time, my world evolved into being all about me and my disease and hoping I would come out the other end.

 

When I was first diagnosed, I did all the necessary research, developed a plan of attack and less than a year later had completed my treatments. I battled the disease and thought it was over for a few months after my last chemo treatment. But at every regularly scheduled doctors' follow-up visit, I found that I was paranoid and anxiously worried that the cancer would return.  I thought my battle was over, but those visits made me worry that I might be called back to duty any day now. I did not know what to do with all that nervous, unproductive energy. I began to talk to other advocates and a bunch of women from an organization in New York called SHARE recommended that I get to know the National Breast Cancer Coalition. In December of 1998, I participated in NBCC's Project LEAD and was blown away by the intensive training that I received there.And then, in the spring of 1999, I attended The NBCCF's Annual Advocacy Conference in Washington DC, which was four intense days in the company of really smart advocates from all over the world - four days of intensive training about the complex political process and the complex issues behind breast cancer. The benefit of the knowledge, research, and intense training that NBCC offered, coupled with the fact that now I no longer felt like a paranoid civilian waiting for the next bullet to hit me, made me feel like a member of a very powerful army of advocates who were armed and ready to fight this battle together. I went from feeling like an individual in the middle of a war, not sure where to aim my armory, to part of a hugely formidable force that would work together until the war was won. Until we end breast cancer, we continue to fight with the mightiest sword, knowledge, and after you are trained by the NBCCF, you have that! 

 

I used the training well. I remember at the end of the conference how intese Tuesday's lobby day was. You moved from meeting to meeting armed with NBCC's legislative priorities and their briefing package, in the company of experienced advocates, who helped you make your points to your legislative representatives.

 

I met with the legislative aid to Marge Roukema, a Republican representative for my district at the time. I talked to her about our legislative priorities and really made my point by talking to her as a young woman to another young woman. I noticed Congresswoman Roukema's voting record had not been too good in years past. I was pleased to see that she came around after our meeting that day and was very supportive of whatever we asked of her for the rest of her tenure. I continue to work with Scott Garrett with the same success.I think it's important that legislators hear from their constituents. If we present a logical, reasonable request and all the data to back it up, you can usually change the way they think and the way they vote. 

 

Discussing change with our legislators is an important way to make an impact in this battle for all women. This means of fighting breast cancer is way better than any chemo drug I ever took!

 
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Please, join us on May 13th, 6 to 8 pm for our
 
                   Volunteer Training
 
 
The training will be held at our new office.
New office, new web site and we are even using You Tube videos in our newsletter - wow, are we moving along or what?