One of the goals of our work is to teach people in prison
and the people who love them to become their own best advocates. Being a medical advocate for yourself
or your loved one takes a lot of time and energy whether you are in the
free-world or in prison.
We believe it is critical to confront situations that arise due to neglect, poor
communication, discrimination and cultural differences when they happen. However, we
are also working toward providing more and more health care and mental health care
educational tools and forums to people in prison and their loved ones in order to prevent problems from arising in the first place.
The problems inside are huge and the
result of a system that is inhumane and harsh, but there are ways that people
living in prison and their loved ones can be effective advocates and become
healthier along the way.
In this series, we will go over the nuts and bolts of
what it means to be a good medical advocate for people living in prison.
Details Matter
We need solid information. Encourage your loved one to write down
everything the medical provider covers during a medical consultation. It also helps for someone inside to
talk to his advocate on the outside about the kinds of questions he wants to
cover with the medical provider before the next consult. Counsel your loved one to write those
questions down and make sure to bring all of them up in the consult. As one
site says regarding free-world health advocates, "Become a human recording
machine. During all medical interactions including doctor appointments, lab
procedures, and
hospitalizations, write down in as much detail as possible,
everything that is said to the patient and done for the patient. If an
explanation or instruction goes by before you have had a chance to process it,
ask to have it repeated."
Unfortunately, in prison, the whole burden of recording is left to the
prisoner, but you can be involved by prepping the questions and doing research
for your loved one. If the medical
provider refuses to answer all of the questions or rushes your loved one out,
encourage your loved one to grieve the medical provider.
Hopefully, a grievance will not be necessary and your loved
one will get some answers and thorough information during the visit. If people in prison come to health care
appointments with a respectful attitude and an informed mind, they may be able
to re-set the tone of the consult.
Some medical providers throughout the MDOC are really good health care
providers and others leave something to be desired, but AFSC believes that
prisoners can make a difference in their own treatment just by being informed
and articulating that information in a respectful and genuine way.
Information Matters
If your loved one is on prescription medications, encourage
her to ask for written pharmaceutical information. If the medical provider refuses to provide written
information, tell your loved one to grieve and send AFSC a copy of the
grievance.
Remember:
differences of opinion abound in the field of medicine and healthy living. Try to help your loved one grow a
flexible and respectful (even in the midst of disrespect) attitude.
The more information your loved one is provided by medical services and by you about his medical condition the better. Some good health information websites:
Mayo Clinic Excellent general health information
HCV Advocate Current and extensive information on living with Hepatitis C
Our Bodies Ourselves Excellent women specific health care and sexuality information
Avert AIDS and HIVComprehensive information on HIV/AIDS in prisons
PubMedA great search site for medical information and prescription drugs from the
U.S. National Library of Medicine
& National Institutes of Health
Medical Records and Good File Keeping Matter
If your loved one has a chronic or serious health condition,
it is really important for your loved one to kite for her medical records after
any medical provider consults or specialty consults. You and your loved one in prison should be keeping files
with:
- lab
results
- MRI
results
- specialty
consult notes and recommendations
- medical
provider appeals to Prison Health Services - Medical
appeal denials, etc - Special
Accommodation Details
- Grievances
& grievance responses
In the next newsletter, more medical advocacy tips to come. If you have questions about any of the above information, please email Natalie.