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| Who We Are |
The Office of Developmental Primary Care is a new program within the Department of Family and Community Medicine at the University of California, San Francisco. We are dedicated to improving health outcomes for people with developmental disabilities across the lifespan. The greatest area of need is for adolescents and adults. We are partnering with other stakeholders to develop resources for clinical service, advocacy, research and training.
Clarissa Kripke, MD, FAAFP
Director
Gerri Collins-Bride, NP, MS, ANP
Director of Training & Clinical Education
Patricia Mejia
Program Coordinator
Tel: (415) 476-4641 | |
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| Clinical Service |
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- In collaboration with The Arc of San Francisco, the Office of Developmental Primary Care has been awarded funding by the UCSF University Community Partnerships Council to bring a Health Advocate to the UCSF Family Health Center at San Francisco General Hospital. The Health Advocate will assist in clinician training and will provide patient support for people with developmental disabilities.
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| Advocacy |
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- Dr. Clarissa Kripke has been appointed Chair of the Chancellor's Advisory Committee on Disability Issues. The charge of the advisory committee is to identify issues on campus affecting individuals with disabilities; to evaluate existing policies, procedures, and/or programs in light of those issues; and to recommend to the Chancellor changes to increase accessibility among members of the campus community.
- A number of Office of Developmental Primary Care Collaborators have been named to the San Francisco/Marin Autism Regional Task Force to support and assist in the work of the Senate Select Committee on Autism and Related Disorders: Dr. Robert Hendren, Director of Child and Adolescent Psychiatry and Vice Chair, Alan Fox, Chief Operating Officer, The Arc of San Francisco, Jim Shorter, Executive Director, Golden Gate Regional Center, and Dr. Clarissa Kripke.
- Mary Lou Breslin and Disability Rights Education and Defense Fund (DREDF), met with the Office of Developmental Primary Care when they drafted "The Current State of Health Care for People with Disabilities", a key report for the National Council on Disability. Click here to view the report.
- Santi Bahgat, MD, Founder and President of Physician-Parent Caregivers, Inc., released a white paper titled, "Enhancing Health Care Transitions for Youth and Young Adults with Living with Chronic Medical Conditions and Disabilities: Suggestions for Reform." Dr. Clarissa Kripke contributed expertise in the area of developmental disabilities. The paper is available here.
- The William R. Hearst Foundation has awarded The Arc of San Francisco a $75,000 grant to support the first of a 3-5 year project to reform the health care delivery system for transition age youth and adults with developmental disabilities. In partnership with the Office of Developmental Primary Care, the Golden Gate Regional Center, and Health Plan of San Mateo, The Arc of San Francisco is coordinating the effort to gather data, train health professionals, open a specialty clinic and make the public policy changes necessary to meet the health care needs of people with DD.
- Collaborators met with representatives of the CA Department of Health Care Services to educate them on the unique needs of transition age youth and adults with developmental disabilities. We will meet again to propose an organized system of care for this population in California. Present were: Alan Fox, Jim Shorter, Clarissa Kripke and Dr. Mary Giammona, Medical Director of Health Plan of San Mateo.
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| Research |
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· Robert Hendren, DO, an expert in autism and former Director of the M.I.N.D Institute has joined the UCSF Department of Psychiatry as Director of Child and Adolescent Psychiatry and Vice Chair. He leads the Bay Area Autism Consortium to enhance cross-institutional collaboration on research.
· The Association of University Centers on Disability and the Centers for Disease Control convened a meeting to determine appropriate methods for conducting population surveillance on the health of persons with intellectual disabilities in the United States. Dr. Clarissa Kripke participated. A follow-up meeting in Washington, DC is planned in February. |
| Training |
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· The Office of Developmental Primary Care has provided 22 trainings to over 780 participants, including faculty, residents, students, self-advocates, and caregivers.
· Trainees have gained clinical experience through partnerships with 16 clinical training sites at UCSF and in the community.
· Sandra Grijalva, Director of Wellness Services at The Arc of San Francisco has taken the lead in developing community-based training experiences with adults with developmental disabilities for third-year medical and PRIME-US students. Wellness Services is an innovative program to provide health advocacy for patients with developmental disabilities who need support to access health care.
· The first session of FCM140.16: Caring for Adolescents & Adults with Developmental Disabilities was offered this summer session 2009. During this one month rotation, a fourth year medical student had the opportunity to experience the full breadth of community-based Developmental Medicine.
· Dr. Mary Coleman presented a talk on developmental screening to the faculty practice of the UCSF Department of Family and Community Medicine. This lead to the implementation of the Ages and Stages Developmental Screening tool at this key teaching site.
· Melanie Callen, MEd, Joanne Donsky, LCSW, Dr. Shannon Thyne, and Dr. Teresa Villela have integrated training in developmental screening into the core Family Medicine residency curriculum. In addition, they have arranged for Family Medicine residents to get an experience at the developmental Pediatric Screening Clinic and Multidisciplinary Assessment Clinic (MDAC).
· Welcome to Dr. Neil Rojas, Developmental Pediatrician, who has joined the team in the UCSF Department of Pediatrics. He is developing new curriculum in developmental and behavioral pediatrics into the curriculum for Pediatric residents and students.
We are very excited to have partnered with a number of students who are committed to serving patients with DD. Below are highlights of some of our student lead projects.
· The Disability Rights Interest Group (DRIG) has had its first event, a presentation by Heather Bennett, MS4, on physicians with disabilities. The DRIG is an interdisciplinary student organization that aims to provide future health professionals with training, skills, and opportunities to work with people with disabilities in their future career paths. The group is dedicated to advancing the health of people with DD through research, social and political activities, and culturally sensitive medical training.
· Heather Fels, MS4, mapped the current medical school curriculum to identify where content in DD is currently being taught.
· Lien Le, MS2, developed a proposal to partner with Autism Social Connection for a video project which will focus on the health care transition needs of youth with autism.
· Heather Fels, MS4, as part of her Health Professions Education Pathways project has drafted a Problem Based Learning Case (PBL) and met with course directors to identify opportunities to incorporate curriculum on developmental medicine.
· Lucy Chen, Doctor of Pharmacy Candidate 2012, one of the coordinators for the Caring of the Underserved elective has invited the Office of Developmental Primary Care to present a training on the needs of individuals with developmental disabilities.
· As part of her project as a Curriculum Ambassador, Carol Becerra, MS2, developed a comprehensive web-based module on Down Syndrome for the Life Cycle block in the core curriculum for second-year medical students. For the first time, this module includes care of adults. |
| Upcoming Events |
February 17, 2010 from 3-5pm
The Community Engagement Program of the UCSF Clinical Translational Science Institute will facilitate a consultation to discuss UCSF's interest and capacity to conduct research on health services and health policies regarding adolescents and adults with developmental disabilities. The hope is the meeting will be a start to greater collaboration among researchers whose interests overlap in this field.
March 11-12, 2010
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The Office of Developmental Primary Care is a project of
the Department of the Family and Community Medicine
at the University of California, San Francisco.
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