|
|
|
|
|
|
|
Who We Are  | |
The Office of Developmental Primary Care is a program within the Department of Family and Community Medicine at the University of California, San Francisco. We are dedicated to improving health outcomes for people with developmental disabilities across the lifespan. The greatest area of need is for adolescents and adults. We are partnering with other stakeholders to develop resources for clinical service, advocacy, research and training.
Clarissa Kripke, MD, FAAFP
Director
Gerri Collins-Bride, RN, MS, ANP
Director of Training & Clinical Education
Patricia Mejia
|
|
 |
| Support Our Work |
 | |
Join Our Mailing List |
| |
|
|
|
| The CART Model | | A Bay Area collaborative led by the Office of Developmental Primary Care, The Arc of San Francisco, Health Plan of San Mateo and Golden Gate Regional Center, has proposed the CART Model to the California Department of Health Care Services. The CART Model is a pilot organized system of care for transition age youth and adults with developmental disabilities.
CART is based on four key components: Clinical services for both primary care and consultation; Advocacy and in-home support for patients; Research in health surveillance and health services; and Technical assistance and Training for clinicians. To integrate these components, the group proposed the model as a program within a public health plan that rests on four integrated pillars. These pillars include: primary care practices that offer an enhanced service; centers of excellence in developmental primary care to provide consultation and technical assistance; nurse-administered, yearly health checks to provide a reliable source of shared data on every member; and health advocacy services to ensure patients have support to partner with their doctors effectively.
CART has been under consideration by the Department of Health Care Services. While waiting for their answer the collaborative is building components of the model. The CART model has been endorsed by The Arc of California and the California Academy of Family Physicians. To receive a copy of the concept paper or proposal, please contact the Office of Developmental Primary Care.
|
| Clinical Service |
- Gerri Collins-Bride Wins Nurse of the Year Award. The Office of Developmental Primary Care's Director of Training and Clinical Education was honored by the American Academy of Developmental Medicine and Dentistry (AADMD) and the Developmental Disabilities Nurses Association (DDNA) in recognition of her exceptional service to adults with developmental disabilities.
- The ODPC hosted an historic Collaboration Meeting in March which brought together individuals from across the UCSF schools of Medicine, Nursing, Dentistry and Pharmacy as well as key individuals at San Francisco General Hospital. The group discussed issues regarding clinical training in DD as well as issues with clinical service provision. The need for a focus on interprofessional training and services was a highlight. Strategies for building collaboration, fund raising and outreach to other key stakeholders was discussed. A subcommittee will be meeting in the near future to discuss details of developing an interdisciplinary clinical project. Others interested in joining the collaborative group, please contact the ODPC!
-
The Family Health Center at San Francisco General Hospital is piloting a service-learning model whereby UCSF faculty, residents, and students are trained to care for patients with developmental disabilities. Funding for the pilot was awarded to the ODPC and The Arc of San Francisco by the UCSF University Community-Partnership Program, with additional funding from The Special Hope Foundation. Elaine Forsythe, a trained Health Advocate from The Arc of San Francisco, is working with the ODPC team to support patients and their clinicians. Dr. Megie Okumura is leading the team to design and implement a formal program evaluation for this innovative project.
|
| Advocacy |
- A coalition of disability organizations submitted input to the Department of Health and Human Services on the need to recognize developmental disabilities as a medically underserved population. The submission will be reviewed by the Department as it works to update how medically underserved populations are defined.
- The article "Transition to Adult Care for Survivors of Serious Childhood Illnesses and Disabilities", co-authored by Drs. Clarissa Kripke and Kevin Grumbach, was published in the Archives of Pediatrics and Adolescent Medicine. The full article can be found here.
- The Office of Developmental Primary Care was featured in Laura Shumaker's blog in the online version of the San Francisco Chronicle. Click here to view the article.
|
| Research |
-
The Bay Area Autism Consortium is a growing collaboration between scientists, physicians, and researchers committed to understanding, diagnosing, and treating autism in the Bay Area. The Consortium includes UCSF, Stanford, Kaiser, the San Francisco Department of Public Health, Children's Hospital Oakland, and the Children's Health Council. Several meetings have been held to establish the mission, goals and plan to use this broad collaboration to bring progressive research, improved information sharing and rapid dissemination of new findings. A website is being constructed as an initial activity and should be available soon.
- The Association of University Centers on Disability and the Centers for Disease Control convened a meeting to determine appropriate methods for conducting population surveillance on the health of persons with intellectual disabilities in the United States. Dr. Clarissa Kripke participated. The meeting is summarized here. A small resource conference is planned for May 23-25, 2011.
|
| Training |
- The Office of Developmental Primary Care has provided 36 trainings to over 1,250 participants. Participants include faculty, residents, students, self-advocates, and caregivers.
- The Pathways project developed by recent UCSF medical school graduate, Heather Fels, MD, has been adopted as a new Problem Based Learning (PBL) case. The case, focusing on a young adult with autism, will be offered as part of Foundations of Patient Care in spring 2011.
- The Office of Developmental Primary Care contributed information on developmental disabilities to The Tree of Data Gathering, a handbook used by medical and nursing students.
- Since its launch in April, the number of hits to the Office of Developmental Primary Care's website has increased threefold. In April, the website recorded over 3,000 hits. In May, there were over 9,200 hits.
- The Office of Developmental Primary Care received a WINGS grant to fund web maintenance training.
|
The Office of Developmental Primary Care is a project of
the Department of the Family and Community Medicine
at the University of California, San Francisco.
|
|
|
|
|
|
|
|
|
