Another year has passed and it is again time to tell you where I am on my path through life. It is interesting that you will not find my true diagnosis in the records of my annual astronaut physicals at Johnson Space Center, nor in the office records of my neurologist, or rheumatologist, or family doctor at my VA clinic.

I naturally have told each of them that a statin associated ALS-like degeneration is the best fit diagnosis yet nothing gets written down on my record. All the reasonable tests have been done and all are uninformative. All the doctors remain clearly skeptical as we "wrap up" the session. I am playing the role of doctor when I talk with them. I am not going to deny this for no one yet has my experience. I have daily email exposure to some of the many thousands of other cases.

My doctors know nothing about this subject of mitochondrial damage and the role of CoQ10. I cannot get through to them. They are unable to accept this extraordinary diagnosis yet it is staring them in the face and they can give no other best fit diagnosis. Certain tissues of my body are failing, slowly but surely.

Click on the link and scroll down the page to read the rest of the July 2010 update.

 

My Statin Story July 2010 update