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Shawn Shares
Tiff's Corner
Disability Life
Spinal Cord Injury
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Greetings!

Happy Holidays! In this December Standing Room Only Newsletter you will find tips on fitting personal cares in around the holidays, new blog posts and podcast from Tiff, encouraging words to help get through challenging times, information on incomplete spinal cord injuries, and a physical therapist's holiday wish list. 

 

Don't forget to visit our EasyStand Blog to check out recent posts. Our blog is growing and our archive of past posts are numerous and educational! 

 

EasyStand Blog Adult Posts:
More From The EasyStand Blog:
Wishing Fred A Fond Farewell

Shawn Shares
Fitting Personal Cares in Around The Holidays 


We're on a runaway train to Christmas and New Year's, and thus the holidays are upon us. The holidays are a nice time to spend some quality time with family, eat lots of great food, exchange gifts, revel in the holly jolly spirit, etc. But one of the behind the scenes lifestyle challenges that always crops up this time of year for me is fitting my morning personal care schedule around holiday events. As I've mentioned here and there in the past, I need assistance with a number of my personal cares every morning to get me fully ready for the day. Every other day my morning routine can take up to (or over) three hours; I call them my "long days." Those long days are the ones that can be tricky to work around during the holidays. As much as possible I try to avoid having my long days on any major holiday so it doesn't interfere with things. As many of my fellow quad peeps know, some of the "setbacks" that can occur from parts of our more invasive personal cares can be messy, embarrassing, and can require a decent amount of help getting squared away again. 

Tiff's Corner
Holiday Shopping, Comedians On Wheels and Disability Podcast    
 
Survival Guide: Malls & Shopping From A Wheelchair

The holiday season has descended upon us again. Just in time for the holidays, my shopping mall survival tips. As a self-confessed shopaholic, saying I know a thing or two about navigating a mall from a wheelchair is an understatement.      

  

Much Love for Disabled Comedians  

When you can't fix a problem, laugh at it. It sounds rather simple, but that's the jist of why I love comedians with disabilities. The key to an awesome person in my opinion is the ability to make fun of one's self.

  

No Free Rides Podcast: The Disabled Perspective - British Style

In this episode of No Free Rides, I was invited on-air at 104.4 Resonance FM in London to be on the disability podcast, Technical Difficulties. During the show host Tim Abbott, a brilliant journalist with mild cerebral palsy, and I discuss the differences in being disabled in the US vs. the UK.

 

Disability Life
Remember Those Courageous Moments  

Are you looking for a little inspiration, a little motivation, or a little fuel to get you through the day or a challenging moment in your life? Look no further than your past for that jumpstart you need, that we all need from time to time. Recently, I was asked to give a motivational talk to Seton Hall University's Men's Basketball team and knowing that they are a fairly young and inexperienced team, I shared with them how important it is that they reflect on those moments of success, moments of courage, and moments of resilience to push them forward. The same applies to people with disabilities. No matter what challenge you are experiencing at this very moment, you have a huge arsenal of courageous moments from which you can use to combat those feelings of sadness, depression, unworthiness, hopelessness, you name it. In any moment, you can close your eyes and take yourself back to not just an ordinary moment, but an extraordinary moment in which you or the person with the disability has overcome some type of challenge and has emerged even stronger on the other side of it.

  

More Encouraging Words  

 Spinal Cord Injury

Complete vs. Incomplete    

Normally when people are asked which they would prefer complete or incomplete, without knowing what the rest of the question is, most people would say that they prefer complete. They would like a complete car repair and would not like an incomplete heart surgery. But when a person is recovering from a spinal cord injury and the doctor tells them they have an incomplete spinal cord injury, the news is received with hope and joy. This can be good news because there is hope for recovery and improved outcomes, but for some, this diagnosis can result in added hardship. Some of the problems those individuals encounter are unmanageable spasticity, low to intense pain along with the many other SCI related challenges.

 

 

Read "Complete vs. Incomplete" 

Clinical Resources  

Holiday Wish List    

Here is a preview of the 10 things included on this physical therapist's holiday wish list. Many are for clients of any age and others are more pediatric related.

1. Please move the accessible stalls closer to the restroom entrance. Why does someone with a mobility impairment who really needs a bathroom break have to travel 50 feet further than everyone else?
2. Expedite the process for obtaining durable medical equipment. I know there are all kinds of things that need to take place. I appreciate having a window of time within which to respond to denials. However, if the insurance provider knows their answer is going to be a "no", they don't have to wait a month to tell me.
3. Let the appropriate people qualify for a stander AND a gait trainer. I get to stand AND I get to walk. Both activities can yield therapeutic and functional outcomes, but each has its own special benefits. What a choice to have to make.
4. The most important wish is that you have the love and support you need to have the happiest and healthiest of holiday seasons.
 

Read The Other 6 Wishes 


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