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Help USOD Represent the Indians
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 American All Stars Game Out of 9,000 nominations the Up Side of Downs of Greater Cleveland has been selected to be one of three finalists to represent the Cleveland Indians in an online voting process with the Cleveland Indians online winner heading to Anaheim California for the All Stars Game on July 13th. Each one of the 30 Major League Baseball teams will have one nonprofit representing them.
Supporters need to go to www.peopleallstars.com, click on the Cleveland Indians Logo, then vote for the Up Side of Downs. There is no limit to how many times one can vote, no registration is necessary & it is super easy to do.
In 2009 all five of the living Presidents Obama, Bush, Bush II, Clinton & Carter each highlighted by video their favorite nonprofit representing one of the 30 major league teams. This links has the coverage of last years campaign.
All-Stars Among Us 2009
 Sign up for Daily e-mail reminders to vote - USOD All Star Reminders
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| Team USOD & the Rite Aid Marathon | | Everyon e Was A Champion On May 15th it was perfect weather in the early morning hours for both the USOD water station volunteers & of course the runners.
We had a fantastic time cheering & hydrating over 15,000 runners. The running team raised nearly $1,000 in support of the USOD. Please give a huge CHEER & thanks to our outstanding runners:
Carrie Carr
Ashley Gierman
Vicky Chmura Francesca Klein
Denise
Cirino Darlene Kovacs
Dan Clapper Laura Malone
Kristen
Cushing Denise McCormicK
Theresa Day Denise Moore
Tim Day Melissa Patterson
Cathy
Domzalski George Plataz
Dawn Doran
Judi Plescia
Diane
Dudziak
Keith Price
Nicole
Erdman Andy Skorobatcky
Cindy Soinski
Please check out some of the cool photos at our site. Now that we have a year under our belt we will sign up for the Rite Aid Marathon 2011 for Sunday May 15, 2011 Cleveland Marathon So mark your calenders to run, support & volunteer in 2011! |
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USOD Grandparents Group
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 Monday, June 7 at 10:00am
Get together for great conversation, support & friends. USOD
will bring coffee &
pastries. Free.
Cleveland Clinic Community Room B
5001
Rockside Road, Independence, mapquest
Please rsvp to Gay McVeigh at 440-327-6276
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Please Enjoy & Share New USOD Video
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Webinar Recording on Swallowing & Feeding Issues
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 Boston Children's Ds Clinic
Does
your loved one with Down syndrome have swallowing or feeding issues? Watch a
webinar from Boston Children's Down Syndrome Speaker series to
learn great tips and strategies. Their next webinar is on Celiac Disease and
will take place on June 28th.
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June 4th is National Donut Day
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 Get Your Free Donut Today
Dunkin Donuts is a proud sponsor of the 10th Annual Northeast Ohio Buddy Walk & we want to let everyone at the USDO know that on Friday, June 4, 2010 in honor of National Donut Day everyone can get a free donut with the purchase of any beverage. Find a store near you today - click here
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Buddy Walk Sponsorships
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Saturday, August 21, 2010
Still Time for Sponsorships & Donations to Get into the 9000 BW Brochures - Please contact the USOD office
Our goal this year is to welcome 21 new and/or increasing financial sponsors & product donations to the 2010 Northeast Ohio Buddy Walk. So far we are excited to have new commitments from:
1. 123 Gluten Free
2. Avon
3. BJ's
4. CVS
5. Delightfully Downs
6. Dr. John Klienman, DDS
7. Eaton Corp.
8. Hickman & Lowder Co., L.P.A
9. Labels & Letters
10. Mainstreet Gourmet
11. Nestle Professional
12. Parker Hanifin
13. Rainbow Babies & Children's Hospital
14. Revol Wireless
15. Seimens USA
16. Snyder's of Hanover
17. Spec4Us
18. Sports Time Ohio
19. Traditions Health Care
20. Whole Foods
Please help us get to 21, we are soooooo close!
Click here for the 2010 NEO Buddy Walk Sponsorship Packet Also, please contact Julie Goldstein for additional information, suggestions or leads at 216-464-USOD
(8763) or julie@usod.org
Thank you in advance
for your continued support.
P.S. - Buddy Walk registration will
be on-line mid June |
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Summer Travel Tips & Resources
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 Various Websites
6 Travel Tips for SP Kids
1. Fear of an Unknown Destination
2. Theme Parks
3. Traveling by Plane
4. Hotels
5. Safety
6. Boredom
Child ID Temporary Safety Tattoos (they are great)
That Special Trip to Disney World
Traveling with Mickey
Mouse Aid
A wonderful Directory of Summer Camps for Children with Disabilities was compiled by the National
Information Center for Children and Youth with Disabilities(NICHCY). It contains disability-specific as well as general camp
resources.
Long List of Great Resources Links - click here
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National Down Syndrome Society
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 June E-newsletter
click Here
Latest My Great Story
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Mom's Night Out - Medina & Valley View
Take Some Time To Meet Other Great Moms
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 Medina, Thursday June 10, 7pmGrab a bite at Chipotle and bring it next door to Starbucks for coffee,
conversation, and cameraderie on the second Thursday of each month. Our
group has been going strong for over three years and we welcome new
members to join us for fun and friendship!
Coffee on the USOD!
Chipotle Mexican Grill, 899 N. Court Street, Medina, Starbucks, 897 N. Court Street, Medina
rsvp to Jamie at 330-220-1045
Valley View, Friday June 18, 7pmIt's YOU time! Join us the third Friday of each month as we wind down
the week at Yours Truly sharing stories, smiles, and appetizers
courtesy of USOD! Give yourself a break from cooking and save room for
dinner, too. We know it can be a little uncomfortable to meet new people. Feel free
to bring a friend for support. We want you to come...and to come back! Hope to see you there! Yours Truly Restaurant8111 Rockside Rd. Valley View, OH - mapquestrsvp to laura@usod.org |
Down Syndrome Centre -
Good Preparation Leads to Success at Starting School
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 Down Syndrome CentreThis is the time when parents start to think about preparing their child
for school next autumn. You have picked out the school and talked to
the staff there. You have probably gone for a visit with your child and
perhaps met next year's teacher. There are a few things to make sure
that your child can do to help ensure that this first year will be
successful. read on..... |
Baby & Tot Playgroups - Come Out & Play With Us
Eastside, Westlake, Strongsville Medina
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 Join other moms, dads, babies & small siblings for a fun time to
hang out, chat & play.
Grandparents are welcome!!!!
Westside - Monday, June 10, 6:30 - 8:00 pm
Achievement Centers for Children, 15000 Cheerful Lane, Strongsville, -mapquest
Eastside - Wednesday June 16, 6:00 pm
Presetn's Hope Playground 26001 South Woodland Rd.
Beachwood, OH 44122- mapquest
rsvp - lauriek@usod.org
Westlake - Monday June 21, 6:30 - 8:00 pm
Achievement Centers for Children
24211 Center Ridge Road Westlake, OH 44145
- mapquest
for info or to rsvp please contact: email Debbie
Medina - Monday, June 21, 6:30 pm
Medina County Achievement Center
4691 Windfall Rd. Medina, OH, 44256 - mapquest
for info or rsvp please contact: email Maria or 440-845-4965
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USOD Parent Speaker Series
Down syndrome and the "I can't do it" syndrome:
Avoiding Learned Helplessness and Teaching Responsibility
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 Monday, June 14, 2010 7:00 pm
Learned helplessness is a common condition among
individuals with special needs. Parents and caregivers often come to the
"rescue" to help children and adults with everyday tasks they could easily
perform on their own. Jennifer Smith, behavior and curriculum intervention
specialist for the CCBDD, explains how this mindset of helpfulness on the part
of parents often results in helplessness, low self-esteem, and irresponsibility
on behalf of the young or adult child. Jennifer will present strategies for
identifying and either preventing or reversing these behaviors to promote
independence. She will discuss how using the "3 P's" of parenting a child with special
needs - practice, persistence, and patience - can, in time, pay off in a
relationship of healthy dependence between the caregiver and the person with
Down syndrome.
Cleveland Clinic
Beachwood Family Health Center
Conference Room D, 26900 Cedar Rd. Beachwood, mapquest Free, rsvp@usod.org
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Fantastic & Free Website for Adaptive Books
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These are adapted books and materials created with
Boardmaker, Writing with Symbols, and PowerPoint software. They have
been converted to Adobe Acrobat (.pdf) format as well.
click here
submitted by usod parent - Darlene Kovacs (thanks!)
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UNDERSTANDING PUBLIC FUNDING WORKSHOP
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 June 16, 2010 6:30 pmAt this workshop, participants will learn about Medicaid programs
designed to provide children with disabilities access to important
health care benefits and services. Topics
Medicaid what it is
and who it is for EPSDT-what it stands for, why it's
important, what services are provided
Pathways to obtaining Medicaid eligibility based on a child's illness
or disability: - Medicaid Home and Community Based Waivers: ODJFS
and ODDD
- SSI and SSDI
- Guidelines for grievances and appeals
Presenter:
Franklin J. Hickman, Esq. JD, Hickman and Lowder Co., LPA (a proud 2010 Buddy Walk Sponsor!)Cuyahoga Valley Career Center, 8001 Brecksville Road, Brecksville - mapquest Cost: $10.00 rsvp to Linda Kresnye 216-229-5757, Ext. 126 |
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Sibling Research Survey Opportunity
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 Ashlyn Smith, a doctoral student in developmental psychology at
Georgia State University in Atlanta, Georgia is conducting a study for her
dissertation. She'll be looking at sibling relationships in families of
children who have intellectual and/or developmental disabilities.
If you are interested, click here for more
information.
To contact Ashlyn, call 404.413.6535 or e-mail her at ashlyn@student.gsu.edu
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DownsEd Conference Cleveland- Registration is Open
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 November 3,4 & 5, 2010
Registration is now open for the DownsEd International to be held in Cleveland. Register early and ensure your spot for this world class conference. There are limited slots for each track.
The Down Syndrome Education Conferences offer high quality,
evidence-based guidance
and information for professionals and families and are offered
at locations around
the world.
These unique events cover motor, cognitive, social, language,
literacy and numeracy
development from birth, presenting up-to-date overviews of
current knowledge and
illustrating evidence-based, effective teaching techniques and
approaches for people
with Down syndrome.
The DownsEd Conference Cleveland 2010
provides the following tracks:
Two Day
'In Depth' Tracks -
November 3-4, 2010: 'In
Depth' Track - Early Years (Birth-5 Years) 'In
Depth' Track -
Elementary / Childhood Years
'In
Depth' Track - Speech and Language Professionals One Day 'Essentials'
Tracks -
November 5, 2010: 'Essentials'
Track - Early Years (Birth-5 Years) 'Essentials'
Track -
Elementary / Childhood Years
'Essentials'
Track -
High School / Adolescence Years
Conference Brochure website registration
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Volunteers Needed for Special Olympics Fundraiser -
Nautica PokerFest
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 June 10-13, 2010
A large population of our children are in, or will at
some point participate in, Special Olympics. It is a wonderful
resource for differently-abled persons. Jeff Vermillion of Special
Olympics for Northern Ohio is asking for families, friends, and
supporters to volunteer their time for Special Olympics at a Poker
Fest at the Powerhouse on June 10-13.
Anyone willing to help in any way should contact Jeff Vermillion
440-582-8433 or Sue at special_olympics@amherstk12.org
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New IEP Dispute Resolution Project
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Pacer CenterHelping your child with disabilities receive an appropriate
education is one of the most important jobs you have as a parent.
You and your child's Individualized Education Program (IEP) team may or
may not agree on everything. Disputes and disagreements do occur.
This Web site can help you learn how to manage those disputes in
a positive, productive way. Use the information here to increase: knowledge of your special education rights and
responsibilities understanding of educational planning and your child's IEP communication, self-advocacy, and conflict resolution skills awareness of conflict resolution options and how to use them ability to advocate for your child
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New Summer Camp For Kids With Down syndrome
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 Week of August 2-6, 2010
We are so excited about a wonderful full-day camp being offered especially for kids with Down syndrome by Bluestreak Camps which will be held on the Ursuline Campus. Blue Streak Summer Camps, Inc. was established in 1985 as a
co-educational, non-competitive sports summer day camp. Since that time
our goal has always remained to provide a wide variety of athletic
camps, for both children and adults, in a wholesome environment; camps
which are safe, fun, and as personal as possible. At Blue Streak Camps,
the focus continues to be on sportsmanship, fair-play, learning, and
skill improvement - not on winning and losing. Call for information today, there are limited slots due to the high camper to staff ratio. Cost is $200.
Please contact Tim or 440-287-7644.
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USOD Mission
To provide support, education, and advocacy for people with Down syndrome, their families and communities.
Vision
The Up Side of Downs is committed to building a community where
people with Down syndrome are independent and have the opportunity to
reach their fullest potential.
History
In the early 1980's, a handful of parents whose children had Down
syndrome began to meet informally over coffee for socialization and
support. Nearly thirty years later, with the help of a lot of coffee
& caffeine, their vision and hard work has taken the Up Side of
Downs from a grassroots parent movement to a staffed nonprofit
organization joining over 800 families throughout Northeast Ohio.
We invite you to connect with our with our support community to join us at one of our many programs & services, do research in our comprehensive resource directory, join our on-line family support network, enjoy our scrapbook photo gallery and so much more.
Contact the Up Side of Downs of Greater Cleveland.
The Up Side of Downs of Greater Cleveland
23230 Chagrin Blvd., Suite 640
Cleveland, OH 44122
phone
216.464.USOD (8763)
fax 888.708.USOD (8763)
e-mail
info@usod.org
web www.usod.org
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