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Photo of the Week
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for more photos - RR Gallery
send new photos to
photos@usod.org
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Join Our List
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USOD
Board of Directors |
Casey
Atkinson
David J. Bruening
Allan Buzzelli
Renee Chappell
Denise Cirino
Sandy Donahoe
Scott Eitman
Sue Groszek
Debbie Marks
Katherine E. Schubert
Lisa G. Trifiletti
Ken Vinikoff
Brian J. Weiss, DPM
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We Received Over $200 from Just Three People!
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| First Check from Capital One's USOD Credit Card -
Sign up for yours today & Capital One instantly donates $50 (their $ not yours) to USOD with your first purchase & then 1% of all purchases you make. Please help support USOD in an easy way doing what you do each day! click hereDonate to USOD With Every Swipe of Your Card! |
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Please Enjoy & Share New USOD Video
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KeyBank Make A Difference Day - Packing Up the USOD Office & Getting Ready for the Big Move
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 A Huge Thank You To
Key Bank Volunteers
A huge thank you to the wonderful volunteers from Key Bank in the 2010 Make a Difference Day. They worked hard packing up &
sorting all the junk and goodies in the current USOD office in
preparation for our exciting move to our new offices this summer. They
truly made a Difference.
more photos of the chaos
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Buddy Walk Sponsorships & Volunteers
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Saturday, August 21, 2010
We Need Help Getting the Word Out & the Paperwork In
A primary source of financial support for the Up Side of Downs' annual
programming is through Buddy Walk corporate & private sponsorships. We need to pump up the volume since the deadline, June 1, is fast
approaching for a sponsor's name & logo to be included in the
printed brochure & media packages.
Our goal this year is to welcome 21 new and/or increasing financial sponsors & product donations to the 2010 Northeast Ohio Buddy Walk. So far we are excited to have new commitments from:
123 Gluten Free
Avon
CVS
Delightfully Downs
Eaton
Hickman & Lowder Co., L.P.A
Labels & Letters
Mainstreet Gourmet
Nestle Professional
Parker Hanifin
Rainbow Babies & Children's Hospital
Revol Wireless
Seimens USA
Snyder's of Hanover
Sports Time Ohio
Traditions Health Care
Please help us grow this list we're a 3/4 of the way there!
Click here for the 2010 NEO Buddy Walk Sponsorship Packet Also, please contact Julie Goldstein for additional information, suggestions or leads at 216-464-USOD
(8763) or julie@usod.org
Thank you in advance
for your continued support.
P.S. - Buddy Walk registration will
be on-line mid June The USOD is having our 1st raffle at the NEO Buddy Walk on August 21st, and we are
looking for items to go in the raffle baskets. We have already received
some great items for various baskets, but we are seeking more items to make the
baskets even better! We would love it if you, your friends, or family
could help us acquire some of these types of items: - Restaurant gift cards
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Digital camera
- iPod, iTouch, iPad
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Board games
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Round of golf/driving range
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Seats to a Sports Events or Shows
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Gift certificates to a spa
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Hotel stays
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Time share donation
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Airline ticket donation
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Wii games
Anything that you can think of that would make an awesome basket! Please contact the USOD office for details or assistance. THANKS |
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Fantastic & Free Website for Adaptive Books
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| From the NY Department of Ed
These are adapted books and materials created with
Boardmaker, Writing with Symbols, and PowerPoint software. They have
been converted to Adobe Acrobat (.pdf) format as well.
click here
submitted by usod parent - Darlene Kovacs (thanks!)
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Mom's Night Out - Medina & Valley View
Take Some Time To Meet Other Great Moms
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 Medina, Thursday June 10, 7pmGrab a bite at Chipotle and bring it next door to Starbucks for coffee,
conversation, and cameraderie on the second Thursday of each month. Our
group has been going strong for over three years and we welcome new
members to join us for fun and friendship!
Coffee on the USOD!
Chipotle Mexican Grill, 899 N. Court Street, Medina, Starbucks, 897 N. Court Street, Medina
rsvp to Jamie at 330-220-1045
Valley View, Friday June 18, 7pmIt's YOU time! Join us the third Friday of each month as we wind down
the week at Yours Truly sharing stories, smiles, and appetizers
courtesy of USOD! Give yourself a break from cooking and save room for
dinner, too. We know it can be a little uncomfortable to meet new people. Feel free
to bring a friend for support. We want you to come...and to come back! Hope to see you there! Yours Truly Restaurant8111 Rockside Rd. Valley View, OH - mapquestrsvp to laura@usod.org |
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Karaoke: Toth's Place for Teens & Young Adults
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 Wednesday, June 2 6-9 pm
6966 Heisley Road, Mentor, OH
$5 per person. - mapquest
Call Rae Kinnaird at (440) 944-8852
First Wednesday of Every Month
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USOD Grandparents Group
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 Monday, June 7 at 10:00am
Get together for great conversation, support & friends. USOD
will bring coffee &
pastries. Free.
Cleveland Clinic Community Room B
5001
Rockside Road, Independence, mapquest
Please rsvp to Gay McVeigh at 440-327-6276
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Baby & Tot Playgroups - Come Out & Play With Us
Eastside, Westlake, Strongsville Medina
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 Join other moms, dads, babies & small siblings for a fun time to
hang out, chat & play.
Grandparents are welcome!!!!
Westside - Monday, June 10, 6:30 - 8:00 pm
Achievement Centers for Children, 15000 Cheerful Lane, Strongsville, -mapquest
Eastside - Wednesday June 16, 6:00 pm
Presetn's Hope Playground 26001 South Woodland Rd.
Beachwood, OH 44122- mapquest
rsvp - lauriek@usod.org
Westlake - Monday June 21, 6:30 - 8:00 pm
Achievement Centers for Children
24211 Center Ridge Road Westlake, OH 44145
- mapquest
for info or to rsvp please contact: email Debbie
Medina - Monday, June 21, 6:30 pm
Medina County Achievement Center
4691 Windfall Rd. Medina, OH, 44256 - mapquest
for info or rsvp please contact: email Maria or 440-845-4965
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USOD Parent Speaker Series
Teaching Responsibility to Our Families
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 Monday, June 14, 2010 7:00 pmJennifer Smith, behavior and curriculum intervention specialist with the
CCBDD, explains how to create responsible family members. This lecture
will focus on the importance of teaching independence for all ages.
Teaching our children to be responsible for themselves and for their
role as members of a family, community and school/work site is critical
for quality of life issues. Participants will learn how to identify
areas of focus and strategies used to help our family members take
ownership.
Cleveland Clinic
Beachwood Family Health Center
Conference Room D, 26900 Cedar Rd. Beachwood, mapquest
Free, rsvp@usod.org
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Life Center Plus - Summer Schedule
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SPLASH
Swim,
Persevere, Learn, Achieve, Have Fun!
Swimming Lessons for Kids with Disabilities Learn to play! FOR KIDS WITH MODERATE TO INTENSE SPECIAL NEEDS Shout Hooray for Game Play!!! FOR KIDS WITH MILD
TO MODERATE NEEDS |
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June 4th is National Donut Day
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 Get Your Free Donut Today
Dunkin Donuts is a proud sponsor of the 10th Annual Northeast Ohio Buddy Walk & we want to let everyone at the USDO know that on Friday, June 4, 2010 in honor of National Donut Day everyone can get a free donut with the purchase of any beverage. Find a store near you today - click here
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UNDERSTANDING PUBLIC FUNDING WORKSHOP
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 June 16, 2010 6:30 pmAt this workshop, participants will learn about Medicaid programs
designed to provide children with disabilities access to important
health care benefits and services. Topics
Medicaid what it is
and who it is for EPSDT-what it stands for, why it's
important, what services are provided
Pathways to obtaining Medicaid eligibility based on a child's illness
or disability: - Medicaid Home and Community Based Waivers: ODJFS
and ODDD
- SSI and SSDI
- Guidelines for grievances and appeals
Presenter:
Franklin J. Hickman, Esq. JD, Hickman and Lowder Co., LPA (a proud 2010 Buddy Walk Sponsor!)Cuyahoga Valley Career Center, 8001 Brecksville Road, Brecksville - mapquest Cost: $10.00 rsvp to Linda Kresnye 216-229-5757, Ext. 126 |
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Sibling Research Survey Opportunity
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 Ashlyn Smith, a doctoral student in developmental psychology at
Georgia State University in Atlanta, Georgia is conducting a study for her
dissertation. She'll be looking at sibling relationships in families of
children who have intellectual and/or developmental disabilities.
If you are interested, click here for more
information.
To contact Ashlyn, call 404.413.6535 or e-mail her at ashlyn@student.gsu.edu
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Down Syndrome: Healthcare Updates for the Primary Care Pediatrician
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 Harvard Medical School
Is offering an online continuing education course for pediatricians on Down
syndrome. Please share information about this great learning
opportunity with your child's physician!
OVERALL LEARNING
OBJECTIVES: -
Recognize medical
conditions associated with Down syndrome (DS).
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Become knowledgeable
of healthcare guidelines for Down syndrome.
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Explain treatment
options for DS-associated medical conditions.
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Anticipate questions
commonly asked by parents.
You can learn more
about this course here.
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DownsEd Conference Cleveland- Registration is Open
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 November 3,4 & 5, 2010
Registration is now open for the DownsEd International to be held in Cleveland. Register early and ensure your spot for this world class conference. There are limited slots for each track.
The Down Syndrome Education Conferences offer high quality,
evidence-based guidance
and information for professionals and families and are offered
at locations around
the world.
These unique events cover motor, cognitive, social, language,
literacy and numeracy
development from birth, presenting up-to-date overviews of
current knowledge and
illustrating evidence-based, effective teaching techniques and
approaches for people
with Down syndrome.
The DownsEd Conference Cleveland 2010
provides the following tracks:
Two Day
'In Depth' Tracks -
November 3-4, 2010: 'In
Depth' Track - Early Years (Birth-5 Years) 'In
Depth' Track -
Elementary / Childhood Years
'In
Depth' Track - Speech and Language Professionals One Day 'Essentials'
Tracks -
November 5, 2010: 'Essentials'
Track - Early Years (Birth-5 Years) 'Essentials'
Track -
Elementary / Childhood Years
'Essentials'
Track -
High School / Adolescence Years
Conference Brochure website registration
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| Check Out YouthAbility Today
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Summer Schedule
Youth Ability empowers disabled and at-risk teens by engaging them in
volunteer activities. The goals of the program are to explore natural
talents and interests, develop job skills and improve self-confidence.
Young adults have opportunities to volunteer in a group and/or
individual settings. All volunteer experiences aim to integrated with
typically developing peers. Youth Ability members donate about 6,500
hours of service annually to the community. They volunteer at nearly
100 sites across Cuyahoga County.
Here are just a few of the activities:
Upcoming opportunities June 2010:
Thursday, May 27th -- Planting of the new garden
Wednesday, June 3rd -- Car Wash at JFSA during the day
Wednesday June 9th -- East Side Veggies farm in Geauga
Saturday, June 12 -- Parade the Circle
Wednesday, June 16 -- JFSA Art Show at the Rock Hall
Check out the full summer program, the application & for further details click here....... We have 8 USOD Teens & Young Adults currently involved in the program, we would love to have more!
Special SHOUT OUT & THANKS to Brian Jasper who is the USOD YouthAbility Volunteer each Monday in the Office!
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New On-line Store
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Down Syndrome Foundation of Orange County
To
the many families and professionals who encouraged us to launch an online
store, thank you. Merchandise includes educational materials
used with students in The Learning Program and resources our team
considers beneficial to parents and professionals. We will continue to
add merchandise as funding permits.
DSF
Sight Word Readers, number books and worksheets are available online for
free. You can download them at http://dsfoc.org. See and
Learn is available for download at http://downsed.org.
If
you have questions about any resource, please contact us at info@dsfoc.org |
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New IEP Dispute Resolution Project
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Pacer CenterHelping your child with disabilities receive an appropriate
education is one of the most important jobs you have as a parent.
You and your child's Individualized Education Program (IEP) team may or
may not agree on everything. Disputes and disagreements do occur.
This Web site can help you learn how to manage those disputes in
a positive, productive way. Use the information here to increase: knowledge of your special education rights and
responsibilities understanding of educational planning and your child's IEP communication, self-advocacy, and conflict resolution skills awareness of conflict resolution options and how to use them ability to advocate for your child
Having these skills will help you keep your eyes on the prize:
an appropriate education for your child. click here |
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New Summer Camp For Kids With Down syndrome
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 Week of August 2-6, 2010
We are so excited about a wonderful full-day camp being offered especially for kids with Down syndrome by Bluestreak Camps which will be held on the Ursuline Campus. Blue Streak Summer Camps, Inc. was established in 1985 as a
co-educational, non-competitive sports summer day camp. Since that time
our goal has always remained to provide a wide variety of athletic
camps, for both children and adults, in a wholesome environment; camps
which are safe, fun, and as personal as possible. At Blue Streak Camps,
the focus continues to be on sportsmanship, fair-play, learning, and
skill improvement - not on winning and losing. Call for information today, there are limited slots due to the high camper to staff ratio. Cost is $200.
Please contact Tim or 440-287-7644.
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USOD Mission
To provide support, education, and advocacy for people with Down syndrome, their families and communities.
Vision
The Up Side of Downs is committed to building a community where
people with Down syndrome are independent and have the opportunity to
reach their fullest potential.
History
In the early 1980's, a handful of parents whose children had Down
syndrome began to meet informally over coffee for socialization and
support. Nearly thirty years later, with the help of a lot of coffee
& caffeine, their vision and hard work has taken the Up Side of
Downs from a grassroots parent movement to a staffed nonprofit
organization joining over 800 families throughout Northeast Ohio.
We invite you to connect with our with our support community to join us at one of our many programs & services, do research in our comprehensive resource directory, join our on-line family support network, enjoy our scrapbook photo gallery and so much more.
Contact the Up Side of Downs of Greater Cleveland.
The Up Side of Downs of Greater Cleveland
23230 Chagrin Blvd., Suite 640
Cleveland, OH 44122
phone
216.464.USOD (8763)
fax 888.708.USOD (8763)
e-mail
info@usod.org
web www.usod.org
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