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Providing support, education, and advocacy for people with
Down syndrome, their families & communities throughout Northeast Ohio



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Issue: 4.3 April 15, 2010
Quick Links
Photo of the Week
potw4-8-10
for more photos - gallery
send new photos to
photos@usod.org
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Join Our Mailing List
USOD
Board of Directors
Casey Atkinson
David J. Bruening
Allan Buzzelli
Renee Chappell
Denise Cirino
Sandy Donahoe
Scott Eitman
Sue Groszek
Debbie Marks
Katherine E. Schubert
Lisa G. Trifiletti
Ken Vinikoff
Brian J. Weiss, DPM
2010 USOD Buddy Walk - Mark Your Calendars
buddy walk logo
Saturday August 21, 2010
It is with great excitement that we are stepping up to the 2010 Buddy Walk! 

The first Buddy Walk  Committee meeting is Tuesday, April 27, 2010 at 7:00pm(it will be in Independence Ohio, final location will be announced) We need help in all shapes & sizes and none is too small. So please contact the USOD officeif you are interested in supporting & celebrating one of our best, biggest & brightest days of the year!
USOD Annual Meeting 
2009 USOD Annual ReportThis Past Tuesday
April 13, 2010 the USOD held it's first Annual Meeting. It was with great pride and excitement that the USOD Board issued the 2009 USOD Annual Report.Please take a moment to reflect & rejoice in the accomplishments of 2009. Additionally 2010 Priorities and Goals were discussed. Several resources were issued such as:

10 Small Ways to Help USOD in 2010

10 Big Ways to help USOD in 2010

USOD - Who Do You Know List?

So take a moment and feel free to contact the USOD office, USOD Board & staff with any questions, suggestions, resources or concerns.

Most of all THANK YOUfor all that you do to help celebrate & support life with Down syndrome in Northeast Ohio!
Mom's Night Out - Medina & Valley View
Take Some Time To Meet Other Great Moms

moms
Valley View, Friday 4/16 7pm
It's YOU time! Join us the third Friday of each month as we wind down the week at Yours Truly sharing stories, smiles, and appetizers courtesy of USOD! Give yourself a break from cooking and save room for dinner, too.

We know it can be a little uncomfortable to meet new people. Feel free to bring a friend for support. We want you to come...and to come back! Hope to see you there!
Yours Truly Restaurant
8111 Rockside Rd. Valley View, OH - mapquest
rsvp to laura@usod.org
USOD Bowling Buddies, Last One is a Party!
potw1-27-10April 25th @ 2:00 pm
Great snacks, prizes and friends with teen volunteers from JServe. Please rsvpto the USOD officewith the name & ages of the kids playing (so we have the right age goodies.)

Price:Individuals with Ds are free. All others pay $3.95 per game, all with complementary shoes. 
Freeway Lanes
33185 Bainbridge Road Solon, OH 44139 - mapquest
April is Sexual Assault Awareness & Prevention Month
safe placeTake a Moment to LearnAmong adults who are developmentally disabled, as many as 83% of the females and 32% of the
males are the victims of sexual assault. fact sheets April is Sexual Assault Awareness & Prevention Month, a month to create awareness that rape and sexual assault are still prevalent and that change is needed. Every one of us can make a difference by dispelling myths, prevention & advocacy. This is a serious issue that the USOD is addressing in partnership with the CBDD. We are developing a series for both parents and 3-part workshops for pre-teens & teens targeting body health & safety. Additionally we are ordering materials to be made available to parents through SafePlacein Austin, Tx which has wonderful resources specifically for individuals with disabilities, families & providers. Please contact the office if you would like to review the materials or additional information.
USOD Spring Math Conference for Educators & Parents
Pre-Order Book & CD Discount Ends Sunday April 11th!

Teaching Math
April 19th & 20th Online Registration - click here

DeAnna Horstmeier, an experienced educator, was inspired to develop a program (and consequently a book) for teaching math skills by observing the difficulty her adult son with Down syndrome and his roommates had in applying math skills to everyday life. Its success lies in capitalizing on the visual learning strengths of these learners and using manipulative, games and activities to teach and maintain motivation for learning math. Topics will include:
 
*** Number Sense & Recognition *** Calculator Skills Recognizing & Writing Numerals *** Counting Time *** Measurements Place Value *** Addition & Subtraction Money *** Percents ***

Monday, April 19, 2010 6:00 - 9:00pm
Independence Civic Center, 6363 Selig Dr, Independence - mapquest

Tuesday, April 20, 2010 9:00 am-12:00pm
Co-Sponsored with the Beachwood Board of Education
24601 Fairmount Blvd., Beachwood, OH - mapquest

$20 professionals, $5 USOD parents (CEU's Pending)

Event Flyer Monday 19th - Horstmeier_Flyer_Math_4-19-10.pdf
Event Flyer Tuesday 20th - Horstmeier_Flyer_Math_4-20-10.pdf

You MUST register in advance on-line or through the office - 2010 Spring Math Conference Registration
Shining Diamonds Parent Group -
Topic - When It Isn't Cute Anymore!
New Location - Appetizers on USOD

Shinning DiamondsTuesday, April 20th  7:00 pmWe invite you to join other parents, grandparents, and caregivers of children and adults with Down syndrome and an alphabet soup of complex needs. While each multi-facted shining diamond is unique, supporting our loved one has led us to a common place. We have much to teach each other!

Only by talking to each other, comparing notes,
and laughing are we able to help our carefully sculpted
diamonds truly shine and show off their "bling". free
 
Mulligans Place -
6131 Highland Rd. Highland Heights 44143 - mapquest
To rsvp or for more information contact Sue Groszek
Pre-Order Amazing Book & Help Raise Funds for USOD
Book I'm Down with YouI'm Down with You
by Jagatjoti S. Khalsa with Darren Setter

This beautiful book which is a photographic portraiture book and documentary focusing on the Down syndrome community. Pre-order your signed copy for a
special pre-order price of $19.95 (regularly $29.95) & USOD gets a $5 donation for each copy sold (enter our name at checkout please.)
Go to http://theotherpersonisyou.org/book.html

imdownwithyou montage
Half Marathon Registration is Almost Full!
Join Team USOD

Riteaid marathon 2010
Run With Team USOD & Down syndrome Awareness
Put on your running (or walking) shoes and show your
support for the Up Side of Downs! Join us at The Rite
Aid Cleveland Marathon, Half Marathon & 10K for a
day to celebrate the abilities and accomplishments of
people with Down syndrome...as well as your own! The
33rd annual Rite Aid Cleveland Marathon is one of the 50
oldest marathons in the United States and a great way
to honor all those hours you've logged on the treadmill
this winter.

Tetowpath marathon 2009am USOD running t-shirts and singlets are available through the USOD office. You also receive access to a customized fund raising Web page and fund raising materials. If you would like to get involved but prefer to
watch, please consider volunteering for the USOD Water Stationemail USOD officeand cheer on our team runners and walkers!

Visit www.clevelandmarathon.comfor race info & race registration, (you must register & pay entrance fees.) USOD's charity code is USDGC2010for
the marathon and half marathon, or
USDGC2010TRACKfor the 10k and 5k.
This code should be entered into the "charity code"
section of the rite aide application form. Also, please contact Dan Clapperor Julie Farleyalso about joining the USOD Team & race day details.
Teen & Young Adult Spring Formal DanceS!
spring fling danceSunday, April 25, 2010It's time to put on your dancing shoes and fanciest finery. Join us for an elegant evening of dinner, dancing, and music by C.R. Entertainment at Pine Ridge Country Club. This is a great opportunity for those 14 and older to get out, have fun, meet up with friends and make new ones! Sponsored by Lake Metroparks Farmpark and USOD.

Register on line at www.lakemetroparks.com or call or call Lake Metroparks Registration at 1-800-669-9226. Deadline for registration is Tuesday, April 20.
Cost: $25 per person, $22 per chaperon

Jewish Community Center
Sunday, May 2nd 4:00-5:30
Stonehill Auditorium at the JCC, which is located at 26001 South Woodland Road in Beachwood. We will have a DJ and snacks. Come prepared to have a great time. Admission is $3/person payable at the door. Hope to see you there. flyer
Grant Application Deadlines - April 30, 2010
surveyUSOD Family Grants Program
Family Grants are made available to the membership of The Up Side of Downs to provide financial assistance which directly improves the life of the individual with Down syndrome.
See application & guidelines. (PLEASE GET CONFIRMATION FROM THE OFFICE IF YOU SUBMIT ELECTRONICALLY THAT YOUR APPLICATION HAS BEEN RECEIVED.) 2010 USOD Family Grant Application

USOD Undergraduate Scholarshipfor General Education
A renewable academic scholarship of $1,000 for students enrolled in a 4 year college in the state of Ohio and intending to become educators in the general education classroom. The goal of the scholarship is to broaden the experiences of pre-service teachers in order to help them develop an understanding and clarity regarding the educational needs of individuals with disabilities and their families. 2010 Undergraduate Application

different needs
The Different Needz Foundation is proud to announce that the 2010 grant applications are now available. Special needs individuals, families and organizations that serve the special needs community can apply for monetary grants to purchase equipment or services. Application
Moving to Cleveland & Asking for Suggestions
moving to the area Can  You Help? Hello - I am seriously considering moving my family to Cleveland from Carmel Indiana, and wonder about schools and services for young people with DS in Cleveland - I have a 19yr old daughter with DS - fun loving and very social!.  Any recommendations?  what school districts are best recommended?  how are the highschools and middleschools in the area?  my "typical" son will be entering 8th grade.  Please send response to the office & we will forward.... THANKS!
Top Dog @ Spectator's
top dog michael carter gorup concertFriday, April 16 at 9:00pmBenefit Concert - The Michael Carter Foundation - Raising money for the Chagrin Falls Exceptional and Special Needs Students Group
Spectators - 8003 Mayfield Road, Chesterland, OH
Sponsored by the Michael Carter Foundation.
 
New Summer Camp For Kids With Down syndrome
summer Week of August 2-6, 2010
We are so excited about a wonderful full-day camp being offered especially for kids with Down syndrome by Bluestreak Camps which will be held on the Jon Carrol Campus in University Heights.  Blue Streak Summer Camps, Inc. was established in 1985 as a co-educational, non-competitive sports summer day camp. Since that time our goal has always remained to provide a wide variety of athletic camps, for both children and adults, in a wholesome environment;  camps which are safe, fun, and as personal as possible. At Blue Streak Camps, the focus continues to be on sportsmanship, fair-play, learning, and skill improvement - not on winning and losing. Call for information today, there are limited slots due to the high camper to staff ratio.  Cost is $200.

Please contact Tim or 440-287-7644.
Website for Bluestreak Camps
Great Things At Achievement Centers for Children
achivement centers April Fun
Infant Massage Classes starting in April - flyer

Family Fun Day April 24, 2010 - flyer

go to their new website for full detail http://www.achievementcenters.org/
Do You Have A Question?
Downs Ed in touch
New online advice services launched
Starting in May 2010, DownsEd Internationalis providing new online advice services offering live group consultations with expert practitioners, focused on specific issues and areas of development for young people with Down syndrome. Book now to secure your place, as places on each session are limited.

Live, online, group consultations hosted by experts
Our new online advice sessions offer live group consultations with expert practitioners focused on specific issues and areas of development for young people with Down syndrome. The Advice Session presenters include Professor Sue Buckley, Gillian Bird, Julie Hughes and Becky Baxter. Participants can submit questions during the session and engage in discussions on a variety of practical topics across different age groups. here for more info

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 Don't forget to mark your calendars for DownsEd International Coming to CLEVELAND, OHIO
November 3,4 & 5th 2010

November 3rd & 4th are for educators & therapists & November 5 is for parents
USOD logo
USOD Mission
To provide support, education, and advocacy for people with Down syndrome, their families and communities.

Vision

The Up Side of Downs is committed to building a community where people with Down syndrome are independent and have the opportunity to reach their fullest potential.

History

In the early 1980's, a handful of parents whose children had Down syndrome began to meet informally over coffee for socialization and support. Nearly thirty years later, with the help of a lot of coffee & caffeine, their vision and hard work has taken the Up Side of Downs from a grassroots parent movement to a staffed nonprofit organization joining over 800 families throughout Northeast Ohio.


We invite you to connect with our with our support community to join us at one of our many programs & services, do research in our comprehensive resource directory, join our on-line family support network, enjoy our scrapbook photo gallery and so much more.

Contact the Up Side of Downs of Greater Cleveland.

The Up Side of Downs of Greater Cleveland
23230 Chagrin Blvd., Suite 640
Cleveland, OH 44122
phone  216.464.USOD (8763)
fax       888.708.USOD (8763)
e-mail   info@usod.org
web      www.usod.org