USOD logo new 3-10


Providing support, education, and advocacy for people with
Down syndrome, their families & communities throughout Northeast Ohio



banner 1-10
Issue: 4.2 April 8, 2010
Quick Links
Photo of the Week
potw4-8-10
for more photos - gallery
send new photos to
photos@usod.org
Join Our List
Join Our Mailing List
USOD
Board of Directors
Casey Atkinson
David J. Bruening
Allan Buzzelli
Renee Chappell
Denise Cirino
Sandy Donahoe
Scott Eitman
Sue Groszek
Debbie Marks
Katherine E. Schubert
Lisa G. Trifiletti
Ken Vinikoff
Brian J. Weiss, DPM
Half Marathon Registration is Almost Full!
Join Team USOD

Riteaid marathon 2010
Run With Team USOD & Down syndrome Awareness
Put on your running (or walking) shoes and show your
support for the Up Side of Downs! Join us at The Rite
Aid Cleveland Marathon, Half Marathon & 10K for a
day to celebrate the abilities and accomplishments of
people with Down syndrome...as well as your own! The
33rd annual Rite Aid Cleveland Marathon is one of the 50
oldest marathons in the United States and a great way
to honor all those hours you've logged on the treadmill
this winter.

Tetowpath marathon 2009am USOD running t-shirts and singlets are available through the USOD office. You also receive access to a customized fund raising Web page and fund raising materials. If you would like to get involved but prefer to
watch, please consider volunteering for the USOD Water Stationemail USOD officeand cheer on our team runners and walkers!

Visit www.clevelandmarathon.comfor race info & race registration, (you must register & pay entrance fees.) USOD's charity code is USDGC2010for
the marathon and half marathon, or
USDGC2010TRACKfor the 10k and 5k.
This code should be entered into the "charity code"
section of the rite aide application form. Also, please contact Dan Clapperor Julie Farleyalso about joining the USOD Team & race day details.
2010 USOD Annual Meeting - Learn, Link & Laugh
Registration Closes Friday, April 9, 2010
announcement Tuesday, April 13, 7:00 pm
With great excitement the USOD Board of Directors and staff wishes to invite our community to the 2010 Annual Meeting on  This will be a free wine & dessert sampling and promises to be a great night where everyone can LEARN about the exciting goals, 2009 performance and updates for the USOD and our community, LINK with friends, both old and new, and LAUGH to the inspirational comedian and musician Dan Kulp. YOU MUST BE OVER 21 TO ATTEND.

This event is free. Seating is limited so please reserve your seat & glass of wine today! Register Today
Mom's Night Out - Medina & Valley View
Take Some Time To Meet Other Great Moms

momsMedina, Thursday 4/8 7pm Grab a bite at Chipotle and bring it next door to Starbucks for coffee, conversation, and cameraderie on the second Thursday of each month. Our group has been going strong for over three years and we welcome new members to join us for fun and friendship!
Coffee on the USOD!
Chipotle Mexican Grill, 899 N. Court Street, Medina, Starbucks, 897 N. Court Street, Medina
rsvp to Jamie at 330-220-1045
 
Valley View, Friday 4/16 7pm
It's YOU time! Join us the third Friday of each month as we wind down the week at Yours Truly sharing stories, smiles, and appetizers courtesy of USOD! Give yourself a break from cooking and save room for dinner, too.

We know it can be a little uncomfortable to meet new people. Feel free to bring a friend for support. We want you to come...and to come back! Hope to see you there!
Yours Truly Restaurant
8111 Rockside Rd. Valley View, OH - mapquest
rsvp to laura@usod.org
USOD Bowling Buddies this Sunday - only a few left!
potw1-27-10Let's celebrate just a few weeks of winter to go! We have reserved four lanes at Freeway Lanes in Solon. All bowlers are asked to wear their Buddy Walk shirts if they have them. What better way to spend a cold Sunday afternoon than with your Bowling Buddies! 
 
Mark your calendar for 2-4pm on the following dates: 
April 11 and 25th

Price:  Individuals with Ds are free. All others pay $3.95 per game, all with complementary shoes. 
Freeway Lanes
33185 Bainbridge Road Solon, OH 44139 - mapquest
Please rsvp to USOD office
A Huge Applause for Hosting a
USOD Dress Down for Downs Syndrome Day!
olympic steel logo

International Transport Services

Hartville Elementary

If your school, business or organization is interested in learning more about Dress Down for Down Syndrome Days go to the USOD website or contact the office.  Thanks
DDDS Strip
Do You Have A Question?
Downs Ed in touch
New online advice services launched
Starting in May 2010, DownsEd International is providing new online advice services offering live group consultations with expert practitioners, focused on specific issues and areas of development for young people with Down syndrome. Book now to secure your place, as places on each session are limited.

Live, online, group consultations hosted by experts
Our new online advice sessions offer live group consultations with expert practitioners focused on specific issues and areas of development for young people with Down syndrome. The Advice Session presenters include Professor Sue Buckley, Gillian Bird, Julie Hughes and Becky Baxter. Participants can submit questions during the session and engage in discussions on a variety of practical topics across different age groups.  here for more info

 Don't forget to mark your calendars for DownsEd International Coming to CLEVELAND, OHIO
November 3,4 & 5th 2010
Reading & Math Enrichment Support
Registration Closes Sunday, April 11th
orange county learning program 4 Part Parent Pilot Series
Up Side of Downs is excited to offer a 4 part parent training series for a hands-on enrichment program for reading and math. The Learning Program is based on over 30 years of research that has been conducted in England (www.downsed.org).  register today

There will be four sessions which will take place on Wednesday evenings at 7:00 pm and last approximately 1.5 hours. The cost for the series is $40 which includes all materials. Attendance at all four sessions is mandatory.
Dates are as follows:
April 14     May 5
   May 26      June 14

For more information, contact Gina Mitchner, USOD education coordinator at gina@usod.org
Location: 1st class only at the Cleveland Clinic Community Center in Beachwood.
Register Online - Spring Pilot Program
Michael Jurogue Johnson
Painter, Illustrator, Self Advocate
michael DS artist 
Michael Jurogue Johnson is a full time artist. Art is his job. He paints almost every day and he also works in the cottage industry that has developed from his talent. Michael was born with Down syndrome, but he was also born with a sense of wonder, an ability to appreciate simple things, a good sense of humor, and the determination to communicate with others. Art opened up Michael's world. click here for his website
Shining Diamonds Parent Group - 
Shinning Diamonds Tuesday, April 20th  7:00 pm We invite you to join other parents, grandparents, and caregivers of children and adults with Down syndrome and an alphabet soup of complex needs. While each multi-facted shining diamond is unique, supporting our loved one has led us to a common place. We have much to teach each other!

Only by talking to each other, comparing notes,
and laughing are we able to help our carefully sculpted
diamonds truly shine and show off their "bling". free
 
Cleveland Clinic Community Room A
5001 Rockside Road Independence, OH 44131 - mapquest
To rsvp or for more information contact Sue Groszek

Wonderful article written by Sue Groszek in the winter edition of the USOD paper newsletter page 4 - read on
USOD Spring Math Conference for Educators & Parents
Pre-Order Book & CD Discount Ends Sunday April 11th!

Teaching Math
April 19th & 20th Online Registration - click here

DeAnna Horstmeier, an experienced educator, was inspired to develop a program (and consequently a book) for teaching math skills by observing the difficulty her adult son with Down syndrome and his roommates had in applying math skills to everyday life. Its success lies in capitalizing on the visual learning strengths of these learners and using manipulative, games and activities to teach and maintain motivation for learning math. Topics will include:
 
*** Number Sense & Recognition *** Calculator Skills Recognizing & Writing Numerals *** Counting Time *** Measurements Place Value *** Addition & Subtraction Money *** Percents ***

Monday, April 19, 2010 6:00 - 9:00pm
Independence Civic Center, 6363 Selig Dr, Independence - mapquest

Tuesday, April 20, 2010 9:00 am-12:00pm
Co-Sponsored with the Beachwood Board of Education
24601 Fairmount Blvd., Beachwood, OH - mapquest

$20 professionals, $5 USOD parents (CEU's Pending)
 
Her books will be available for pre-order at a $10 discount!
 
Event Flyer Monday 19th - Horstmeier_Flyer_Math_4-19-10.pdf
Event Flyer Tuesday 20th - Horstmeier_Flyer_Math_4-20-10.pdf

You MUST register in advance on-line or through the office -
2010 Spring Math Conference Registration
Teen & Young Adult Spring Formal Dance
spring fling dance Sunday, April 25, 2010 It's time to put on your dancing shoes and fanciest finery. Join us for an elegant evening of dinner, dancing, and music by C.R. Entertainment at Pine Ridge Country Club. This is a great opportunity for those 14 and older to get out, have fun, meet up with friends and make new ones!  Sponsored by Lake Metroparks Farmpark and USOD.

Register on line at www.lakemetroparks.com or call or call Lake Metroparks Registration at 1-800-669-9226. Deadline for registration is Tuesday, April 20.
Cost: $25 per person, $22 per chaperone
Moving to Cleveland & Asking for Suggestions
moving to the area Can  You Help? Hello - I am seriously considering moving my family to Cleveland from Carmel Indiana, and wonder about schools and services for young people with DS in Cleveland - I have a 19yr old daughter with DS - fun loving and very social!.  Any recommendations?  what school districts are best recommended?  how are the highschools and middleschools in the area?  my "typical" son will be entering 8th grade.  Please send response to the office & we will forward.... THANKS!
Latest Issue of Inclusion Solutions - Spring 2010
Inc Sol Banner




So many exciting & wonderful articles & resources.
Take a look at the latest issue & please forward onto to educators & parents alike. 
Inclusion Solutions Spring 2010-pdf
Inclusion Solutions E-Newsletter

Forward to a Friend
New Summer Camp For Kids With Down syndrome
summer Week of August 2-6, 2010
We are so excited about a wonderful full-day camp being offered especially for kids with Down syndrome by Bluestreak Camps which will be held on the Jon Carrol Campus in University Heights.  Blue Streak Summer Camps, Inc. was established in 1985 as a co-educational, non-competitive sports summer day camp. Since that time our goal has always remained to provide a wide variety of athletic camps, for both children and adults, in a wholesome environment;  camps which are safe, fun, and as personal as possible. At Blue Streak Camps, the focus continues to be on sportsmanship, fair-play, learning, and skill improvement - not on winning and losing. Call for information today, there are limited slots due to the high camper to staff ratio.  Cost is $200.

Please contact Tim or 440-287-7644.
Website for Bluestreak Camps
AMC Sensory Friendly Films -
How to Train A Dragon!
amc Saturday, April 10 10am AMC Entertainment (AMC)brings a special opportunity to enjoy  favorite films in a safe and accepting environment on a monthly basis with the "Sensory Friendly Films" program. In order to provide a more accepting and comfortable setting for this unique audience, the movie auditoriums will have their lights brought up and the sound turned down, families will be able to bring in their own gluten-free, casein-free snacks, and no previews or advertisements will be shown before the movie. Additionally, audience members are welcome to get up and dance, walk, shout or sing - in other words, AMC's "Silence is GoldenŽ" policy will not be enforced unless the safety of the audience is questioned.

AMC Ridge Park Square 8
4788 Ridge Rd., Brooklyn, Ohio 44144 - mapquest
Great Things At Achievement Centers for Children
achivement centers April Fun
Infant Massage Classes starting in April - flyer

Family Fun Day April 24, 2010 - flyer

go to their new website for full detail http://www.achievementcenters.org/
Adult Transition Planning Seminar - Three Part Series
STARTS NEXT WEEK!!!
ccbdmrdd
Every family has many questions about their children's future, but they're of even greater importance for parents whose sons and daughters have a developmental disability. Whether your son or daughter is a child or an adult, it's time NOW to plan for the future.

ˇ Public-Private Partnerships ˇ Education ˇ
ˇ Income Tax Answers ˇ Legal Documents ˇ
ˇ Funding and Management ˇ Eligibility Questions ˇ
ˇ Waiting List ˇ Waivers ˇ Reviewing Your Existing Plan ˇ

Spring 2010
Rocky River Adult Activities Center, 20120 Detroit Road 1490 East 191st Street, Wed., April 14, 21 & 28, 2010
Fall 2010
Euclid Adult Activities, 1490 East 191st Street Wednesdays, Sept. 29, Oct. 6 and 13

Cost is $50 for cost of materials. 
*** USOD will reimburse $25 after completion of course and submission of registration to the office *** 
flyer & registration
Visual Learners Reading Workshop - eReadingPro
Down Syndrome Association of the Valley
DSAV
Great for parents, teachers, reading specialists and anyone who works with visual learners.
 
Thursday, May 6th  6:00 PM - 9:00 PM OR
Friday, May 7th  9:00 AM - 12:00 PM
 
Location:  SST-5 Meeting room
5555 Youngstown-Warren Rd., Unit 69 Niles, Oh  44446 
To Register:  Click on the workshop date above that you wish to attend and follow registration instructions.
 
Professionals - $10 (contact hours certificate available)
Parents - $5 (additional $5 sponsored by the DSAV)
Workshop Flyer
USOD logo
USOD Mission
To provide support, education, and advocacy for people with Down syndrome, their families and communities.

Vision

The Up Side of Downs is committed to building a community where people with Down syndrome are independent and have the opportunity to reach their fullest potential.

History

In the early 1980's, a handful of parents whose children had Down syndrome began to meet informally over coffee for socialization and support. Nearly thirty years later, with the help of a lot of coffee & caffeine, their vision and hard work has taken the Up Side of Downs from a grassroots parent movement to a staffed nonprofit organization joining over 800 families throughout Northeast Ohio.


We invite you to connect with our with our support community to join us at one of our many programs & services, do research in our comprehensive resource directory, join our on-line family support network, enjoy our scrapbook photo gallery and so much more.

Contact the Up Side of Downs of Greater Cleveland.

The Up Side of Downs of Greater Cleveland
23230 Chagrin Blvd., Suite 640
Cleveland, OH 44122
phone  216.464.USOD (8763)
fax       888.708.USOD (8763)
e-mail   info@usod.org
web      www.usod.org