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Providing support, education, and advocacy for people with
Down syndrome, their families & communities throughout Northeast Ohio


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Issue: 3.3 March 17, 2010
Quick Links
Photo of the Week
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for more photos - gallery
send new photos to
photos@usod.org

ToysRUs Casting Call for the
2010 Differently Abled Kids Brochure
Details
ToysRUs

Designate USOD 
uw Make a Double Difference!
Please consider designating your UW donation to USOD.  Thanks!
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Join Our Mailing List
USOD
Board of Directors
Casey Atkinson
David J. Bruening
Allan Buzzelli
Renee Chappell
Denise Cirino
Sandy Donahoe
Scott Eitman
Sue Groszek
Debbie Marks
Katherine E. Schubert
Lisa G. Trifiletti
Ken Vinikoff
Brian J. Weiss, DPM
Baby & Tot Playgroups - Eastside TONIGHT!
tot Join other moms, dads, babies & small siblings for a fun time to hang out, chat & play.

Grandparents  are welcome!!!!


Eastside - Wednesday March 17,  6:00 pm
Achievement Centers for Children

4255 Northfield Road  Highland Hills, 44128 -mapquest
for info or to rsvp please contact: lauriek@usod.org
Special Needs Financial Planning Seminar
Financial Planning
Michael Carter Group
Thursday, March 18th 7:00pm
The financial puzzle can be confusing for families supporting a loved one with special needs. Join The Michael Carter Financial Group and USOD to make sure you have all the important pieces, and learn how to put them all together.

This free educational seminar for families of individuals with special needs will help you prepare for the financial well being of your special needs loved ones. We will discuss issues such as: Letters of Intent, Special Needs Trusts, protecting assets and government benefits.

It is never too early to begin planning for your family's financial future. We look forward to presenting an evening of education and resources to help you get started.

michael carter
Cleveland Clinic Conference Room A, 26900 Cedar Rd., Beachwood, OH 44122 - mapquest -
Meeting Flyer (cute USOD kids in it!)

Here are two articles w background resource information.
Life Care Planning Steps for Parents/Guardians of Special Needs Children (or Adult Children)  by By Ken Vinikoff, Special Care Planner, Financial Advisor

Making a Difference to Special Needs Families by Ken Vinikoff, Steven Thompson, Brian Marino, Jonathan Goldston, Bernard Garrah Provided By Michael Carter Financial Group
ONLY A HANDFUL LEFT!  Do you have yours?
2010 RR Logo 
A Great Evening with the Up Side of Downs Raffle
Saturday, March 27, 2010



~ $4,000 Main Board Prize ~
~ Side Board & Raffle Sales Begin 6:00 p.m. ~
~ Wide Variety of Chinese Auction Baskets ~
~ Cocktails & Hors D'oeuvres ~
~ Extensive Buffet w/Carving Station ~
~ Entertainment Provided by Marino Brothers ~

RR Invitation

Order Your Tickets On-line Today -
Click Here for 2010 USOD Reverse Raffle Tickets!


Our Chinese Basket Donors Make it All Possible! 
Take a peak at this year's list so far.  Please support our Donors & give them a huge THANK YOU!  RR Donor List as of 3-11-10
Support USOD & Have a Great Chance at Winning Big!

This is a great opportunity to bid on many of the great raffle baskets in the March 27, 2010 Reverse Raffle. You do not need to be present to win & 100% of your tickets goes to benefit the programs & financial grants of the Up Side of Downs of Greater Cleveland.

mickey mouseThe 2010 Reverse Raffle Committee has done a marvelous job of securing nearly 200 donations from local and national companies along with many or our USOD families & friends. They are working tirelessly for this event to be such a success. THANK YOU!

Please enjoy this partial list of prizes & packages. on-line catalogue  & order safely on-line here

Help the USOD continue to expand services & programs to bring greater resources and supports to hundreds of individuals with Down syndrome and their families across Northeast Ohio.

Get the word out about this great opportunity.  Show your support and tell your family & friends. Forward this email to a Friend

Hurry the deadline is NOON on Friday March 25th!

~~ Central Florida Package ~~american girl doll
~~ Celebrating Down Syndrome Package ~~
~~ Nights on the Town ~~
~~ American Girl Doll & Princess  ~~

Just to name a few - check them out here
Mom's Night Out - Medina & Valley View
Take Some Time To Meet Other Great Moms

momsMedina, Thursday 3/11 7pm Grab a bite at Chipotle and bring it next door to Starbucks for coffee, conversation, and cameraderie on the second Thursday of each month. Our group has been going strong for over three years and we welcome new members to join us for fun and friendship!
Coffee on the USOD!
Chipotle Mexican Grill, 899 N. Court Street, Medina, Starbucks, 897 N. Court Street, Medina
rsvp to Jamie at 330-220-1045
 
Valley View, Friday 3/19 7pm
It's YOU time! Join us the third Friday of each month as we wind down the week at Yours Truly sharing stories, smiles, and appetizers courtesy of USOD! Give yourself a break from cooking and save room for dinner, too.

We know it can be a little uncomfortable to meet new people. Feel free to bring a friend for support. We want you to come...and to come back! Hope to see you there!
Yours Truly Restaurant
8111 Rockside Rd. Valley View, OH - mapquest
rsvp to laura@usod.org
Need USOD Parents for Focus Groups on Starting a Down Syndrome Clinic at Rainbow Babies & Children's Hospital
rainbow babies hospital
USOD & Rainbow Babies Partnership
Monday, March 29, 2010
 The past several months have been very exciting with discussions between the USOD & Rainbow Babies & Children's Hospital regarding the development of a comprehensive Down syndrome clinic.  We need to structure several focus groups of USOD parents to meet with the doctors & staff involved, so that our communities needs can be met with the highest level of quality & compassionate care. The primary physicians involved are Drs. Holan, Hoyen & Roizen.

The day is Monday, March 29, 2010 for three time slots:
11:00 Individuals with Complex Needs
12:00 Children Ages Birth to 6
 1:00  Ages 7 & up

We need your support & priceless information to help create a resource for our entire community.  Please email robin@usod.org if you are interested & available to in participate and can ensure that you have proper childcare available.  We have 6 slots for each timegroup so please rsvp as soon as possible.  Thanks for stepping forward to help drive the future!
Managing Risky Behavior in Teens
Your Teen Magazine
Thursday, April 8, 2010, 7:30 pm Bellefaire JCB, Wuliger Center
22001 Fairmount Blvd, Shaker Heights, Ohio
7:30p.m. - 9:00p.m.
Seating available on a first-come, first-served basis.
CEU credits available - more information click here

Featured speakers:
Michael Griffith - Principal, Shaker Heights High School
Kenya L. Harrington - Principal, Charles F. Brush High School
Robert Hardis - Principal, Beachwood High School
Kim Wheeler - Moderator 

Your Teen Magazine is a fabulous & informative Cleveland Magazine presenting relevant & inspiring topics on Our Teens! 
How do I get Extended School Year services for my child?
iep Ohio Legal Rights Service  Extended school year (ESY) services are special education and related services that are provided by the school district beyond the traditional school year, usually during the summer. Your school district should provide ESY services to a child with disabilities if the services are necessary for the child to receive a free appropriate public education (FAPE).

Your child does not have to lose skills in order to qualify for ESY services. The school district can provide ESY in a variety of ways but the services must be provided at no cost to parents. The decision about ESY eligibility is made by your
child's IEP team. A child who has received ESY services in a previous year is not automatically entitled to those services the following year. Although ESY services may be difficult to get, the suggestions below can help you. read on....
2010 USOD Annual Meeting - Learn, Link & Laugh
announcement Tuesday, April 13, 2010 7:00 pm
With great excitement the USOD Board of Directors and staff wishes to invite our community to the 2010 Annual Meeting on  This will be a free wine & dessert sampling and promises to be a great night where everyone can LEARN about the exciting goals, 2009 performance and updates for the USOD and our community, LINK with friends, both old and new, and LAUGH to the inspirational comedian and musician Dan Kulp. YOU MUST BE OVER 21 TO ATTEND.

An evening for parents, grandparents, siblings, self-advocates, and extended family and friends of people with Down syndrome!

Dan Kulp will share his childhood story from the 1970's as a sibling of four brothers and sisters who have Down syndrome, three of whom were adopted. Dan will also share his adult experiences in raising two children, Simon & Danielle, who were both adopted from China and both have Down syndrome. Through humorous and profound stories, Dan shares lessons learned from his upbringing about tolerance for the disabled, acceptance of those who are "different" and the joy of adoption.

This event is free. Seating is limited so please reserve your seat & glass of wine today! Register Today
Reading & Math Enrichment Support
downsedusa 4 Part Parent Pilot Series
Up Side of Downs is excited to offer a 4 part parent training series for a hands-on enrichment program for reading and math. The Learning Program is based on over 30 years of research that has been conducted in England (www.downsed.org).  register today

There will be four sessions which will take place on Wednesday evenings at 7:00 pm and last approximately 1.5 hours. The cost for the series is $40 which includes all materials. Attendance at all four sessions is mandatory.
Dates are as follows:
April 14     May 5
   May 26      June 14

For more information, contact Gina Mitchner, USOD education coordinator at gina@usod.org
Location: 1st class only at the Cleveland Clinic Community Center in Beachwood.
Register Online - Spring Pilot Program
USOD Spring Math Conference for Educators & Parents
Teaching Math
April 19th & 20th Online Registration - click here

DeAnna Horstmeier, an experienced educator, was inspired to develop a program (and consequently a book) for teaching math skills by observing the difficulty her adult son with Down syndrome and his roommates had in applying math skills to everyday life. Its success lies in capitalizing on the visual learning strengths of these learners and using manipulative, games and activities to teach and maintain motivation for learning math. Topics will include:
 
*** Number Sense & Recognition *** Calculator Skills Recognizing & Writing Numerals *** Counting Time *** Measurements Place Value *** Addition & Subtraction Money *** Percents ***

Monday, April 19, 2010 6:00 - 9:00pm
Independence Civic Center, 6363 Selig Dr, Independence - mapquest

Tuesday, April 20, 2010 9:00 am-12:00pm
Co-Sponsored with the Beachwood Board of Education
24601 Fairmount Blvd., Beachwood, OH - mapquest

$20 professionals, $5 USOD parents (CEU's Pending)
 
Her books will be available for pre-order at a $10 discount!
 
Event Flyer Monday 19th - Horstmeier_Flyer_Math_4-19-10.pdf
Event Flyer Tuesday 20th - Horstmeier_Flyer_Math_4-20-10.pdf

You MUST register in advance on-line or through the office -
2010 Spring Math Conference Registration
USOD Bowling Buddies! This Sunday
potw1-27-10Let's celebrate just a few weeks of winter to go! We have reserved four lanes at Freeway Lanes in Solon. All bowlers are asked to wear their Buddy Walk shirts if they have them. What better way to spend a cold Sunday afternoon than with your Bowling Buddies! 
 
Mark your calendar for 2-4pm on the following dates: 
March 28
April 11 and 25th

Price:  Individuals with Ds are free. All others pay $3.95 per game, all with complementary shoes. 
Freeway Lanes
33185 Bainbridge Road Solon, OH 44139 - mapquest
Please rsvp to USOD office
"Sibling Issues: Parenting Brothers and Sisters
of Siblings With Special Needs"
Tuesday, March 23rd, 2010 Shaker Family Center
Sign-In: 6:15 PM to 6:30 PM
Program: 6:30 to 8:00 PM
Shaker Family Center
19824 Sussex Road, Shaker Heights
-FREE CHILDCARE PROVIDED BUT SPACE IS LIMITED-
-*Registration IS required, BY March 18th-
Debi Donelan, Developmental Specialist with the Achievement Centers for Children and the sister of an adult with special needs, will lead a discussion about the concerns and opportunities frequently experienced by brothers and sisters of siblings with special needs. Debi will share her experience in her own family as well as talk about what researchers, clinicians and other siblings say about growing up in a family with special needs. Parents will also have an opportunity to share what they've observed in their families. Parents will learn about strategies for helping siblings deal with their concerns as well as maximize the positives in developmentally appropriate ways.To register, send an email to sfc05@sbcglobal.net, or call Family connections at 216-921-2023.
Adaptive Swimming & Basketball Programs 
JCC of Beachwood
 Starting April for 8 Week Sessions Basketball & Swimming
Thinking of Summer Yet?
summerSUMMER ACTIVITIES & ACTION
1) Summer Directory from the 2010 Summer & Beyond Conference last week - Directory

2) From Peak Potential Therapy
SMILE Summer Camp - Therapeutic, Community Based Day-Camp
Camp Sunshine - Recreational, Center Based Day-Camp http://www.peakpotentialtherapy.com/sunshine.html
Camp ABC™ - Social Developmental Play Skills Camp for Pre-Schooler http://www.peakpotentialtherapy.com/campABC.html

3) Camp Paradise - Medina County

4) Achievement Centers for Children - Camp Cheerful,  Summer Camp Programs for Children and Adults with Disabilities

5) Disney World & Travel Mouse Aide at Walt Disney World - fun summer tips for travel
Adult Transition Planning Seminar - Three Part Series
ccbdmrdd
Every family has many questions about their children's future, but they're of even greater importance for parents whose sons and daughters have a developmental disability. Whether your son or daughter is a child or an adult, it's time NOW to plan for the future.

· Public-Private Partnerships · Education ·
· Income Tax Answers · Legal Documents ·
· Funding and Management · Eligibility Questions ·
· Waiting List · Waivers · Reviewing Your Existing Plan ·

Spring 2010
Rocky River Adult Activities Center, 20120 Detroit Road 1490 East 191st Street, Wed., April 14, 21 & 28, 2010
Fall 2010
Euclid Adult Activities, 1490 East 191st Street Wednesdays, Sept. 29, Oct. 6 and 13

Cost is $50 for cost of materials. 
*** USOD will reimburse $25 after completion of course and submission of registration to the office *** 
flyer & registration
Moscow woman finds fame as spokeswoman for Down syndrome
moscow article
stacy brown, March 14, 2010 Sara Wolff once told her grandmother she'd be famous.

Her grandmother encouraged her but still reminded Ms. Wolff of the pitfalls of fame.
One of those pitfalls could be a simple error, her grandmother would tell her. As the spokeswoman for National Down Syndrome Society, Ms. Wolff has experienced one of those errors.

The Moscow resident is featured in advertisements in Allure, Glamour, Vogue and other national magazines and has been the primary speaker at events from Scranton to Washington. read on
USOD logo
USOD Mission
To provide support, education, and advocacy for people with Down syndrome, their families and communities.

Vision

The Up Side of Downs is committed to building a community where people with Down syndrome are independent and have the opportunity to reach their fullest potential.

History

In the early 1980's, a handful of parents whose children had Down syndrome began to meet informally over coffee for socialization and support. Nearly thirty years later, with the help of a lot of coffee & caffeine, their vision and hard work has taken the Up Side of Downs from a grassroots parent movement to a staffed nonprofit organization joining over 800 families throughout Northeast Ohio.


We invite you to connect with our with our support community to join us at one of our many programs & services, do research in our comprehensive resource directory, join our on-line family support network, enjoy our scrapbook photo gallery and so much more.

Contact the Up Side of Downs of Greater Cleveland.

The Up Side of Downs of Greater Cleveland
23230 Chagrin Blvd., Suite 640
Cleveland, OH 44122
phone  216.464.USOD (8763)
fax       888.708.USOD (8763)
e-mail   info@usod.org
web      www.usod.org