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Providing support, education, and advocacy for people with
Down syndrome, their families & communities throughout Northeast Ohio


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Issue: 3.1 March 4, 2010
Quick Links
Photo of the Week
potw3-5-10
for more photos - gallery
send new photos to
photos@usod.org

We would like more photos of our wonderful teens & adults. So start clicking away!
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uw Make a Double Difference!
Please consider designating your UW donation to USOD.  Thanks!
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USOD
Board of Directors
Casey Atkinson
David J. Bruening
Allan Buzzelli
Renee Chappell
Denise Cirino
Sandy Donahoe
Scott Eitman
Sue Groszek
Debbie Marks
Katherine E. Schubert
Lisa G. Trifiletti
Ken Vinikoff
Brian J. Weiss, DPM
Vulnerable Targets: Students with Disabilities and Bullying
Federation of Special Needs Children By Janet Vohs, Director of Publications Massachusetts Parent Information & Resource Center (PIRC) Once considered "just part of growing up," today bullying is seen for what it is - cruelty that can be devastating for any child. Studies have shown that children who are bullied are more likely to suffer emotional distress, such as anxiety and depression, as well as do poorly in school. Furthermore, bullying is linked to school violence. read on

bullying3 out of 10 children are estimated to be affected by bullying!
Lots more resources for parents & educators  click here
USOD Programming Committee Meeting - Cancelled
meeting cancelled March 9, 2010 We need to postpone the meeting, an updated day & time will be announced.  Feel free to contact Robin at the office if there is a program or interest you want recommend in the mean time.
USOD Bowling Buddies!
potw1-27-10Let's celebrate just a few weeks of winter to go! We have reserved four lanes at Freeway Lanes in Solon. All bowlers are asked to wear their Buddy Walk shirts if they have them. What better way to spend a cold Sunday afternoon than with your Bowling Buddies! 
 
Mark your calendar for 2-4pm on the following dates: 
March 14 and 28
April 11 and 25th

Price:  Individuals with Ds are free. All others pay $3.95 per game, all with complementary shoes. 
Freeway Lanes
33185 Bainbridge Road Solon, OH 44139 - mapquest
Please rsvp to USOD office
Thinking of Summer Yet?
summerSUMMER ACTIVITIES & ACTION
1) Summer Directory from the 2010 Summer & Beyond Conference last week - Directory

2) From Peak Potential Therapy
SMILE Summer Camp - Therapeutic, Community Based Day-Camp
Camp Sunshine - Recreational, Center Based Day-Camp http://www.peakpotentialtherapy.com/sunshine.html
Camp ABC™ - Social Developmental Play Skills Camp for Pre-Schooler http://www.peakpotentialtherapy.com/campABC.html

3) Camp Paradise - Medina County

4) Achievement Centers for Children - Camp Cheerful,  Summer Camp Programs for Children and Adults with Disabilities

5) Disney World & Travel Mouse Aide at Walt Disney World - fun summer tips for travel
World Down Syndrome Day - March 21, 2010

World Ds Day








4 Ways To Celebrate World Down Syndrome Day
Down Syndrome International (DSI) has officially earmarked 21 March as World Down Syndrome Day (WDSD). The date was chosen to signify the uniqueness of Down syndrome in the triplication (trisomy) of the 21st chromosome and is used synonymously with Down syndrome.

1. Join the 21 Days of 21 Quotes by 21 People with Trisomy 21 in Celebration of World Down Syndrome Day
Sign up for the 21 Days email list so that you get the quote of each day from individuals with Down syndrome from March 1 to 21 2010. Check the box at the bottom of the list that says "21 Quotes for 21 Days." - click here

Quote 4 of 21, March 4, 2010 Today's Quote
 "Can I say one more thing really fast?
I am here to prove people with disabilities
can have a normal life and live it
and that's what I am here to prove"
 
 Brent K. Banford Age: 27years
(Brent spontaneously made this remark to the judges after his audition for the TV reality show SO YOU THINK YOU CAN DANCE. It was aired on May 28, 2008.)

2010 WDSD tshirt2. Wear your WDSD t-shirt designed by Kevin T from Northern Kentucky. Contact the USOD to see if we have extras....



St. Patrics Day3. March together with USOD in the Akron St. Patricks Day Parade to celebrate & share! St. Patrick's Parade to be held on Saturday, March 13, 2010 at 12:00 Noon on South Main St. in downtown Akron, with an after parade party full of great food, music & Irish Dancing. Please email USOD parent Kay Schubert for more details.

DDDSD logo4. Host a Dress Down for Down Syndrome Day (on any day!) A great way to promote awareness and raise funds for USOD. See info here in this newsletter or contact the USOD office.

Tickets Available On-Line - Get Yours Today!
2010 RR Logo 
A Great Evening with the Up Side of Downs Raffle



~ $4,000 Main Board Prize ~
~ Side Board & Raffle Sales Begin 6:00 p.m. ~
~ Wide Variety of Chinese Auction Baskets ~
~ Cocktails & Hors D'oeuvres ~
~ Extensive Buffet w/Carving Station ~
~ Entertainment Provided by Marino Brothers ~

RR Invitation

Order Your Tickets On-line Today -
Click Here for 2010 USOD Reverse Raffle Tickets!


Our Chinese Basket Donors Make it All Possible! 
Take a peak at this year's list so far.  Please support our Donors & give them a huge THANK YOU!  RR Corporate List update 3-1

Last chance
to submit photos for the Raffle photo video!  Email photos by Friday March 5th.
An Easy Way to Support USOD Each Day!
 Capital oenUSOD Credit Card Turn your everyday spending into meaningful donations, with our USOD custom credit card. USOD receives 1% cash donations from Capital One for EVERY purchase you make-plus a $50 first purchase bonus-will be donated to our organization.  Apply today on-line & make a difference doing what you do each day.  Apply here...

***ROBIN - I got one for myself & my husband & $100 was donated after our first swipe!!!! ***
TapToTak
Tap to talk Make that Nintendo Useful! TapToTalk is a portable, customizable, affordable, socially acceptable communication solution for non-verbal children with autism, apraxia, Down Syndrome, or any other speech disorder.
The TapToTalk Nintendo App turns a Nintendo DS, DSi or DS Lite into an augmentative and alternative communication (AAC) device. Learn more here.
OCALI - Literacy Workshop in Valley View, Ohio
OCALI Workshope March 18th 
 Brochure & Registration info - click here
Adult Transition Planning Seminar - Three Part Series
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Every family has many questions about their children's future, but they're of even greater importance for parents whose sons and daughters have a developmental disability. Whether your son or daughter is a child or an adult, it's time NOW to plan for the future.

· Public-Private Partnerships · Education ·
· Income Tax Answers · Legal Documents ·
· Funding and Management · Eligibility Questions ·
· Waiting List · Waivers · Reviewing Your Existing Plan ·

Spring 2010
Rocky River Adult Activities Center, 20120 Detroit Road 1490 East 191st Street, Wed., April 14, 21 & 28, 2010
Fall 2010
Euclid Adult Activities, 1490 East 191st Street Wednesdays, Sept. 29, Oct. 6 and 13

Cost is $50 for cost of materials. 
*** USOD will reimburse $25 after completion of course and submission of registration to the office ***  flyer & registration
SAVE THE DATES - Downs Ed Conference in Cleveland
Downs Ed Banner
November 3-5, 2010
USOD will be hosting the internationally renowned conference from DownsEd International & DownsEd USA.  It will have a two day track for Educators & Speech Pathologists, and one day for Parents.  Go to www.downsed.org for lots of great information about their programming & services.

So stay tuned for more details & most of all
MARK YOUR CALENDARS!
Dr. Suess Story Time, Art Exhibition & Party
Dr. Suess Saturday, March 6th
Please join us for the birthday celebration of Theodor "Seuss" Geisel. National Education Association's "Read Across America" campaign, held in conjunction with Dr. Seuss' birthday will be celebrated on Saturday, March 6, with a 1-6 pm Dr. Seuss birthday party. Come say hello to The Cat In The Hat while enjoying some special refreshments.
Story Reading Times

~1:30pm with Hollie Strano - WKYC-Channel 3 ~ 2:30pm with Jenn Harcher - 19 Action News-WOIO~ ~3:30pm with Joe Arko - Dr. Seuss Painted Frame Artist~
 
Barnes & Nobles along with Dick Kleinman Fine Art Gallery at Eaton Center in Pepper Pike.  (Kleinman Fine Art Gallery is a proud donor to the USOD Reverse Raffle)
Rejoicing Spirits - "No Hush" Service
rejoicing spirits photo Saturday, March 6  5:30 pm The Rejoicing Spirits ministry reaches out to enrich the spiritual lives of individuals with developmental disabilities along with their families, friends and other supportive community members. http://www.rejoicingspirits.org/index.htm

Gloria Dei Lutheran Church 2113 Ravenna St. Hudson OH
For more info call Nora Faul 330-650-6986
Solon Blue Ribbon Family Fun Fest
party hats Saturday, March 6 6:30 pm
It is the 7th year for this fabulously huge party for individuals with special needs, their families and caregivers. Join us as the Solon Community Center transforms, into the St. Patrick's Day themed FUN FESTIVAL. Participate in games, air bouncers, bingo, D.J. dancing, information center, food, drink and the other special attractions of the evening. Remember to wear green. Go to www.solonrec.org for info or to register
For more information or to volunteer contact Kimberly English at 440.248.5747 ext.2114
New Book By USOD Parent Pamela Crouse
Not that different for you Order Yours Today!
A wonderful book with the message that we all want to live & share each day. Click here to order yours & also check out her other book Delightfully Downs with the beautiful photography of our Cleveland kids.
New - IEP Goal Bank 
iep An outstanding bank of goals with wording for IEPs that both professionals and parents. Go to the USOD website for this & other great resources for the IEP process. click here
 
USOD logo
USOD Mission
To provide support, education, and advocacy for people with Down syndrome, their families and communities.

Vision

The Up Side of Downs is committed to building a community where people with Down syndrome are independent and have the opportunity to reach their fullest potential.

History

In the early 1980's, a handful of parents whose children had Down syndrome began to meet informally over coffee for socialization and support. Nearly thirty years later, with the help of a lot of coffee & caffeine, their vision and hard work has taken the Up Side of Downs from a grassroots parent movement to a staffed nonprofit organization joining over 800 families throughout Northeast Ohio.


We invite you to connect with our with our support community to join us at one of our many programs & services, do research in our comprehensive resource directory, join our on-line family support network, enjoy our scrapbook photo gallery and so much more.

Contact the Up Side of Downs of Greater Cleveland.

The Up Side of Downs of Greater Cleveland
23230 Chagrin Blvd., Suite 640
Cleveland, OH 44122
phone  216.464.USOD (8763)
fax       888.708.USOD (8763)
e-mail   info@usod.org
web      www.usod.org