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Is A USOD Event Still On?
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 If the weather is bad, check www.wkyc.com & see if the USOD is listed for a cancellation.
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Photo of the Week
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for more photos - gallery
send new photos to
photos@usod.org |
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Designate USOD
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 Make a Double Difference!
Please consider designating your UW donation to USOD. Thanks!
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Join Our List
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USOD
Board of Directors |
Casey
Atkinson
David J. Bruening
Allan Buzzelli
Renee Chappell
Denise Cirino
Sandy Donahoe
Scott Eitman
Sue Groszek
Debbie Marks
Michele C. Raia
Ann Regan
Katherine E. Schubert
Lisa G. Trifiletti
Ken Vinikoff
Brian J. Weiss, DPM
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Only 9 Days To Go!
Help Feature USOD in PEOPLE Magazine
& Develop Our First Playroom
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Currently We Are In 4th Place!
(we have dropped & need to stay in the top five)
Each Day Vote, Post & Share!
We are so excited the Up Side of Downs has been
selected out of 5,000 applicants down to the final 50 in the Clorox Power a
Bright Future program. We would receive a $10,000 grant and a feature in PEOPLE magazine.
Everyone can vote
once every 24 hours for the USOD through January 17, 2010. Please follow the link to
facebook (sign up for an account if you need to.) Then vote for us every
day and spread the word to all of your friends & family.
Please don't hesitate to contact the USOD office with any questions, media contacts, suggestions or to help volunteer to spread the word.
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USOD Family Fun Day at the Rock & Roll Hall of Fame
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Sunday, January 10, 2010, 10am - 3pm
Bring your family and friends to the Rock and Roll Hall of Fame and
Museum to experience the music that changed the world. Discover rock
and roll history from the past, to the present as you explore seven
levels, five movie theaters, thousands of artifacts and numerous
interactive listening stations. Full Event Details....
Cost:
Individuals with Down Syndrome - FREE
Children Ages 8 & Under - FREE
Family & Guests - $5 (discounted from $18 courtesy of USOD)
Registration Deadline: Must pre-register online
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Stepping Forward to Help USOD
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 USOD Volunteer Site Updated!
We have lots of opportunities throughout the year to help USOD and have fun at the same time!
We need volunteers to step forward & sign up to host playgroups & lectures, make events spectacular and join committees to help direct & guide both the USOD and our vibrant community.
This Week:
USOD Office for Mailing Party
Monday Jan. 11th 10:00 am with lunch - mapquest
Development Committee Tuesday Jan. 12th 7:00 pm
Cleveland Clinic Independence - mapquest
For more information please visit the USOD Volunteer Page to register or contact the office at 216-464-8763 or info@usod.org
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Ladies Night Out - Medina
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 Thursday, January 14, 2009
Grab a bite at Chipotle and bring it next door to Starbucks for coffee,
conversation, and cameraderie on the second Thursday of each month. The
coffee's on USOD!
Chipotle Mexican Grill, 899 N. Court Street, Medina
Starbucks, 897 N. Court Street, Medina - mapquest
Please rsvp to Jamie Varga
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Ladies Night Out - Valley View
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Friday, January 15 7:00 pm
It's YOU time! Join us the third Friday of each month as we wind down
the week at Yours Truly sharing stories, smiles, and appetizers
courtesy of USOD! Give yourself a break from cooking and save room for
dinner, too.
We know it can be a little uncomfortable to meet new people. Feel free
to bring a friend for support. We want you to come...and to come back! Hope to see you there!
Yours Truly Restaurant
8111 Rockside Rd. Valley View, OH - mapquest
Please rsvp to Laura Skwarski
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New NIH Publication on Celiac Disease
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www.celiac.nih.gov
The incidence of celiac disease in children with Down syndrome ranges from 10% to
16%. One reason children with Down syndrome have this disease is
because of increased susceptibility to auto-immune diseases. In
children with Down syndrome who are genetically predisposed to celiac
disease, exposure to gluten causes an immunologic reaction in the
lining of the small bowel resulting in flattening and thinning of the
normal hair like projections (villi) of the lining. This is the part of
the intestine which is the absorptive surface of the small bowel.
Link to NIH article - 2009 NIH Publication on Celiac Disease
Additional info is on the USOD website - Celiac Disease
For moreinformation about Celiac Disease, please visit the Celiac Sprue Association at www.csaceliacs.org
Visit www.glutenfreechecklist.com
for yummy gluten-free recipes.
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Potty Training - Article & Education Seminar
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 BACK BY POPULAR DEMAND!Monday, January 18 7:00 pm
Jennifer Smith, Behavior Curriculum Specialist for CCBDD, returns for a
second time to present her much-requested topic, "It's Time To Go!
Understanding Your Child's Needs While Teaching Them To Use The
Bathroom."
Participants will receive information on toilet training readiness,
strategies for success,visual supports, family participation, and
coping strategies. This lecture will address toilet training needs
across a wide range of ages and challenges. Learn more about Jennifer Smith Cleveland Clinic Beachwood, Conference Room D 26900 Cedar Road, Beachwood, OH 44122 - mapquest
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Shining Diamonds Parent Group - New
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 Tuesday, January 19th 7:00 pm
We invite you to join other parents, grandparents, and caregivers of
children and adults with Down syndrome and an alphabet soup of complex
needs. While each multi-facted shining diamond is unique, supporting
our loved one has led us to a common place. We have much to teach each
other!
Only by talking to each other, comparing notes,
and laughing are we able to help our carefully sculpted
diamonds truly shine and show off their "bling". Cleveland Clinic Community Room A 5001 Rockside Road Independence, OH 44131 - mapquestTo rsvp or for more information contact Sue Groszek
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Baby & Toddler Group - Highland Hills
*** New Day & Time ****
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 Wednesday, January 20 @6:30 pm
Join other moms, dads, babies & small siblings for a fun time to
hang out, chat & play.
Free.
Grandparents & siblings are welcome!!!!
Achievement Centers for Children
4255 Northfield Road Highland Hills, 44128 - mapquest
rsvp to usod office or 216-464-8763 or
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USOD Bowling Buddies!
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 Sunday, January 24, 2:00 pm
Sunday Bowling is back!
Let's celebrate just a few weeks of winter to go! We have reserved
four lanes at Freeway Lanes in Solon. All bowlers are asked to wear
their Buddy Walk shirts if they have them. What better way to spend a
cold Sunday afternoon than with your Bowling Buddies!
Mark your calendar for 2-4pm on the following dates:
Jan. 24th
Feb. 14 and 28th
March 14 and 28
April 11 and 25th
Price: Individuals with Ds are free. All others pay $3.95 per game, all with complementary shoes.
Freeway Lanes
33185 Bainbridge Road Solon, OH 44139 - mapquest
Please rsvp to USOD office
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FREE Health Club Membership & Fitness Programming for 3 Months for Adults in Cuyahoga County
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 go!Fit Greater Cleveland Challenge
Starting January 1, 2010, the go!FIT program will provide three months
of free access to fitness and nutrition programs to adult Cuyahoga
County residents, including free access to fitness facilities, weight
management programs and educational events.
Go to the Go!Fit website for full details
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Creative Movement Center
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 Adaptive Dance Classes - Great Fun!
Preschool, School
Age &
Teenage Girls Classes
Cost: $45 /
month
Creative Movement Center
203 East Royalton Road SUITE 110
Broadview Heights OH 44147
www.creativemovementcenter.com winter flyer
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Research Focuses on Helping Parents Adjust to Down Syndrome Diagnosis
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Researchers are working to develop support information and
resources for parents of children with Down syndrome and the
professionals who work with them.
Written by Cory Chandler
The survey requires about 30-45 minutes to complete. Parents of children or adults with Down syndrome may participate. Click here for info
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USOD Mission
To provide support, education, and advocacy for people with Down syndrome, their families and communities.
Vision
The Up Side of Downs is committed to building a community where
people with Down syndrome are independent and have the opportunity to
reach their fullest potential.
History
In the early 1980's, a handful of parents whose children had Down
syndrome began to meet informally over coffee for socialization and
support. Nearly thirty years later, with the help of a lot of coffee
& caffeine, their vision and hard work has taken the Up Side of
Downs from a grassroots parent movement to a staffed nonprofit
organization joining over 800 families throughout Northeast Ohio.
We invite you to connect with our with our support community to join us at one of our many programs & services, do research in our comprehensive resource directory, join our on-line family support network, enjoy our scrapbook photo gallery and so much more.
Contact the Up Side of Downs of Greater Cleveland.
The Up Side of Downs of Greater Cleveland
23230 Chagrin Blvd., Suite 640
Cleveland, OH 44122
phone
216.464.USOD (8763)
fax 888.708.USOD (8763)
e-mail
info@usod.org
web www.usod.org
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