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Photo of the Week
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for more photos - gallery
send great photos to
photos@usod.org
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Designate USOD
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 Make a Double Difference!
Please consider designating your UW donation to USOD. Thanks!
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Join Our List
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USOD
Board of Directors |
Casey
Atkinson
David J. Bruening
Allan Buzzelli
Renee Chappell
Denise Cirino
Sandy Donahoe
Scott Eitman
Sue Groszek
Debbie Marks
Michele C. Raia
Ann Regan
Katherine E. Schubert
Lisa G. Trifiletti
Ken Vinikoff
Brian J. Weiss, DPM
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We Need Your Vote Today & Everyday 'till Jan. 17th!
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Currently We Are In 4th Place!
(we have really dropped & need to stay in the top five)
We need a Rally from all of our
USOD Families & Friends!
Each Day Vote, Post & Share!
We are so excited the Up Side of Downs has been
selected out of 5,000 applicants down to the final 50 in the Clorox Power a
Bright Future program. We would receive a $10,000 grant and a feature in PEOPLE magazine.
Everyone can vote
once every 24 hours for the USOD through January 17, 2010. Please follow the link to
facebook (sign up for an account if you need to.) Then vote for us every
day and spread the word to all of your friends & family.
We will be launching a campaign seeking 400,000 votes for the Clorox Power a
Bright Future program to represent the 400,000 people with Down syndrome
in the United States. To help with this project, join our "group", the Up
Side of Downs, on facebook so we can send out a reminder to you to vote each day.
Please don't hesitate to contact the USOD office with any questions, media contacts, suggestions or to help volunteer to spread the word.
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Grandparents Group
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 Monday, January 4, 2010 @10:00 am
Get together for great conversation, support & friends. Since the
last meeting overwhelmed the Starbucks we are moving to a larger space
at the Cleveland Clinic Community Room. USOD will bring coffee &
pastries. Free. 5001 Rockside Road, Independence. mapquest
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Baby & Toddler Playgroup
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 Monday, January 4, 2010 6:30 pm
Great time will be had by all moms, dads, babies & small siblings.
Come hang, chat & play. Feel free to bring blankets and small toys.
Free.
Grandparents are welcome!!
Achievement Centers for Children, Camp Cheerful
15000 Cheerful Lane, Strongsville, OH - mapquest
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Karaoke - Teens & Young Adults
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 Wednesday, January 6, 2009 6:00 pm
A great time will be had by all!
Toth's Place - 6966 Heisley Road, Mentor, OH (behind Speedway Gas Station and Goodwill, by Heavenly Ham440
974 1390). $5 per person.
For more info call Rae Kinnaird at (440) 944-8852
First Wednesday of Every Month
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USOD Family Fun Day at the Rock & Roll Hall of Fame
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Sunday, January 10, 2010, 10am - 3pm
Bring your family and friends to the Rock and Roll Hall of Fame and
Museum to experience the music that changed the world. Discover rock
and roll history from the past, to the present as you explore seven
levels, five movie theaters, thousands of artifacts and numerous
interactive listening stations. Full Event Details....
Cost:
Individuals with Down Syndrome - FREE
Children Ages 8 & Under - FREE
Family & Guests - $5 (discounted from $18 courtesy of USOD)
Registration Deadline: Must pre-register online or send your information & payment to the USOD office by Wednesday, January 6, 2010.
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Potty Training - Article & Education Seminar
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Potty Training Children with Special Needs
by Vincent Iannelli, M.D.
While parents often complain of difficulty potty
training their children, for most families, potty training is a fairly
easy experience. Even when there are problems or children show signs of
potty training resistance, usually they will eventually become potty
trained.
However, this is not always the case for children
with developmental delays or disabilities, such as autism, Down
syndrome, mental retardation, cerebral palsy, etc. Children with
special needs can be more difficult to potty train.
Most children show signs of physical readiness to
begin using the toilet as toddlers, usually between 18 months and 3
years of age, but not all children have the intellectual and/or
psychological readiness to be potty trained at this age. It is more
important to keep your child's developmental level, and not his
chronological age in mind when you are considering starting potty
training. read on
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BACK BY POPULAR DEMAND!Monday, January 18, 2010 7:00 pm
Jennifer Smith, Behavior Curriculum Specialist for CCBDD, returns for a
second time to present her much-requested topic, "It's Time To Go!
Understanding Your Child's Needs While Teaching Them To Use The
Bathroom."
Participants will receive information on toilet training readiness,
strategies for success,visual supports, family participation, and
coping strategies. This lecture will address toilet training needs
across a wide range of ages and challenges. Learn more about Jennifer Smith Cleveland Clinic Beachwood, Conference Room D 26900 Cedar Road, Beachwood, OH 44122 - mapquest
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2010 USOD Calendar!
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 Order Yours Today!
We are so excited to launch a 2010 USOD calendar for our members, families & communities. It is chock full of our programming for 2010, information about the USOD & Down syndrome & tons of photos of our wonderful kids. These are the perfect gifts for relatives, teachers, therapists and anyone who works, cares & supports our children & community! Take a sneak previewThey are just $10 each, with a $2 postage fee, & can be ordered securely online, here is the 2010 Calendar order form to mail or email order in or by contacting the office. |
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Stepping Forward to Help USOD
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 Things to Check Out!
Holidays are a wonderful time to enjoy your family & friends. They can also be a great time to step forward and get involved in your community. The USOD is looking for volunteers to come forward to get 2010 started with a bang. Think about for the next two weeks:
- Computer work in the office or your home
- Web research work for media outlets & also donations, services or packages for the Reverse Raffle.
- Mailings for upcoming events
- Hosting a parent support group, play date or education get together
Upcoming meetings include the:
Reverse Raffle Planning Committee Tuesday Jan. 5, 2010
Development Committee Tuesday Jan. 12, 2010
Please contact the office at 216-464-8763 or info@usod.org
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Research Focuses on Helping Parents Adjust to Down Syndrome Diagnosis
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Researchers are working to develop support information and
resources for parents of children with Down syndrome and the
professionals who work with them.
Written by Cory Chandler
The survey requires about 30-45 minutes to complete. Parents of children or adults with Down syndrome may participate. Click here for info
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USOD Mission
To provide support, education, and advocacy for people with Down syndrome, their families and communities.
Vision
The Up Side of Downs is committed to building a community where
people with Down syndrome are independent and have the opportunity to
reach their fullest potential.
History
In the early 1980's, a handful of parents whose children had Down
syndrome began to meet informally over coffee for socialization and
support. Nearly thirty years later, with the help of a lot of coffee
& caffeine, their vision and hard work has taken the Up Side of
Downs from a grassroots parent movement to a staffed nonprofit
organization joining over 800 families throughout Northeast Ohio.
We invite you to connect with our with our support community to join us at one of our many programs & services, do research in our comprehensive resource directory, join our on-line family support network, enjoy our scrapbook photo gallery and so much more.
Contact the Up Side of Downs of Greater Cleveland.
The Up Side of Downs of Greater Cleveland
23230 Chagrin Blvd., Suite 640
Cleveland, OH 44122
phone
216.464.USOD (8763)
fax 888.708.USOD (8763)
e-mail
info@usod.org
web www.usod.org
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