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Host a Dress Down for Down Syndrome Day
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We are looking for companies,
schools & individuals across Northeast Ohio to help celebrate Down Syndrome Awareness.
It is a fun, rewarding day that benefits individuals with Down syndrome and their families & community.
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Designate USOD
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 Make a Double Difference!
Please consider designating your UW donation to USOD. Thanks!
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Join Our List
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USOD
Board of Directors |
Casey
Atkinson
David J. Bruening
Allan Buzzelli
Renee Chappell
Denise Cirino
Sandy Donahoe
Scott Eitman
Sue Groszek
Debbie Marks
Michele C. Raia
Ann Regan
Katherine E. Schubert
Lisa G. Trifiletti
Ken Vinikoff
Brian J. Weiss, DPM
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USOD Podcasts From Parent Lecture Series Now On-line
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 Missed it? No Problem!
USOD Parent Jon Chmura has been wonderful in helping us to edit & upload the USOD Parent Lectures series on-line.
We have our first two on-line so far:
Bridget Murphy Conference - Practical Solutions for Educating Children with Down syndrome from Sept 2009
Lydia Troyha - Sexuality 101 August 2009
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Children's Playgroups - East-side & Medina
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 Monday, Nov. 16th
Join other moms, dads, babies & small siblings for a fun morning to
hang out, chat & play. Feel free to bring blankets and small toys.
Free.
Grandparents are welcome!!!!.
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Appropriate, Not Best
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"Appropriate" is the magic word when asking for school services By Terri Mauro, About.com
We all want what's best for our child. We want the school to do what's
necessary to create a perfect learning environment. And chances are,
you've heard an administrator promise regular-education parents the
best and the perfect and the ideal when it comes to their children's
educations. But when you're sitting in a meeting seeking a particular
placement, therapy, accommodation, or modification for your child in
special education, "best" and "perfect" and "ideal" are the last words
you want to use. continue article.....
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Mom's Night Out - Valley View
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 Friday, November 17th
It's YOU time! Join us the third Friday of each month as we wind down
the week at Yours Truly sharing stories, smiles, and appetizers
courtesy of USOD! Give yourself a break from cooking and save room for
dinner, too.
Hope to see you there!
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Holiday Party - Pre-Registration Needed by 12-6
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6:00 pm - 9:00 pm
Come One Come All to the 2009 USOD Holiday Party!
This year we are very excited for the generous support of Lowe's's Greenhouses & Santa's Hideaway Hallow to present a wonderful holiday party for our USOD children, families & grandparents!!!
This even is open to all of our USOD families and absolutely FREE!
We are going to have our quieter activities the first half
of the evening with the wonderful talents of the bubble lady, wandering
entertainers, the Amazing Puppet Theater Company, tons of great crafts
& more. The second half of the evening we will be rockin out and
having a great time to the spining of Brian Kazy, our dance troupe and
so much more.
Santa will be there so remember your camera & wish lists!
Pre-registration is required by December 6th. Click Here |
Special Needs & Divorce
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 Pegi Price
What are
the top 10 parents with special needs children need to know when
divorcing?
1. Should I get a divorce or stay in a bad
marriage?
2. If I decide to get a divorce, what should I
do?
3. How can I find a good divorce lawyer?
4. What can I expect?
5. What information do I need to get for my
lawyer?
6. What happens during a divorce? How
does a divorce case go through the courts?
7. How is my case different from other divorce
cases?
8. How much child support will I get?
9. How much alimony/maintenance will I get?
10. How should we decide physical custody and
visitation?
This new
website, www.PegiPrice.com provides downloadable information on all these subjects.
The information is written by Pegi Price, a divorce lawyer who is also
the mother of a son who was diagnosed with autism when he was 3 years old.
She is the author of a best-selling law book for judges and
lawyers, The Special Needs Child and Divorce, published by the
American Bar Association in April 2009.
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OCALI Conference
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November 17-19 2009
The primary goal of the 2009 OCALI Conference
is to continue furthering state- and system-wide capacity to improve
programs, implementation, support and overall outcomes for those with
ASD and augmenting these efforts through a renewed focus on
low-incidence disabilities.
Click her for full details
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Calling all artists with Down syndrome!
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FOR WORLD DOWN SYNDROME DAY
STEP ONE: If you are an artist with Down syndrome, create a WDSD TShirt design (www.worlddownsyndromeday.org) by hand or by
computer using your choice of art. Create your design on an 8 ½ x 11 inch piece of bright white paper using a max of four colors. Your design must be your own original unpublished work and must not contain any third-party logos, trademarks or copyright materials.
STEP TWO: Mail your design (without folding it) to DSAGC-T-Shirt Design Contest, 644 Linn Street #1128, Cincinnati, OH 45203 dated by January 10th, 2010
See flyer for full details, rules & PRIZES - WDSD TShirt Contest
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Gaurdianship Workshop in Medina
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 Tuesday, November 17 @ 7:30
Questions about guardianship often arise when a person with a disability reaches the age of 18. Parents, spouses, relatives, friends, advocates, providers,and individuals, want to know what guardianship entails, including how it impacts both the guardian and the ward.
Laura Toth from the Medina Probate Court along with Attorney, Phillip Kaufman will discuss the details of guardianship and answer any of your questions.
medina county university center westfield room · 6300 technology lane call 330.722.1900 for more info
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Breathe - November 20, 2009
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 November 20, 2009
BREATHE Special Needs Respite provides a fun, safe, evening out for families with special needs kids. BREATHE takes place monthly at Fellowship Bible Church in Chagrin Falls.
At BREATHE, kids enjoy
an evening of food, games, and fun while parents and caregivers get a
well-deserved break. Each child attending is paired up with a trained
volunteer for the evening. The best part? BREATHE is FREE!
All children 0-18 years of age are
welcome, along with their siblings. Each guest may participate in as
many activities as he wishes. A quiet room is also available for kids
who prefer peaceful activities with fewer transitions. All special
dietary concerns are accommodated, including gluten free/casein free,
color/dye sensitivities, and standard food allergies. Breathe Website
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Adapted Programming- Winter 2009
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 Lake Metro Parks
Life Center Plus - flyer
Mayfield Heights
SPLASH Swim, Persevere, Learn, Achieve, Have Fun! Flyer
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Down Syndrome: The Importance of Crawling on the Stomach
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Robert J. Doman Jr. and Ellen R. Doman
National Association for Child Development
One of the areas of parental concern for the development of any baby is
the area of mobility. Watching a baby learn to crawl, creep, stand and
walk are thrilling to all parents. As a parent we can see our child
learn to better explore their world and move from dependence to
independence sometimes in the time span of the first year.
As a parent of a DS child, you may have a special concern about your
child's development of mobility. Cardiac conditions can slow down the
emergence and development of mobility. The potential or reality of low
muscle tone and poor tactility can also slow down development in this
area drastically. Parents are often tempted to skip mobility
developmental stages in an effort to reach the coveted skill of walking
more rapidly. The consequences of this strategy can be very long
lasting and impact other developmental areas as well. read on |
USOD Mission
To provide support, education, and advocacy for people with Down syndrome, their families and communities.
Vision
The Up Side of Downs is committed to building a community where
people with Down syndrome are independent and have the opportunity to
reach their fullest potential.
History
In the early 1980's, a handful of parents whose children had Down
syndrome began to meet informally over coffee for socialization and
support. Nearly thirty years later, with the help of a lot of coffee
& caffeine, their vision and hard work has taken the Up Side of
Downs from a grassroots parent movement to a staffed nonprofit
organization joining over 800 families throughout Northeast Ohio.
We invite you to connect with our with our support community to join us at one of our many programs & services, do research in our comprehensive resource directory, join our on-line family support network, enjoy our scrapbook photo gallery and so much more.
Contact the Up Side of Downs of Greater Cleveland.
The Up Side of Downs of Greater Cleveland
23230 Chagrin Blvd., Suite 640
Cleveland, OH 44122
phone
216.464.USOD (8763)
fax 888.708.USOD (8763)
e-mail
info@usod.org
web www.usod.org
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