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Butterfly E-Bulletin - July 12, 2012 
Reporting on News and Events for the Brain Tumor Foundation for Children Follow us on TwitterFind us on FacebookVisit our blog
President Obama Signs Creating Hope Act

According to the Congressional Childhood Cancer Caucus, the Creating Hope Act was introduced to "...incentivize pharmaceutical companies to develop new drugs for rare pediatric diseases, such as childhood cancers, that have not been developed in decades because they are not profitable."


We were excited to learn that, on Monday, July 10, 2012, President Obama signed the Creating Hope Act as part of the Food & Drug Reauthorization Act of 2012!  Click here to read more.

Drug used to treat glioblastoma goes to Phase II trial

While glioblastoma is a type of brain tumor typically seen in males over the age of 50, many children are also affected by this type of brain tumor.


Click here to learn more about lucanthone, a new drug for the treatment of glioblastoma. 

Jack's Butterfly Bonanza

Jack's Butterfly BonanzaJoin Jack's Butterfly Bonanza August 24th and 25th at the beautiful Barnsley Gardens. This inaugural event is for the entire family, combining an 18-hole golf tournament, a 2-mile fun walk, a unique auction, and a concert on the lawn featuring Sister Hazel and Emerson Hart of Tonic. Proceeds from Jack's Butterfly Bonanza will go towards the Jack Gardner Memorial Fund to support BTFC's Butterfly Fund. To purchase tickets and learn more, visit

Tumor Trooper Run/Walk!
Plans are coming along for the 1st Annual Tumor Trooper Run/Walk on September 8th! There's still plenty of time to register, set up a team, start fundraising and/or donate. Visit the Tumor Trooper Run/Walk website to learn more. We look forward to seeing you on Saturday, September 8th.
Corn Mazin' for a Cause!

Cagle's Family FarmWhile most are familiar with Cagle's Family Farm in Canton, GA, BTFC staff didn't become acquainted with the owners until January of this year when we reached out to Cagle's Family Farm to ask a special favor for one of our special kids, Ana Hardt, who was facing the end stages of her battle with brain tumor disease. Thanks to Cagle's and their connections, sweet Ana - a cow lover all her life - was provided the gift of a mini farm in her own front yard for a few hours on a sunny afternoon.


That was just the beginning of Cagle's extraordinary generosity to our BTFC families. This year a portion of the profits earned during their 2012 fall corn maze season will be donated to BTFC! We're SO excited that they are also going to include our logo in the corn maze design AND provide free tickets to our BTFC kids and families.


So, if you haven't been to Cagle's Family Farm or were just thinking about making the trip this year, you DEFINITELY have a great reason to go! And if you come out on Labor Day weekend, you'll see BTFC staff, families and volunteers floating around ALL weekend!

Dates to Remember

August 3rd - 5th, 2012

USSSA Girl's Fast Pitch Softball Tournament -

Aiken, SC - Benefiting Carley's Rays of Hope




August 24th & 25th, 2012

Jack's Butterfly Bonanza -Barnsley Gardens Resort 

Jack's Butterfly Bonanza


September 1st-3rd, 2012

Cagle's Family Farm - Canton

 Cagle's Family Farm



Saturday, Sept. 8th, 2012

Tumor Trooper Run/Walk - Alpharetta




Saturday, Sept. 15th, 2012

Cruisin' for the Kids

Lake Allatoona

Hosted by the Towne Lake Optimist Club 




Saturday, Sept. 29th, 2012

Bone Island Grill Boating Bonanza - Lake Sinclair 



Sunday, Sept. 30th, 2012

SkaterAid - Decatur, GA 

SkaterAid 2011 

Established in 1983 in Atlanta, GA, the Brain Tumor Foundation for Children was the first non-profit organization in the United States to focus on pediatric brain tumor disease. The Foundation's mission is: "To provide financial assistance, social support, and information for families of children with brain and spinal cord tumors; fund research projects that improve treatment options and search for a cure; and raise public awareness of the disease and advocate on behalf of children who are affected." BTFC serves children and families throughout Georgia and the Southeast. Our south Florida chapter, Christina's Kidz, is dedicated to helping Florida families.