Butterfly E-Bulletin - June 24, 2011

Reporting on News and Events for the Brain Tumor Foundation for Children Visit our blog Follow us on Twitter Find us on Facebook 

Brain Tumor Awareness Month 2011...Taking a Look Back

Ask Me About MayEach year thousands of men, women and children are affected by brain tumors and in 2011, BTFC came together with the families we serve to create a "grassroots plan of action" for sharing our children's stories and creating moments for awareness to span the month of May. If you saw our May calendar, you know our Tumor Troopers were VERY busy!


Some parents, in honor or in memory of their child, went to the office of GA Governor Nathan Deal to receive a Proclamation recognizing May 2011 as Brain Tumor Awareness Month in GA. Many logged on to our 

Butterfly Blog each day as we shared the words of our families, to include 9-year-old Noelle who lovingly wrote a tribute to her big brother Nicholas. Several BTFC Mommas enjoyed a few well-deserved hours of "down time" as they laughed, ate and painted. Many attended the 5th Annual A Taste of Hope and were dazzled by a fashion show featuring some truly sassy kiddos. And others just awaited the 3rd Annual BTFC Family Picnic where dunking special friends like Susan Wachler, Social Worker for the brain tumor population at CHOA's Scottish Rite campus, and Dr. Anna Janss, Pediatric Neuro-oncologist at CHOA's Egleston campus, was the highlight of the month.


We thank every parent for submitting a story about their child for the blog (41 total), every person who gave out flyers and newsletters, every young survivor who decided to host a fundraiser, everyone who reached out to their local (and not-so-local) media and every supporter who just took a moment to tell someone that more than 4,000 children will be diagnosed with the leading cancer-cause of death in children this year.


As we continue to support those affected, you can "Ask Us About May" ALL year long!!!

12th Annual Race for Research:  Two Voices...One Vision

BTFC Staff
"We've signed up for Team BTFC. Have you?" 

As explained in our last E-Bulletin, the Brain Tumor Foundation for Children is proud to be joining forces with the Southeastern Brain Tumor Foundation for the 12th Annual Race for Research on July 23 at Atlantic Station. 


We are just four weeks away from this amazing event where families affected by brain tumor disease, no matter the patient's age, will come together to raise needed funds for research and increase awareness! You can join us on TEAM BTFC OR join another team or start a team of your own here!


Take a moment to check out this live interview on 11Alive's Atlanta & Co. featuring Tina Buck, BTFC mom & race committee member, and Jennifer Giliberto, Vice President of the Southeastern Brain Tumor Foundation, as they discuss this exciting event!

12th Annual Fishing Extravaganza

Fishing ExtravaganzaOn Saturday, June 18th, the Marietta Bassmasters hosted their Annual Fishing Extravaganza for BTFC families. Over 20 families enjoyed fishing on the gorgeous property of Julian and Chris Danielly in Loganville, GA. The weather was stellar, the fish were biting, and smiles were all around. The love and generosity of the Marietta Bassmasters members was overwhelming as they raised over $12,000 for BTFC on top of providing this wonderful outing, which is a highlight of the year for our families. A million thanks to Julian and Chris and our many incredible Bassmasters friends! Check the BTFC website soon for photos from the event.

BTFC Car Wash

Come out to Panda Express (2060 Pleasant Hill Road; Duluth, GA) on Saturday, July 9th from 11:00am - 3:00pm and you can get your car washed (for a donation to a GREAT cause) all while you get a little lunch (discounts will be given to those who get flyers from our volunteers)!  


If you'd like to volunteer, please email sherry@braintumorkids.org

7th Annual SkaterAid

SkaterAid 2010 LogoThe 7th annual SkaterAid Skate & Music Festival is set for Sunday, September 25th from 2:00pm - 7:00pm at East Decatur Station in Decatur, GA. This event honors the life of Ian Wochatz while raising money for the Brain Tumor Foundation for Children. To learn more, visit www.skateraid.net.


Volunteer sign-up has begun! If you are interested in taking a shift, please contact Cathy Keeler at ckeeler@emory.edu.

Established in 1983 in Atlanta, GA, the Brain Tumor Foundation for Children was the first non-profit organization in the United States to focus on pediatric brain tumor disease. The Foundation's mission is: "To provide financial assistance, social support, and information for families of children with brain and spinal cord tumors; fund research projects that improve treatment options and search for a cure; and raise public awareness of the disease and advocate on behalf of children who are affected." BTFC serves children and families throughout Georgia and the Southeast. Our south Florida chapter, Christina's Kidz, is dedicated to helping Florida families.