Butterfly E-Bulletin - May 5, 2011

Reporting on News and Events for the Brain Tumor Foundation for Children   Visit our blogFollow us on TwitterFind us on Facebook

May is National Brain Tumor Awareness Month

Did you know that...Ribbon  


  • it is estimated that just over 4,000 children, or approximately 341 children per month, will be diagnosed with a brain tumor this year?
  • because treatment for brain tumors can have long term side effects, most survivors need close medical attention for the rest of their lives?
  • pediatric brain tumors, over the years, have increased in occurrence more than other childhood cancers?

We are working hard here at the Brain Tumor Foundation for Children to raise awareness about this disease that remains the leading cancer cause of death in children. We will not only share information and statistics through our website and social media sites, but we will also feature (at least) one of our amazing children on our blog each day in the month of May. If you haven't already, take a moment to subscribe to the Butterfly Blog, as you won't want to miss the stories of some truly inspirational young people.   



Governor Deal Signs Proclamation 

Eight BTFC families began the month on May 2nd at the State Capitol with the presentation of a proclamation by Governor Nathan Deal designating May as Brain Tumor Awareness Month in Georgia. Click on Calla to see more pictures from the day.





Then it was off to Chateau Elan on May 3rd for the Seventh Annual J. Smith Lanier & Co. Charity Classic, where, with the help of dozens of wonderful sponsors and 300 golfers, $175,000 in net proceeds was raised for BTFC. The stars of the day were our BTFC players seen here (L-R) Matthew, Braden and Kevin, with PGA Golf Professional Johnny Spirolaus (L) and 11Alive News Anchor Ted Hall. Thanks to everyone who played a role in making this event a huge success!



Our May Events don't stop there - here are more:


Saturday, May 7th - Washing Cars & Raising Awareness


15-year-old brain tumor survivor Bailey will be at the Chick-fil-A on Windward Pkwy (5180 Windward Pkwy) in Alpharetta, GA washing cars and raising awareness. Spread the word to family and friends! And if you want to volunteer to help out, email Sherry Samuels.


Wednesday, May 11th - Spirit Night at Chick-fil-A


Chick-fil-AChick-fil-A - Fountains at Miramar, Miramar, FL

Join Christina's Kidz' VP of Operations, Matthew Hernandez, at Chick-fil-A from 5:00 - 8:00 p.m. as he raises awareness of pediatric brain tumor disease. If you don't live in the Miramar area, but know people who do, SPREAD the SPIRIT and tell them to take a break from cooking & have dinner at Chick-fil-A!



Sunday, May 15th - 5th Annual A Taste of Hope

Taste of Hope.wmv
Taste of Hope.wmv


The Metropolitan Club - Alpharetta; 4:00 - 7:00 p.m.

Started in memory of Kendall Johnson who lost his battle with a brain tumor at the age of 3, this is a family-friendly fundraiser for BTFC where attendees will enjoy a variety of (generous) samples from restaurants local to the Alpharetta/Johns Creek area. In addition to the delicious food, there is a silent auction, raffle, kid's activities and jazz band. And new this year, there will be a fashion show featuring BTFC kids. Tickets are just $30 for adults.


Saturday, May 21st - 3rd Annual BTFC Family Picnic

Family Picnic


Morgan Falls Overlook Park - Sandy Springs; 11:30 am - 3:00 p.m.

BTFC Families - Join us for an afternoon of BIG fun where we honor the lives of ALL our precious children, survivors and angels! From face painting, to dunk tanks (who knows who you'll find inside), to games, there is something for the WHOLE family...no matter the age.




Saturday, July 23rd - 12th Annual Race for Research

"Two Voices, One Vision: Sharing Hope Across Generations" 


BTFC Logo (w/sm)SBTF LogoFinally, while not a May event, the Race for Research is an event of great importance for BTFC and the brain tumor cause. Please tell your family, friends and running buddies to join Team BTFC on Saturday, July 23, 2011 at Atlantic Station for the best event of the summer. All funds raised will support brain tumor research. Let's find a cure together!

Established in 1983 in Atlanta, GA, the Brain Tumor Foundation for Children was the first non-profit organization in the United States to focus on pediatric brain tumor disease. The Foundation's mission is: "To provide financial assistance, social support, and information for families of children with brain and spinal cord tumors; fund research projects that improve treatment options and search for a cure; and raise public awareness of the disease and advocate on behalf of children who are affected." BTFC serves children and families throughout Georgia and the Southeast. Our south Florida chapter, Christina's Kidz, is dedicated to helping Florida families.