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| Butterfly E-Bulletin - January, 2010
Reporting on News and Events for the Brain Tumor Foundation for Children | |
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| Greetings! |
We are truly amazed by the many inspiring, delightful children; courageous families; dedicated volunteers; and generous donors who share our vision of hope. Featured here are just a few of those exceptional people, and we invite you to scroll down and meet them! ~BTFC |
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Join us for Christina's Kidz' Florida Fundraising Frenzy! |
 On January 31 BTFC staff will join Christina Reyes in Miami for the ING Miami Half-Marathon as she raises funds for Christina's Kidz, our south Florida chapter. Even if you can't get to Miami, don't miss out on the fun! more |
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Meet Taylor Carver |
 Taylor is a 14-year-old 8th grade home- schooled student diagnosed with a tectal plate glioma at age 6. Since diagnosis, Taylor has done extremely well and stays quite busy - she plays piano (she performed at last year's Flight of the Butterflies honoring Dr. Claire Mazewski!), is a Girl Scout, enjoys photography, loves to cook & knit, and volunteers at her local animal shelter. We recently learned that Taylor is also a poet and are so impressed with the following work we want to share it with our readers:
I sit here in silence as I watch nature bloom.
The trees swaying, the leaves rustling,
is how I hear the tune.
If you know a Super Kid we should feature here, please let us know. |
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Celebrating Life |
 "We have to believe that even the briefest of human connections can heal." Agate Nesaule
BTFC's Celebration of Life Luncheon was established in 2007 to offer families an opportunity for healing connections, even if brief.
Bonded by their child's brain tumor diagnosis and subsequent death... more |
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Kristin Beaucher gets her Christmas Wish |
Kristin Beaucher was just 2 when first diagnosed with a brain tumor. She did well until her tumor progressed in the summer of 2009. When Kristin told her dad, Chris, she wanted him to get a tattoo, they visited ABT Tattoo in McDonough, Georgia, where owners Denise and Todo fell in love with Kristin. They got in touch with their friends in the band Eleven Standing Still, .. more
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24th Annual BTFC Holiday Party Sponsored by NAIFA - Atlanta |
The holiday season cannot begin for many local BTFC families without the indescribable fun found at the annual holiday party sponsored by the National Association of Insurance & Financial Advisors - Atlanta (NAIFA-Atlanta) and organized by Debbie Smith. Laughter, excitement, food and fun...more
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DATES TO SAVE! |
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Sunday, April 18 - "Flight of the Butterflies"  Shhhh, it's a secret... but we will be honoring Debbie Smith.... more
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Tuesday, May 4 - "J. Smith Lanier & Co. Charity Classic"
Introducing the 2010 "Charity Classic Kids" - Sterling, Courtney, Cheyla and Dru.
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Saturday, May 22 - "BTFC 2nd Annual Family Picnic"
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Click here for a complete 2010 calendar. |
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Book Notes |
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Dance When the Brain Says No by Kathleen Price
 "This book chronicles the story of Leslie, an amazing young lady diagnosed with a brain tumor during her first year of college. Eloquently written by her mother... more |
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Families helping families |
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One great way in which our families help each other is through fundraising on Firstgiving.com. As an example, our newest fundraising page honors 11-year-old Taylor Hulsey while helping other kids with brain tumors. Thanks to Taylor's mom Vicki and friend Angie!
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| Delta Phi Epsilon goes all out for "Brian's Battle" |
| In October, 2009, with Kennesaw State University freshman Katie Reilly in the lead, this remarkable group of sorority sisters organized a fundraiser in honor of Katie's high school friend Brian Parks who is battling a brain tumor. Through a bake sale, sale of specially made T-shirts, an auction of 20 baskets filled with items ranging from food to Thrashers tickets, and a raffle that included prizes such as teeth whitening and personal training sessions, these young women raised $1,505! Half of that amount was presented as a gift to Brian and his family and the other half was presented to BTFC (as the charity designated by Brian) to help other kids with brain cancer. We are SO proud of Katie and all of these wonderful and compassionate young ladies for their exceptional efforts and caring spirits. Thank you Delta Phi Epsilon!
Jessica Zecchino, Brian Parks & Katie Reilly Delta Phi Epsilon members celebrate the event's success with Brian
Photos courtesy of Momentum Shots. Click here to see a full gallery of photos from this event. |
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Established in 1983 in Atlanta, GA, the Brain Tumor Foundation for Children was the first non-profit organization in the United States to focus on pediatric brain tumor disease. The Foundation's mission is: "To provide financial assistance, social support, and information for families of children with brain and spinal cord tumors; fund research projects that improve treatment options and search for a cure; and raise public awareness of the disease and advocate on behalf of children who are affected." BTFC serves children and families throughout Georgia and the Southeast. Our south Florida chapter, Christina's Kidz, is dedicated to helping Florida families.
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