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Online Resources Life Before Death is a new web site
developed by the Lien Foundation and the Singapore
Hospice Council. "This
is clearly not a website for anyone who thinks they are immortal. But the mere
mortals amongst you will find lifebeforedeath.com fun, offbeat, wonderfully
weird, insightfully inspiring and even delightfully practical. And why not?
It's all about everyone's least favorite "D" word - Death. It's no
big secret that Death has a bad rep. It is after all the End-of-Life. Boo-hoo.
But now, Death is being re-branded with a new image and attitude. All this to
try and change your mind about this whole Death & Dying thing." See
discussion on Life Before Death and its
companion website, Quality of Death Index, in the Pallimed blog. Learn More >>
United Breast Cancer Foundation is an
educational and advocacy group for people affected by breast cancer. Among other programs, UBCF financially
assists women with breast reconstruction surgery. Learn More >>
Healthy Steps is an exercise/dance
program that has been used to improve fitness in cancer patients and survivors,
including those with lymphedema. Classes are available in several sites in Connecticut. Learn More >>
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Continuing Education
Yale Schwartz Rounds
Schwartz Rounds will resume
September 16th at noon (thereafter
it will be on the 2nd Thursday of the month) in a new
location: Smilow Cancer Hospital
at Yale-New Haven in the Park Street Auditorium. (CME)
Learn More >>
Yale Bioethics Center End of Life Issues Group will resume September 14th at the
Yale Child Study Center, 230 South Frontage Road. Theme for 2010-2011:
"Ethical Aspects of the Advances in Modern Medicine." See web
site after mid-August for complete schedule. (CME) Learn More >>
September 25 9th Annual Oncology Nursing Symposium
Challenges
in Oncology Nursing Practice. Smilow Cancer Hospital. Contact Lisa Barbarotta, MSN. (CNE)
November 15 Yale
Symposium on Palliative and End-of-Life Care. (CME) Lear More >>
Connecticut
September 3 -
October 1 (5 consecutive Fridays) Basic Oncology Core Course Hospital of St. Raphael, New Haven. Contact Susan Fisher (203)
789-3391. Deadline: August 20. (CNE) September 30Connecticut
Challenge Survivorship Summit
Jewish Community Center,
Woodbridge (CME, SWCE) Learn More >>October 8 & 15ONS Chemotherapy & Biotherapy CourseHospital of St. Raphael, New Haven. Contact Susan Fisher (203)
789-3391. Deadline: September 16. (CNE)
Elsewhere
September 17-19First Annual Navigation & Survivorship ConferenceAcademy of Oncology Nurse Navigators. Baltimore. (CNE) Learn More >>October 8 - 10Practical Aspects of
Palliative Care: Integrating
Palliative Care
into Clinical PracticeHMS Center for Palliative Care. Cambridge, MA. (CME) Learn More >>
November 5 - 6Quality of life for the Children4th Annual Pediatric
Palliative Care Conference. Washington, DC. Learn More >>OnlineSuncoast Institute is
a program of Suncoast Hospice (Florida). The Institute offers a variety of courses in several formats, including online. Learn More >> |
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August 2010 Volume 4 · No 7
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Survivorship Themes: Fear of Recurrence
Last month we introduced common themes that occur as we
discuss survivorship issues with participants in the Connecticut Challenge
Survivorship Clinic. In this issue
we'll explore perhaps the most common concern of people who have recently
completed cancer treatment, fear of recurrence. Fear of recurrence is expressed in various ways: -
I'm scared to death that the cancer will come
back.
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They got it all. Right?
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Can I do something to keep the cancer from
coming back?
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I just can't face going back to that clinic.
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I think I've become a hypochondriac-I worry that
every twinge or change is the cancer coming back.
We asked our specialists to address this concern in a
hypothetical participant.
Social Worker: Fear of recurrence is very common.
A helpful way to think of this is that fear of the cancer returning is a
projection into the future...we are imagining the future in a
negative way. I suggest that, if we are going to use our imagination, then
it is helpful to use it in a positive way and imagine ourselves healthy.
There are visualizations and affirmations that can be helpful in projecting
into the future. Best of all,
there are techniques to assist in keeping us in the present. Meditation
or mindfulness and conscious breathing bring us into the present moment. There are numerous books, CDs, and DVDs that are presently available, as well
as classes in most communities to learn these skills. We have a survivor
support group following individual sessions in our clinic, which includes a
short conscious breathing/meditation practice. Concern about health can be a motivator to adopt other
healthy practices, such as nutritious eating and exercise.
Physical Therapist: Regular exercise has been shown to reduce the risk of several illnesses,
including cancer. Exercising 5
times a week for 30 minutes may reduce one's risk of recurrence or developing a
secondary cancer. Moderate to
vigorous levels of exercise are the most effective. If we think of exercise on a scale of 1-10-1 is sitting on
the couch, at 10 you feel like you'll pass out-aim for 5-7. Additional benefits of exercising after
cancer treatment include weight reduction, improved cardiovascular endurance,
increased muscular strength, and improved mood. Exercising not only reduces one's risk of a recurrence of
cancer but it also decreases one's risk for other chronic diseases such as
diabetes and high blood pressure and reduces the risk of stroke and heart
attack.
Nutritionist: There is
no one food that will trigger a cancer recurrence or protect a person from
recurrence. However, following a healthy diet plan may help prevent recurrence
of some cancers. In addition, a
nutritious diet will contribute to weight management, improved cardiovascular
health, and help manage blood pressure, cholesterol levels, blood glucose
levels, and even mood.
The ideal diet
plan is outlined below: - Eat a predominately plant-based diet rich in
vegetables, fruits, and whole grains. Eat a rainbow of colors of fruits and vegetables. Each color represents a different
constellation of vitamins, minerals, and phytonutrients packaged by nature to
act in synergy. Eat at least 5
servings of fruits and vegetables a day, as whole foods have a potency not found
in use of supplements.
-
Limit consumption of processed and red meats.
Think of meat as a condiment.
- Emphasize omega-3 fatty acids. Omega-3 sources (salmon, eggs fortified
with omega-3, flaxseed, fish oil supplement) may have specific benefits for
cancer survivors.
- Limit consumption of alcohol. Moderate drinking is one drink per day
for women and 2 per day for men.
- Observe food safety practices. It is important to protect your immune
system from food-borne illnesses.
APRN: Participants in
our clinic have had state-of-the-art cancer treatment and have no detectable
cancer. The chances of recurrence
are low, but it is difficult to assign a percentage. We know that in some people the cancer will come back, but
we can't predict with any certainty the risk of recurrence for a specific
person. It is helpful, and
prudent, to look on this as an opportunity to begin a personal wellness
program. Taking preventive or maintenance
medications (if applicable) significantly reduces risk. In addition, keeping to the schedule of
physical exams, lab tests, and scans (as applicable) increases the chances of
early detection just in case there is a recurrence. Taking advantage of the fitness, nutrition, and emotional
health resources available in the community or a survivorship clinic will
provide tools for health promotion that survivors can continue to develop with
a primary care provider.
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In the News
The Connecticut Challenge The Connecticut Challenge bicycle ride to
raise money for survivorship programs throughout Connecticut was held July 24th
in Fairfield. Over 740 riders, the
largest field ever, and hundreds of volunteers turned out on one of the hottest
days of the year. The ride is
over, but fundraising is not! Please contribute in the name of your favorite rider or team or to the general cause of
supporting cancer survivors across Connecticut. Learn More >>
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Journal Watch
Virtual
Mentor is the American Medical Association's online ethics
journal. The July issue is devoted
to the topic of Pediatric Palliative Care. Read More >>
Bonebrake D, et
al. Clinically Differentiating Palliative Care and Hospice. Clinical Journal of Oncology
Nursing. 2010;14(3):273-275.
Read More >>
Burstein HJ, et al. American Society of Clinical Oncology
Clinical Practice Guideline: Update on Adjuvant Endocrine Therapy for Women
With Hormone Receptor-Positive Breast Cancer. Journal of Clinical
Oncology. 2010 Jul 12. Read More >>
Craig
L. Prolonged Grief Disorder. Oncology Nursing Forum.
2010 Jul;37(4):401-6. Read More >>
DuHamel KN, et al. Randomized Clinical Trial of
Telephone-Administered Cognitive-Behavioral Therapy to Reduce Post-Traumatic
Stress Disorder and Distress Symptoms After Hematopoietic Stem-Cell
Transplantation. Journal of Clinical Oncology. 2010 Jul 10. Read More >>
Krelstein M. Exploring the
Interface Between Cancer and Psychiatry. Oncology. 2010;24(7):657-658.
(Free full text) Read More >>
Liénard
A, et al. Is it Possible to Improve
Residents Breaking Bad News Skills? A Randomised Study Assessing the Efficacy
of a Communication Skills Training Program. British Journal of
Cancer. 2010;103(2):171-177. Read More >>
Pollock AB, et al. Morphine to
Methadone Conversion: An Interpretation of Published Data. American Journal of
Hospice and Palliative Medicine. 2010
Jun 16. Read More >>
Schlairet M, et al. Piloting a Needs Assessment to Guide Development of a
Survivorship Program for a Community Cancer Center. Oncology
Nursing Forum. 2010 Jul;37(4):501-8. Read More >>
Schmidt BL, et al. Mechanism of Cancer Pain. Molecular Interventions. 2010;10(3):164-178. Read More >>
Schmitz
KH, et al. American College of
Sports Medicine Roundtable on Exercise Guidelines for Cancer Survivors. Medicine
and Science in Sports and Exercise. 2010; 42(7):1409-26. Read More >>
Walz DA. Cancer-Related
Anorexia-Cachexia Syndrome. Clinical
Journal of Oncology Nursing. 2010;14(3):283-287. Read More >>
Winters L, et
al. "I feel like I am 100 years
old!" Managing Arthralgias from
Aromatase Inhibitors. Clinical Journal of Oncology Nursing. 2010;14(3):379-382.
Read More >>
Wolin KY, et
al. Obesity and Cancer. The
Oncologist. 2010;15(6):556-565. Read More >>
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