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Online Resources

American Pain Foundation
Education campaign on cancer breakthrough pain.
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Online Guide to Breakthrough Cancer Pain (for patients & families). 
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When cancer pain breaks through.  (Recorded webinar)
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Cancer Pain Release
A publication of the World Health Organization and palliative global communications program to improve cancer and HIV pain and palliative care.
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Oncology Channel-Cancer Pain
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American Institute for Cancer Research

Cancer Research Update
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 AICR's Guidelines for Cancer Survivors
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Cancer Climber Association
 "Our mission is to help those touched by cancer by focusing on living an active, healthy lifestyle."
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Why Aren't We Working Together?
A blog post and call to action on the disarray in the world of "cancer patient navigators."
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Breast Cancer MAP Project
MAP is an acronym for 'Mind Affects the Physical'.  A research and support project of the Cancer Support Community (formerly The Wellness Community).
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Continuing Education


Yale/YNHH

Schwartz Rounds
Schwartz Rounds will resume in August in a new location:  Smilow Cancer Hospital at Yale-New Haven (CME)
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Yale Bioethics Center End of Life Issues Group will resume in September (CME)
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June 17, 6:00 - 8:45pm
Updates and Innovations in Esophageal Cancer.  Mystic, CT. (CME)
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September 25
9th Annual Oncology Nursing Symposium.  Smilow Cancer Hospital.  More details to follow. (CNE)



Elsewhere
June 17 - 19
Cancer Survivorship Research Conference
Washington, D.C.
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June 22 - 26
Principles & Practice of Pain Medicine 
Harvard Medical School. Cambridge, MA.
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July 12 - 16

Spirituality & Health Care Summer Institute
George Washington University, Washington, DC.
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September 17 - 19
First Annual Navigation & Survivorship Conference.  Academy of Oncology Nurse Navigators.  Baltimore, MD. (CNE)
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November 5 - 6
Quality of Life for the Children
4th Annual Pediatric Palliative Care Conference.  Washington, DC.
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Online
Strategies for Opioid Rotation: Decision Support in Chronic Pain Management.  (Medscape) (CME)
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June  2010          Volume 4 No 5
Yale Pediatric Advanced Care Team (YPACT)
Formerly called The Dignity Project, YPACT is a palliative care consult service provided to pediatric patients with a chronic or terminal illness and their families at Yale-New Haven Children's Hospital (YNHCH). The goal of the service is to improve pain and symptom management, enhance communication between patient, family, and staff, and assist families in making tough decisions. Currently there are 171 patients enrolled, which is an increase of 130 since mid-2006 when the first paid employee was hired.  Anyone, including families, can request a YPACT consult.  Approximately 12-20 YPACT patients are seen inpatient weekly or biweekly depending on their needs.  

The team is also responsible for education of staff on topics related to palliative care, such as communicating bad news, symptom management, and alternative therapies. They coordinate bimonthly meetings with the primary interdisciplinary team to discuss the care of patients followed by YPACT.  Addressing comfort and quality of life frequently includes use of complementary interventions.  For example, massage and Reiki treatments can be arranged by the team.  At least 50% of patients and families request these supportive interventions.  The team participates in family meetings, meets with patients and families one-on-one, collaborates with the pain service, and sends bereavement cards.  It has also facilitated making Reiki classes available to a growing number of practitioners.  A monthly YPACT meeting reviews some of the cases or presents an educational program.

Families have identified enhanced communication and continuity as important outcomes of involvement with YPACT.  This has been especially valuable when a patient is transferred to a different pediatric unit within YNHCH.  They also express appreciation for the relaxing effects of massage and Reiki.

Current YPACT projects include a research survey to determine patient and guardian thoughts on YPACT and a complementary and alternative medicine (CAM) cart with aromatherapy and herbal teas for patients, families, and staff.

For more information or to be added to the YPACT informational mailing list, contact Cindy Jayanetti, NP at (203) 688-7997.

In the News

Breast Cancer Support Group
The Cancer Support Community of Southern Connecticut (formerly The Wellness Community) has announced a Breast Cancer Support Group to be held in Branford on Tuesday & Thursday evenings.  Call (203) 483-4227 for more information and to register.

Journal Watch

The June issue of Current Opinion in Supportive and Palliative Care is largely devoted to dyspnea management.
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The supplement to the May issue of The Oncologist (Vol. 15(Supp2)) is devoted to Neuropathic Cancer Pain.
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Psychosocial care articles in Journal of the National Comprehensive Cancer Network.  2010;8(4).
  • NCCN Clinical Practice Guidelines:  Distress Management. V1:2010.  448-485.
  • Jacobsen PB.  Improving Psychosocial Care in Outpatient Oncology Settings.  368-370.
  • Holland J.  Why Psychosocial Care is difficult to Integrate in Routine Cancer Care:  Stigma is the Elephant in the Room.  362-366.
  • Loscalzo M, et al.  SupportScreen:  A Model for Improving Patient Outcomes. 496-504.
  • Mitchell AJ.  Short Screening Tools for Cancer-Related distress:  A Review and Diagnostic Validity Meta-Analysis.  487-494.
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Aitini E, et al.  End of Life in Cancer Patients: Drugs or Words?  Ann Oncol 2010;21(5): 914-915.
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Chaves MR, et al.  The Diversity of Nutritional Status in Cancer: New Insights.  Oncologist. 2010;15(5):523-530.  (CME)
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Dhruva A, et al.  Trajectories of Fatigue in Patients With Breast Cancer Before, During, and After Radiation Therapy.  Cancer Nurs.  2010;33(3):201-212.
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Escalante CP, et al.   Outcomes of a Cancer-Related Fatigue Clinic in a Comprehensive Cancer Center.  J Pain Symptom Manage.  2010;39(4):691-701.
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Hoffman B.  Cancer and Work: Protections Under the Americans With Disabilities Act.  Oncology Nurse Edition.  2010;(24(4):15-21. (Free full text)  
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Maggiore RJ, et al.  Polypharmacy in Older Adults with Cancer.  Oncologist. 2010;15(5):507-522.  (CME)
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Mar Fan HG, et al.  Menopausal Symptoms in Women Undergoing Chemotherapy-Induced and Natural Menopause: a Prospective Controlled Study.  Ann Oncol. 2010;21(5): 983-987.
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Nagaiah G, et al.  Role of Obesity and Exercise in Breast Cancer Survivors.  Oncology.  2010;24(4):432-436.  (Free full text)
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Raphael J, et al.  Cancer Pain: Part 1: Pathophysiology; Oncological, Pharmacological, and Psychological Treatments: A Perspective from the British Pain Society Endorsed by the UK Association of Palliative Medicine and the Royal College of General Practitioners.  Pain Med.  Apr 23, 2010.
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Raphael J et al.  Cancer Pain: Part 2: Physical, Interventional, and Complementary Therapies; Management in the Community; Acute, Treatment-Related, and Complex Cancer Pain: A Perspective from the British Pain Society Endorsed by the UK Association of Palliative Medicine and the Royal College of General Practitioners.  Pain Med.  Apr 26, 2010.
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Winter L, et al.  Ask a Different Question, Get a Different Answer: Why Living Wills are Poor Guides to Care Preferences at the End of Life?  J Palliat Med. 2010;13(5).
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