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One Man's Journey
His nightmare began in 1969 - one year after leaving the Vietnam War. Symptoms of autonomic neuropathy affected his breathing with upper body paralysis that brought him to his knees and affected other parts of his body; mysterious chest pains, unexplained silent tachycardia, urinary and digestive problems. Lt. Col. Eugene Richardson, USA Retired, has spent 41 years living, and coping, with the symptoms of his progressive neuropathy...and the devastation of Agent Orange.
With a Masters of Education and a Masters of Science in Counseling, Richardson has spent 35 years as a patient advocate and counselor. He leads neuropathy support groups in Florida and teaches a seminar, "Coping with a Chronic Neuropathy', that is attended by thousands each year. We are pleased that Lt. Col. Richardson will be contributing to Foundation publications. He will focus on patient insights into neuropathy and what has been learned in the face of many challenges.
Learn more about Lt. Col. Richardson's journey.
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Events
Diabetes EXPO 2010
April 10, 2010; 10am-4pm
Navy Pier, Chicago IL
Our team from the Foundation for Peripheral Neuropathy Comprehensive Care Clinic will be joining us to answer your questions. Learn more
Patient Seminar:
Living Well with PN
May 13, 2010; 6:30-8pm
Cancer Wellness Center
Northbrook IL
Mark your calendar - you won't want to miss this wonderful opportunity. A panel of experts from The Foundation for Peripheral Neuropathy Comprehensive Care Clinic at Northwestern will be presenting the latest information on how to cope with PN. You will also learn about the research that is being done to find better treatments - and a cure! Learn more
PN Patient Forum
Are you interested in joining a discussion group with other Peripheral Neuropathy patients? If so, we'd like to hear from you. Learn more |
Make your web searches count, too: iGive
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Correction: We aplogize for omitting Lt.Col. Eugene Richardson as a contributor to the Ask the Expert column in our Fall 2009 FPN News. | |
WELCOME...to the first issue of our E-newsletter. We are excited to begin this journey with you - sharing information and opportunities that will help YOU, or someone you love, live better with peripheral neuropathy. The Foundation has a great start to the new year with new research projects and events... we hope you will enjoy reading about them and will join us as we continue moving forward.
There is a new look to our website, too...be sure you check it out! | |
 Count Yourself In!
Would you like to see us do more to advance treatments for PN - and help us find a cure? Do you feel like you could use more knowledge and resources to live better with PN? Do you wish you could do more to help, but aren't sure how? Would you like to have your donation dollars stretch twice as far as they usually do? If you answered YES to any of these questions, then there has never been a better time for you to make your gift to the Foundation!
Thanks to the generosity of an anonymous donor, we are thrilled to announce our new matching gift campaign that will DOUBLE your gift and DOUBLE your impact. From now until December 15, 2010, any contribution that you make will be matched - dollar for dollar - up to $50,000. The funds raised will go to advance our important work on behalf of people living with PN.
Count yourself in today! Go to our matching gift page to learn more and make your donation OR mail your check to:
The Foundation for PN
485 Half Day Rd, Suite 200
Buffalo Grove IL 60089
Remember to make sure your donation gets counted - and DOUBLED - and mark it as a 'matching gift'. We can do more with your help!
Thank you! |
New Clinical Trial
Northwestern University, Chicago
Northwestern is recruiting subjects for a clinical research study. If you have been diagnosed with painful diabetic neuropathy, you might be eligible to participate.Learn more
New Charcot Marie Tooth (type 2C) Research
Northwestern
New research findings into the hereditary motor and sensory neuropathy type IIC disease, CMT2C, have been published in Nature Genetics, the leading publisher of quality genetic research. Dr. Teepu Siddique, a member of the FPN Database Consortium, collaborated in the research. Learn more
Novel Therapies
Johns Hopkins University, Baltimore
Dr. Ahmet Hoke, Professor and Director of the Neuromuscular Division, Johns Hopkins University School of Medicine, received a grant from the Foundation to study challenges to the development of effective therapies for peripheral neuropathies and to develop novel regenerative treatments. Dr. Hoke's laboratory screened a library of drugs for their ability to regenerate nerve fibers and have identified two compounds as potentially enhancing nerve regeneration. Now, they plan to test the utility of these compounds in enhancing nerve regeneration in laboratory animals. In addition, Dr. Hoke's laboratory is studying molecular mechanisms as to why human nerves do not regenerate as well as laboratory animals. This project may offer clues as to new drug targets to enhance nerve regeneration in humans. As these projects demonstrate, Dr. Hoke's laboratory is focused on identifying novel therapies that enhance nerve regeneration and restore health to nerve cells injured in peripheral neuropathies. |
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In the News
Nebraska Legislative Bills
Alliance for Plasma Therapies announced last Thursday that Nebraska State Senator Abbie Cornett introduced two bills that will help to ensure that patients with life threatening and chronic health conditions receive the therapies/prescriptions that their physicians' prescribe without shifting the burden of the cost of the therapy to the patient.
This is a perfect opportunity to send a message to the insurance companies that the practice of specialty tiers is unacceptable and charging coinsurance for expensive lifesaving therapies for biologics, chemotherapy, IVIG, factor products, etc is illegal.
We need your participation. On February 16, 2010, a hearing on these bills will be held in Lincoln, NE.
To learn more about these bills and how YOU can help, click here. |
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.... to our 2009 Donors
The Foundation for Peripheral Neuropathy is deeply grateful for the incredible dedication of our friends and supporters. All gifts, large or small, are important! Your generosity will allow us to carry on our efforts in advancing research and improving the quality of life for those living with PN.
There will be a list of our 2009 donors on our new Benefactor page of the website soon! |
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The information contained in this newsletter is not intended to substitute for informed medical advice. You should not use this information to diagnose or treat a health problem or disease without
consulting a qualified health care provider. You are strongly encouraged to consult a neurologist with any questions or comments you may have regarding your condition. The best care can only be given by a qualified provider who knows you personally. | |
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