PPMD e-News Header

December 2010    

Free Healthcare Training for Family Members of Children and Youth with Special Health Care Needs

Maryland Health LEADers, a Parents' Place of Maryland training program, will be held in January and February 2011.  The goal of the Maryland Health LEADers Policy Academy is to provide family members with the information they need to be active in health care advocacy at the state and local levels.


Topics will include:

  • Healthcare reform and children with special health care needs
  • How to pay for healthcare
  • Creating a care notebook
  • How to tell your story
  • How to appeal denials
  • Maryland legislative process

All materials and trainings are free for participants.  Small stipends are available to help with childcare and/or travel expenses.


To download an application, click here. For more information, contact Mary Baskar at mary@ppmd.org.


Deadline for application is December 28th, 2010.  Space is limited, apply today!

Discipline of Students With Disabilities Guide  

The Maryland State Department of Education has available on line a guide for disclipline of students covered by the Individuals with Disabilities Education Act. The purpose of this document is to provide administrators, educators, parents, and community

members with a better understanding of the behavioral assessment and intervention process.


The disciplinary requirements of the Individuals with Disabilities Education Act (IDEA) have provided school systems with guidance for examining their practices of assessing behaviors and implementing appropriate interventions. The concept of addressing inappropriate behaviors with the use of positive supports and strategies is incorporated within the behavioral assessment process.  Visit now.

Focus Group Participants Needed
We are looking for participants for focus groups to be held in January 2011.  If you are an African American or Latino parent of  a child ages birth -21 with one or more:
  • Long lasting health problem like asthma
  • Developmental Delays like autism, intellectual disability
  • Behavioral or emotional challenges like ADHD, depression, anxiety
We need you to meet one time with a group of about 10 other parents to discuss how you get information about your children's needs.  All information is confidential and if you are selected you will be paid $50 for your time.


For more information, contact Mary Baskar at 410-768-9100 ext 103 or mary@ppmd.org. 

This research project is funded by the Maternal and Child Health Bureau of the US Department of Health and Human Services Health Resources and Services Administration.


Understanding ADA & Section 504 for Students with Learning Disabilities and ADHD

The Americans with Disabilities Act Amendments Act of 2008 (ADAAA) was passed by Congress in December 2008 and became effective January 1, 2009. This significant piece of legislation corrected what Congress considered to be a departure from the intent of the original ADA (passed in 1990) brought about by several narrow interpretations of the law through Supreme Court rulings. These rulings weakened the law and made it difficult for people with disabilities to receive the protection the law intended.

This Parent Advocacy Brief will help you understand the changes brought about by the ADAAA, how they apply to Section 504, and how these changes may impact children with disabilities, including learning disabilities, as well as other conditions such as Attention-Deficit/ Hyperactivity Disorder (AD/HD), Aspergers Syndrome, diabetes, asthma, and life-threatening food allergies.


Download a free copy

Teaching Your Child to be Independent with Daily Routines

The Center on the Social and Emotional Foundations for Early Learning (CSEFEL) has published a new Family Tool to help family members and caregivers understand what self-help skills can be expected from young children and to provide tips for helping children learn how to become more independent with daily routines. It is available online.

Happy New Year!
Looking back over 20 years of helping parents of children with disabilities and special health care needs every day, we feel honored to have been of service, to have helped so many families, and we look forward to the coming year.  Each year many of us make resolutions so this year we want to share with you a few we are thinking about:
  • Resolving to reduce our stress levels by taking more time for ourselves and our families
  • Resolving to learn new skills to be better advocates for our children and families
  • Resolving to communicate more effectively with our children's schools, doctors, and other professionals
  • Resolving to learn more about community resources that can help our children
  • Resolving to develop relationships with new partners who can help improve our work and services for children
     
  • Resolving to smile for no good reason at all - except that it makes us feel better - and makes people wonder what we're up to!

From the Parents' Place family to your family, Happy New Year!


In This Issue
Free Training for Families
Schools and Bullying Letter
Section 504 & Learning Disabilities
Save These Dates!
January 19, 2011

February 10, 2011
Waldorf, MD  

February 12-15,2011

April 14 -15, 2011
MD Brain Injury Association Annual Conference

April 25 - 28, 2011
 
Check the PPMD online calendar for time,  location, and registration information for these and many other training opportunities.
www.calendarwiz.com/ppmd 
Family Voices Launches New Website

Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities.

Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care. The new website is easier to use, more colorful, and full of new resources. Check it out.

Documents You Need to Know About . . .
 
PPMD Workshops
The Parents' Place presents a variety of workshops, seminars, and training programs for parents. Topics include special education, health care advocacy and information, and parent leadership. Check our online calendar regularly for a listing and description of our training programs.

fb logo
Find us on Facebook.
Has this newsletter reached you by mistake?

Please use the safe unsubscribe link below to take your name off the mailing list, or pass it on to the parent of a child with special needs. 
Join Our Mailing List