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March 2010    

The Delegate Roger Manno 2010 Scholarship for Students with Special Needs
Delegate Manno is offering a scholarship for student with special needs for post-high school training or college. This is the fourth year Delegate Manno is providing scholarships for special needs students. Applications are available now.

To qualify, you must be:
  • At least a high school senior.
  • Currently enrolled in or applying to an undergraduate, graduate, professional or trade school in Maryland.
  • Exceptions are made for "unique majors" that are not offered at any Maryland institution.
  • A resident of Legislative District 19, which includes portions of Silver Spring and Rockville.
To check the Legislative District in which you reside, log onto http://mdelect.net/electedofficials/
 
Applicants will be required to write an essay and provide at least one letter of recommendation.
For more information, please contact Tracey Webb at the Montgomery County Collaboration Council, 301-610-0147 x 213 or via email, tracey.webb@collaborationcouncil.org
Self-Advocacy for High School Students with Disabilities Podcast
February 11, 2010 - The Disability Law Lowdown just posted a new podcast about self-advocacy for high school students with disabilities. Jacquie Brennan discusses a new information sheet published by the Pacer Center that provides valuable information for high schoolers about how to plan for their future by taking an active role in IEP meetings and transition planning, whether the transition is to employment, post-secondary education, or independent living. It is important that students learn to advocate for themselves so that goals that are set, and plans that are made,include the desires of the student and not just those around the student.
 
The Disability Law Lowdown podcast is available at
www.DisabilityLawLowdown.com, as well as on iTunes. You can listen to the podcast directly from a computer or can download it to an MP3 player, like an iPod.
 
The Disability Law Lowdown provides the latest information about disability rights and obligations under the Americans with Disabilities Act, and other disability-related topics. Subscription is free.
My Life with Autism by Indy Baskar
autismautismIndy and her twin brother Jacob live in Lutherville, Maryland, with their Dad, Mom, and older brother Vijay. In this PowerPoint essay, Indy describes life at home and school with Jacob who has autism. Indy and Jacob attend Lutherville Elementary School. Indy enjoys soccer, softball, and learning how to play the saxophone. Click on the picture on the right to read Indy's story.
PPMD Awarded Grant to Help African American and Hispanic Families Find Resources
The Parents' Place of Maryland and the Georgetown University Center for Child and Human Development, including the National Center for Cultural Competence, have been awarded a grant through the Maternal and Child Health Bureau to develop and evaluate ways to increase access to information and support resources for African American and Hispanic families of children and youth with special health care needs (CYSHCN). This study  responds to concerns about disparities in accessing services to serve CYSCHN and their families and one of the key steps to achieving the MCHB 6 Core Outcomes for children and youth with special health care needs and their families - increasing family knowledge.

The project builds on a seven year partnership between the Parents' Place of Maryland and the Georgetown University Center for Child and Human Development. This project is a multi-site study with data collection and intervention at three Family-to-Family Health Information Centers: The Parents' Place of Maryland; Exceptional Children's Assistance Center in North Carolina and Parents' Reaching Out (PRO) in New Mexico. These centers were chosen because of their engagement with African American and Hispanic families. The grant will be led by Dr. Suzanne Bronheim, Senior Policy Associate at The National Center for Cultural Competence.
The Parents' Place will serve as site coordinators for the three study sites.
Newborn Screening Survey
The Genetic Alliance wants to know your perspective on a number of important issues in newborn screening. They developed a short survey on a range of topics, including number of conditions and what conditions are screened for at birth to key policy and system challenges. This survey is an extension of the Consumer Focused Newborn Screening quantitative project, a cooperative agreement with the Genetics and Public Policy Center at Johns Hopkins University, funded by the Genetics Services Branch of the Maternal and Child Health Bureau, HRSA/HHS.

No identifying information is collected through the survey, and all responses will be kept private. The survey takes less than 15 minutes to complete, and your participation in this survey will inform the development of models to educate parents and create systems for informed decision-making in newborn screening. The survey will close April 14, 2010. To access the survey, click the link. Genetic Alliance Survey
 
Did You Know?
The Parents' Place of Maryland is celebrating 20 years of serving families of children with disabilities!

Twenty years ago, a group of parents came together to establish a state-wide, parent-led organization to provide advocacy, support, resources, and information for Maryland families.
 
In 20 years, PPMD has:
  • provided information, support, and education about the IEP process for more than 50,000 parents
  • conducted more than 2500 workshops across the state on special education law and health care access
  • provided information about navigating health care systems for more than 4500 families
  • served as Maryland's Parent Training and Information Center funded under IDEA
  • for the last 7 years, served as Maryland's Family-to-Family Health Information Center providing information about navigating health care
We are excited to celebrate this special anniversary with you! As part of our 20th anniversary, we are collecting brief stories from parents in Maryland about their amazing children with disabilities and special health care needs. The stories will be published in this newsletter with your family or child's picture or child's art you include. Please limit your stories to no more than 3 short paragraphs so that they can fit in this newsletter. Please send your stories, pictures, and your child's art by email to josie@ppmd.org. Look for these stories in the coming months!
Thank You, Again!
Thank you to more than 900 parents who completed the parent survey for the Maryland Title V Needs Assessment! Look for brief reports about what parents are saying coming soon in this newsletter. Your responses are critical to the development of the state's 5-year plan for children with special health care needs.
In This Issue
Scholarship Opportunity
PPMD Awarded Grant
PPMD Celebrates 20 Years
Teleconference Series
 
Extended School Year Services
March 30, 2010

Writing Successful IEP's
April 6, 2010
 
Working It Out - Conflict Resolution in Special Education
April 13, 2010
 
Bullying and Harassment
April 20, 2010
 
Early Childhood - Difficult Behaviors
May 4, 2010
 
Participation is free,  but registration is required.
 
Time: 11:30am - 1:00pm.
 
For more information or to register contact Rochelle Howell at 410-768-9100 Ext. 104 or Rochelle@ppmd.org
PPMD Workshops
The Parents' Place presents a variety of workshops, seminars, and training programs for parents. Topics include special education, health care advocacy and information, and parent leadership. Check our online calendar regularly for a listing and description of our training programs.
Save These Dates for Parent Conferences!
 
 
April 14, 2010
Child and Adolescent Mental Health Fair, Baltimore County

April 17, 2010
  
Great Expectations! Baltimore City
 
April 22, 2010
Special Education Law and Advocacy Training with Pete Wright, Esq. Bowie, Prince George's County
 
May 15, 2010 
Around the World of Special Education, Washington County
 
Check the PPMD online calendar for time,  location, and registration information for these and other training opportunities. www.calendarwiz.com/ppmd 
 
 

Parent Resources
 
Practical ideas for parents of children with disabilities to improve their interaction with school staff and become more effective advocates for their child. Opens as PDF.
 
Developing Your Child's IEP Explains the basics of the special education process and Individualized Education Plans (IEPs), and information on how to be an effective partner with your child's school. This link opens a PDF document.
 
Learning modules and downloadable documents explore evidence-based best practices related to special education.
 
MSDE's guide to IEPs explains the process  for parents. This link opens a PDF file.
 
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