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DAPCAN Desert AIDS Project Community Action Newsletter
June 28, 2012
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D.A.P. offices will be closed on Wednesday, July 4
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Editorial Staff
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David Brinkman
Chief Executive Officer
Barry Dayton
Director of Marketing and Communications
Alexis Ortega
Interactive Marketing
Specialist
Rick Vila
Volunteer Co-editor
John Lewis
Volunteer Co-editor
Steve Bolerjack
Volunteer Co-editor
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Friday, July 13, 8:00 PM - Midnight
Fifth Annual Mid-Summer Dance Party
Do Ask, Do Tell everyone you know that D.A.P.'s Mid-Summer Dance Party V will be better than ever! The party will feature DJ Michael Antonio, dancers from SHARE Nightclub in Las Vegas and a performance by dance music icon Kristine W whose long list of #1 hits include "Feel What You Want," "One More Try," "Land of the Living," "Save My Soul" and many more. More information and tickets here. Come to the ACE Hotel, Palm Springs, and have a ball! Free Admission ticket drawing for all D.A.P. clients. Drop your ballot in the ballot box in the lobby of the ACE Hotel, or for more information contact D.A.P.'s Ray Robertson @ 760.323.2118 X395 or rrobertson@desertaidsproject.org. (rv)(jl)(rv)
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| D.A.P. Community Center Events |
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The D.A.P. Client Community Center hosts regular activities and events every week (listed below). Community Center special events and other activities can be found on the main D.A.P. website. Click here for the complete list of upcoming special events.
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Friday, June, 29, Noon - 1:00 PM
Community Center Presents: ALL ABOUT PALM SPRINGS PUBLIC LIBRARY
You've read our articles about the wonderful resources, privacy and retreat-from-the-heat available at our area libraries. Now come and hear a professional give us the inside scoop. Julie Warren, Library Services & Public Relations Manager, will discuss all the benefits and services offered by the Palm Springs Public Library. Luncheon starts at 11:45 AM. RSVP to Ray at 760.323.2118, ext. 295 or rrobertson@desertaidsproject.org.
Improve your quality of life through education!
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Schedule change for Sexual Wellness Support Group
The Monday afternoon Sexual Wellness Support Group has moved from 3:00 - 4:30 PM and will now meet from 2:00 - 3:30 PM. Contact Ray at 760.323.2118, ext. 295 or rrobertson@desertaidsproject.org for more information. (jl)
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Every Thursday, 1:00 PM
Community Center Presents: MOVIE & PIZZA Thursday, July 5 - Left Behind (2001)The biblical prophesy of Armegeddon begins when the Rapture instantly takes all believers in Christ from the Earth. Directed by Vic Sarin.
Come out for a great film!
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Ongoing Client Community Center activities include:
- Support groups
- Hepatitis C therapy education
- Diabetes education
- Stitch in Time (needlecraft)
- Community Center Computer Lab
- Lending Library
- Free films, Thursdays, 1:00 PM
Follow this link to see recurring activities on the Community Center Calendar.
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Client Advocacy Committee partners with C.E.O. David Brinkman to improve client services
The Client Advocacy Committee partnered with David Brinkman, CEO, to secure an outside facilitator who hosted a series of successful client and staff focus groups in February. As a result, D.A.P. staff are now evaluating suggestions for operational and educational improvements or enhancements. Staff will continue to work with the Client Advocacy Committee to determine resources needed, compatibility with mission, compliance with standards of care and grant terms and conditions, and next steps. Ongoing, we welcome all clients to share their observations about service delivery, both complimentary and constructive. You can reach out to any Director by phone or email as well as send a comment via our Web site: http://www.desertaidsproject.org/contacting-us/ (rv)
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D.A.P. in negotiations with County of Riverside
D.A.P. continues to participate in active negotiations with the County of Riverside to seek approval as an in-network provider for the Riverside County Healthcare (RCHC) program. D.A.P. began negotiations as soon as they became aware of the new low-income health plan. If you have been enrolled in RCHC by the County, until the outcome of the negotiations is known, please contact your Medical Case Manager for support linking to an approved provide outside the agency so that you do not run out of medications, miss a lab work deadline or fall out of routine medical care.
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New HIV & Cancer Support Group forming

A new peer-led HIV & Cancer Support Group will start on Monday, July 9. The idea for the group originated with D.A.P. client and recent cancer survivor Mike Wayne (pictured below). "I'm a single 49-year old man and have lived with HIV for 30 years," says Mike. "In 2011, I was diagnosed with anal cancer, had surgery and began chemo. Living with HIV and cancer presents you with a whole new set of challenges that you cannot really be prepared for. I'm cancer-free now, but throughout the whole experience, I found no local support group for people confronting HIV and anal cancer. Although I've great friends and a wonderful doctor, there were times I felt utterly alone in dealing with my illness. Even some friends didn't seem to know how to react or what to say to me. I've never led a support group, but after dealing with HIV and cancer first-hand, and noting the rise in anal cancer in HIV-positive people, I believe there's an increasing need for this particular support group. In fact, we're learning that long-term HIV may increase cancer risks as we age. So D.A.P. has offered a place to share our experiences and knowledge to help each other on what is a very difficult journey. If anal or any type of cancer is affecting you or someone in your life, or if you just have questions, I hope you'll join me in creating a caring, supportive haven that will help people," he concludes. Mike will facilitate the group, with as-needed assistance by Ray Robertson. It will meet second and fourth Mondays from 3:30 to 5:00 PM. This group will be open to non-D.A.P. clients as well, provided they are HIV-positive. Click here to learn more about anal cancer. (jl) (sb) (rv)
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It's Christmas in July at Revivals
"Christmas in July" may not seem like a new idea - until you've seen how the four Revivals stores celebrate this special, two-week summer holiday, July 1-14. To kick it all off, the Revivals store in the Palm Desert Costco Center will be hosting a preview event on Saturday, June 30 from 9:30 AM to 6:00 PM at 72-750 Dinah Shore Drive. From noon to 4:00 PM, Revivals volunteers and staff will be working the runway with their own version of a Beach Wear and Summer Desert Fashion Show. We're thinking supermodels Heidi Klum and Kate Moss have nothing to worry about - but it's sure to be fun anyway. Then, from July 1-14, it will be time to channel your Summer Santa and shop any of the Revivals stores in Palm Springs, Cathedral City, Palm Desert, or San Diego. You'll find ornaments, holiday décor, greeting cards, wrapping paper, trees, table decorations and those unique, one-of-a-kind treasures that come to Revivals when they accept an entire house clean-out or an estate collection. Your purchases at all Revivals stores benefit client services at Desert AIDS Project, which serves people living with HIV and AIDS by providing comprehensive support, including medical care, case management, and social services, like food, housing, and counseling. D.A.P. also offers free and confidential HIV testing at a number of locations throughout the communities it serves.(rv)
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Inland Empire HIV Planning Council is actively recruiting consumer members
The Inland Empire HIV Planning Council (IEHPC) is actively recruiting consumer members. The Inland Empire HIV Planning Council serves as the policy-making body for HIV/AIDS Care and Treatment in San Bernardino and Riverside Counties. IEHPC prioritizes and allocates about $7 million each year, and needs willing citizen members to provide input and join in the process. The Inland Empire HIV Planning Council would like to announce its 2012 Priority Setting and Allocations Summit, to be held July 31 - August 2, 2012 in Riverside. This summit is a critical part of the Planning Council's responsibilities, where all the relevant data required to determine the necessary priority of services needed to address the impact of HIV/AIDS in San Bernardino and Riverside Counties is considered. Community input is vital and always welcome. There will be Public Comment periods during the summit to allow individuals to discuss obstacles, challenges, shortages, or any other experience or knowledge they may have as it relates to the service categories. Information from the Public Comments will help the Planning Council in its decision making process for setting service priorities, allocating funding to identified needs, and creating directives for the Grantee on how best to help meet the needs of those affected by HIV/AIDS.
Join us at the:
Priority Setting and Resource Allocations Summit 2012
Tuesday through Thursday, July 31 - August 2, 2012 8:00 AM - 5:00 PM The Grove Community Church 19900 Grove Community Drive, Riverside, CA 92508
All Planning Council meetings are open to the public. Call 909.388.0496 for more information, or visit www.iehpc.org. (rv)
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Bring in your unused medications
D.A.P accepts unused medications through various partner programs. These programs accept expired HIV medications as well as non-HIV meds, but they do not take narcotics. Simply drop off any unused medication at the HIV Health Center front desk, at D.A.P. in Palm Springs, and we'll take care of it from there. Many of these medications go to persons with HIV/AIDS in countries in Central America and other disadvantaged locations. (rv)
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Desert AIDS Project soon to be tobacco-free
Effective September 1, 2012, the use of all tobacco products will be banned from Desert AIDS Project. This will include ALL areas, without exception, including the Serenity Garden, all pathways and walkways leading to the designated smoking area, grassy areas and parking lots. The only designated smoking area will be outdoors, on the west end of the building in the bench area. So if you're still smoking, now seems the ideal time to quit! Click here for information about HIV and smoking and advice about kicking the habit. (jl) (sb) |
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Supreme Court upholds Affordable Care Act
"Today's decision by the U.S. Supreme Court, upholding the constitutionality of the Affordable Care Act, will benefit millions of people living with HIV and other chronic, life-threatening conditions," said David Brinkman, CEO of Desert AIDS Project. "We hope that Congress will do all it can to sustain Ryan White funding and see that the ACA is fully implemented in 2014." Curtis Ringness, Jr., D.A.P.'s Board Chair added, "Even closer to home, we are also grateful that the California state budget approved last night did not include a co-pay requirement for people to receive life-sustaining medications through the AIDS Drugs Assistance Program." This seems especially important in the Coachella Valley, which is disproportionately impacted by the AIDS epidemic. According to the Riverside County Department of Public Health's HIV/STD Program, Riverside County has the fifth highest number of HIV cases and the sixth highest number of AIDS cases of any California county. The Coachella Valley has almost three times the number of PLWHA (persons living with HIV/AIDS) as any other region of Riverside County. Similarly, free and confidential HIV testing conducted by D.A.P. continues to return HIV-positive results for 3% of all tests, as compared with a 1% or less average on a national basis. A 2008 report shows that the average household income of Riverside County PLWHA is $1,079 per month, or less than $13,000 per year - nearly half the average income of all Riverside County residents. "With medication costs of $25,000 or more per year for many PLWHA, financial assistance is a matter of life-and-death," continued Brinkman. "We now know that patients with HIV are 96% less likely to pass on the infection if they are taking antiretroviral drugs. Linking everyone with HIV to proper medication and medical care could stop the spread of HIV once and for all. With the goal line so close, I hope that Congress will continue to help us get the rest of the way down the field." Editors note: Project Inform has provided a good response to today's Supreme Court decision by listing the positive impact that the ACA will have on persons with HIV/AIDS. Click to read. (rv)
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Good news: HIV therapy shown to decrease risk of bone fracture
Compared with people living with HIV and not on antiretroviral (ARV) therapy, those who are on meds are less likely to experience a fracture related to frail bones, according to new research by GlaxoSmithKline. Bone fracture has been shown to be statistically higher among HIV patients with traditional risk factors, such as prior fractures, low physical activity, excess alcohol use, low body weight, hepatitis C coinfection. And a longer period of infection combined with advancing age further increase fracture risks. The research shows that tenofovir (in Viread, Truvada, Atripla and Complera) is especially associated with reducing risk of bone fracture while protease inhibitors have no noticeable effects on fracture risk one way or the other. However, there are conflicting opinions on this issue among some researchers. Pictured here are common fractures of the tibia, the major bone in the lower leg. Click here for more on these findings and here for more about HIV and bone fractures. (sb)
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Coinfection with Hepatitis B found to be as high-risk as with Hep C
We always hate to report bad news, but new research published in Clinical Infectious Diseases suggests that HIV-positive men who are coinfected with hepatitis B virus (HBV) may be more likely to die than those with hepatitis C virus (HCV). A related study confirms that liver-related mortality remains quite high for HIV/HCV coinfected people with an AIDS diagnosis. It's more important than ever that HIV-positive people be regularly tested for any type of hepatitis coinfection. And while it doesn't make fun reading, it's imperative to remain informed, so click here and here for more on the study and hepatitis B coinfection. (sb)
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Clinical trials: HIV cure-related studies need participants
Currently, there are more than 20 HIV cure-related clinical trials enrolling and looking for qualified participants. They include immune-based therapies, vaccines and reservoir-related studies. Read more here about how to find a study and enroll, and here for a good general portal about all aspects of clinical studies. (jl) (sb)
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Paid research: HIV/Internet sexual habits study seeks participants
The HIV/Internet (HINTS) Project is looking for MSM (men who have sex with other men) 18 years old and over who are living with HIV to participate in a paid research study. This study is supported by the NIH, and is being conducted by researchers at the University of Connecticut. It will require you to participate in four anonymous online discussion sessions over a two-week period. You will also be asked to complete online questionnaires over a six-month period. You can earn up to $210 if you complete ALL of the study activities. To see if you qualify, call the HINTS confidential screening line at 860.341.7000 and read more here. (jl) (sb)
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What to expect from International 2012 AIDS Conference
The International AIDS Conference is the premier gathering for researchers, policy makers, persons living with HIV, activists and other individuals committed to ending the pandemic. It has become an annual review and assessment of where we are, an evaluation of latest scientific developments and healthcare and governmental policies, as well as a chance to collectively chart a course forward. "New developments provide a robust toolkit of prevention and treatment interventions," says Dr. Anthony Fauci (pictured), one of the pioneers in HIV/AIDS research. "Our challenge is to work collectively to implement these proven interventions to make an AIDS-free generation truly possible. This will require increased financial resources, innovation, political will, an overall strengthening of health systems, fighting stigma and greater ownership by all countries of HIV/AIDS efforts within their borders. At the International AIDS Conference, we will learn about the progress and the challenges that remain in 'turning the tide' of HIV/AIDS." Click here for the official website of the Conference and here for the full article by Dr. Fauci. (sb)
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Ongoing Benefits & Resources
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Do you have questions or need help with Medicare?
Whether you are newly eligible for Medicare or an existing beneficiary, you may need help navigating the system. The State Health Insurance Assistance Program, or SHIP, is a national program that offers one-on-one counseling and assistance to people with Medicare and their families. It offers assistance with original Medicare, Medicare Health Plans, Medicare Prescription Drug Plans, Medicare Supplemental policies and Long Term Care insurance. In California, the California Department of Aging (CDA) is responsible for the statewide administration of the SHIP which is delivered through the Health Insurance Counseling and Advocacy Program (HICAP). HICAP services can be accessed via a toll-free line 800.434.0222. The local HICAP office is located in Riverside and the phone number is 951.241.8723. Follow this link for more information. (jl)
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Desert Samaritans and The Center offer social work services for seniors
The Center has partnered with Desert Samaritans to provide social work services to seniors aged 60 and over. Each Monday between 1:00 and 3:00 PM, a social worker from Desert Samaritans will be on hand at The Center. The mission is to ensure the financial, physical and psychological well-being of seniors in the Coachella Valley through effective social service programs. Those services include:
- Advocacy on immediate challenges.
- Financial aid program assistance related to healthcare, utility bills, rent, food and emergency needs.
- Grocery relief for people unable to shop for themselves or pay for groceries.
- Transportation for medical appointments.
- Information and referrals to match requests to available community organizations and providers. (jl)
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More help paying for prescription medications
We recently reported on the City of Palm Springs Prescription Card that offers savings on prescription drugs to residents without health insurance, traditional benefits plan or need prescriptions not covered by insurance. Another resource to help pay for prescription medications is NeedyMeds. The mission of NeedyMeds is to make information about assistance programs available to low-income patients and their advocates at no cost. Go to the website, look up the medications you need and you'll be directed to the patient assistance program website for that manufacturer. The site also offers a free drug discount card that is accepted at more than 62,000 pharmacies. If you are having trouble paying for your medications this site is worth a look! (jl) (sb)
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| D.A.P. toll-free number and website
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Discounts all summer at Revivals!
Revivals stores continue to offer 10% discounts for "seniors"--anyone over 55--every Tuesday. In addition, Revivals offers 50% off men's clothing the first Thursday of each month and 50% off women's clothing on the first Friday of each month. Discounts are available on all donated items but does not include consignment or "new" items. Visit Revivals' website for store locations, hours and other information. (jl)
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DAPCAN archives always available online
Need another look at something you read in DAPCAN? You can find past issues online by clicking this link. As always, you can also read the most current edition of DAPCAN on the D.A.P. website by visiting www.desertaidsproject.org/newsletter. And we've recently updated these links to ensure that the very latest issues of DAPCAN are always available. (jl) |
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Medically Indigent Services Program (MISP)
AIDS Drug Assistance Program (ADAP)
For those who qualify, medical care and help paying for your medications are available through the MISP and ADAP programs. You can find out if you qualify by scheduling an appointment by calling the numbers below. You can schedule your MISP and ADAP appointments together for Moreno Valley office ONLY. If you qualify for ADAP only, there is a local ADAP office right across the driveway, south of Desert AIDS Project, at the Palm Springs Family Care Center. Specify the Palm Springs office when you call to make your appointment. Here are the numbers:
877.501.5085 - toll free
951.486.5375 - English
951.486.5400 - Spanish
951.486.4635 - fax
NOTICE: Faxed MISP applications can get lost in the process. Most persons who have faxed their application have had to re-apply later. It's best to apply in person in Moreno Valley, and get a "receipt of application", and use that as proof that you applied to avoid any uninterrupted services with your DAP medical doctor visits. (rv) (jl)
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ADAP may pay Medicare Part D premium
ADAP-eligible clients who have to purchase Part D prescription drug coverage may qualify to have their Part D premium paid by the State of California. Follow this link to the Part D Premium Payment Program Application. You can also call the State of California at 916.449.5900 for more information. (jl)
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Call 211 for essential human services in Riverside County
2-1-1 is a toll-free service for residents looking for information about essential human services such as affordable housing, food pantries, help for an aging parent, free or low cost health services, addiction prevention programs, employment, support groups, volunteer opportunities, and 1,700 additional services! (jl)
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To contact state and federal officials click on name:
President Barack Obama Senator Diane Feinstein Senator Barbara Boxer Congresswoman Mary Bono Mack Congressman Jerry Lewis Governor Jerry Brown State Senator Bill Emmerson State Senator Juan Vargas Assembly member Brian Nestande Assembly member Manual Perez
Desert AIDS Project - Community Action Newsletter (DAPCAN) presents published material, reprinted with permission, and neither endorses or opposes any material. All information contained in this newsletter, including information relating to health conditions, products, and treatments is for informational purposes only. It is often presented in summary or aggregate form. It is not meant to be a substitute for the advice provided by your own physician or other medical professional. Always discuss treatment options with a physician who specializes in treating HIV. Publication of the name or likeness of any individual in articles in this newsletter is not to be construed as any indication of the HIV status of such individual. If you do not wish to receive this e-newsletter, please notify us by using the email address below:
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Additional Contacts/Social Networking
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