DAPCAN
Desert AIDS Project
Community Action Newsletter
March 29, 2012



President Obama's
 Landmark Healthcare Law
 now under review
by U.S. Supreme Court   


Editorial Staff

David Brinkman

Chief Executive Officer

 

Barry Dayton

Director of Marketing and Communications

 

Alexis Ortega

Interactive Marketing

Specialist

 

Rick Vila

Volunteer Co-editor

 

John Lewis

Volunteer Co-editor

 

Steve Bolerjack

Volunteer Co-editor

 
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In This Issue
Save the Date
Tool Shed, PSLOD support HIV testing at D.A.P.
CROI 2012 at a glance
Despite antivirals, HIV-positive men may still be infectious
Marijuana and CD4s: new HIV treatment strategy?
Healthcare Law, Supreme Court and HIV
State Senator Bill Emmerson fails to support ADAP
Tell your representative to protect funding for HIV programs
Editor's Corner
MISP and ADAP contact information
Save the Date

Saturday, March 31, 6:00 PM - 9:30 PM  

Third Annual Celebrity Doodles to benefit D.A.P.  

celebritydoodleCelebrity Doodles has become an annual opportunity to mingle among some of your favorite stars in an evening of fun, food and festivities.  Afterward, the proceeds of both silent and live auctions of art by some of these celebrities will be donated to Desert AIDS Project. This year will feature performances by  Suzanne Somers, Lorna Luft and Meredith Patterson.  Click here for the event website, a list of celebrities expected to attend and more information.  (sb)

Tuesday, April 3, 6:00 PM 

A Positive Life - The Series:  An Update from the 2012 Retrovirus Conference
pozlife8The next seminar in the Positive Life Series will bring the latest information from CROI 2012, the 19th Annual Conference on Retroviruses and Opportunistic Infections held earlier this month in Seattle.  Drs. John Stansell and Clayton Barbour will share the latest news in HIV/AIDS therapies.  A light supper will be served at 6:00 PM, and the program will begin at 6:30 PM.  The location is the Sinatra Auditorium at Desert Regional Medical Center (at the corner of Tachevah and Via Miraleste in Palm Springs), and the event, sponsored by Jewish Family Services of the Desert, is always free.  ASL translation will be provided.  Questions? Email positivelifeseries@gmail.com, or call 760.566.6POZ (6769). However, YOU DO NOT NEED TO RSVP!  The following Positive Life Series seminar will be on Tuesday, May 1 on the topic of HIV and Cardiovascular Health, featuring speaker Ruben Gamundi.  

Thursday, April 12, 4:00 - 6:00 PM

HIV Wisdom for Older Women    

100 WOMEN, a major donor group at Desert AIDS Project dedicated to helping those affected by or at-risk for HIV/AIDS, invites women--and men--of any age to join them for wine and hors d'oeuvres on Thursday, April 12 from 4:00 - 6:00 PM at the Viceroy Hotel at 415 S. Bellardo Road in Palm Springs. Attendees will meet Jane Pecinovsky Fowler (pictured) and hear how her HIV infection in later life has led to her work to serve the under-represented community of older women with HIV. Fowler, retired from more than 30 years as a career journalist, is helping to raise public awareness that HIV infection can and does impact mid-life and older women.  Following her HIV diagnosis in 1991, Fowler became an activist and public speaker in 1995. She was a co-founder of the National Association on HIV Over Fifty (NAHOF) and went on to found an organization called HIV Wisdom for Older Women, dedicated to HIV prevention and care, in 2002 that she continues to lead today.  Those interested in attending on April 12, are asked to RSVP to Sue Knollenberg by calling 760.323.9641 or emailing her at sknollenberg@desertaidsproject.org (rv) 

 

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Thursday, April 19, 7:00 PM

 "Woven Voices"

wovenvoicesShare the life experience of three long-time survivors of HIV/AIDS at a reading of their collective work, entitled "Woven Voices," in the Sinatra Auditorium at Desert Regional Medical Center in Palm Springs on Thursday, April 19 at 7:00 PM. The one-hour reading will be followed by a Q&A session. Those considering attending should be aware that some "adult language" will be used throughout the reading.  (rv) 

  

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Thursday, April 26, breakfast, lunch & dinner 

Dining Out for Life 

DOFLYou can support HIV/AIDS services at Desert AIDS Project simply by dining at any of the Dining Out for Life participating restaurants throughout the Coachella Valley on Thursday, April 26!  Follow this link for more information and a list of participating restaurants. (jl)
  

D.A.P. Community Center Events

The D.A.P. Client Community Center hosts regular activities and events every week (listed below).  Community Center special events and other activities can be found on the main D.A.P. website.  Click here for the complete list of upcoming special events.

  

Tuesday, April 3, 11:45 AM - 1:00 PM  

Community Center Presents:  HIV & CHOLESTEROL

cholesterol

Join us for a luncheon sponsored by Janssen Therapeutics.   The presentation will be facilitated by Joseph Leahy, Community Liaison Specialist.  Luncheon will be served at 11:45 AM.  Please RSVP to Ray at 760.323.2118, ext. 295 by 3:00 PM, Monday April 2, or at rrobertson@desertaidsproject.org 

 

  

Protect your health, sign up now!

 

   

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Every Thursday, 1:00 PM
Community Center Presents:  MOVIE & PIZZA
Thursday, April 5 - The Wedding Date (2005)
weddingdateSingle-girl anxiety causes Kat Ellis to hire a male escort to pose as her boyfriend at her sister's wedding.  Starring Debra Messing and Dermot Mulroney. Directed by Clare Kilner.



Come out for a good flick! 


 

  

Ongoing Client Community Center activities include:

  • Support groups 
  • Spiritual Living 101  
  • Hepatitis C Therapy Education
  • Diabetes Education
  • Stitch in Time (needlecraft), Wednesdays, 10:00 AM 
  • Community Center Computer Lab
  • Lending Library
  • Free films, Thursdays, 1:00 PM    

Follow this link to see the recurring activities on the Community Center Calendar.  

 


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D.A.P. & Community News  
Tool Shed, Palm Springs Leather Order of the Desert continue support of free, confidential HIV testing at D.A.P.                                                                            toolshed3The Tool Shed Bar in Palm Springs recently raised $4,200 to help fund HIV testing at D.A.P. with its Tenth Annual Erotic Art Expo and Silent Auction, which ran from February 23 to March 5.  While the Expo was showing at the bar, Palm Springs Leather Order of the Desert (PSLOD), with the assistance of the Cleveland Leather Awareness Weekend (CLAW), raised an additional $2,000 for testing.  Over ten years, the Tool Shed has raised more than $35,000 for local charities.  Owner Chris Rees says he hopes to get even greater community support for the effort next year.  "The gay community in the Palm Springs area has never wavered in its support of our care, prevention, and advocacy efforts," said David Brinkman, CEO of Desert AIDS Project.  "But while men who have sex with men continue to be at significant risk, this has never been a 'gay disease.'  That's why we continue to reach out to all segments of the population--not only to lend their financial support, like our friends at the Tool Shed--but to help us get everyone tested for HIV on a regular basis."  (sb)

(Pictured L-R: Dane Luna, bartender and Event Assistant; Tim Bridges, Bridges Editorial & Graphics and Event Coordinator; George Puddephatt, President of PSLOD; Dennis Cramer, Mr. Tool Shed Leather 2003 and originator of the Art Expo; David Brinkman, CEO of Desert AIDS Project; Chris Rees, owner of Tool Shed Bar; and Leo Newcomb, Treasurer of PSLOD)  

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New Bereavement Support Group in Palm Springs

supportJewish Family Services (the people who sponsor The Positive Life Series) and the Visiting Nurse Association of the Inland Counties Hospice announce a new Bereavement Support Group now meeting weekly in Palm Springs. This is a new grief support group for anyone mourning the loss of someone close to them.  Meetings are every Wednesday, 3:30 - 5:00 PM at the Jewish Family Services offices located at 801 East Tahquitz Canyon Way, Suite 202, in Palm Springs.  Call 760.674.0451 ext. 6308 for more information.  (jl)  

  

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HIV & Other Health News 

CROI 2012 at a glance, and save the date for next year
croi2013We have tried to cover The Conference on Retroviruses and Opportunistic Infections (CROI) this year due to the significant and urgent issues it addresses every year.  We ran a summary last week, but offer one more here which is a fairly quick checklist of the highlights and more important results announced at this year's Conference.  This should provide a handy preparation guide if you're planning on attending next week's Positive Life series (see above) which will cover the conference in depth.  Speakers will be our local Doctors John Stansell and Clayton Barbour.  (sb)

,  

Study finds that despite antivirals, HIV-positive men may still be infectious    twomenHIV positive men who have sex with men may continue to have detectable virus in their semen despite being on combination antiretroviral regimens that suppress blood plasma viral load, according to a new study just published in the online edition of AIDS.  The "treatment as prevention" theory had become a key principle of protection between heterosexuals.  However, according to researchers, "HIV-positive men may believe they are unlikely to infect a male partner based on incorrect assumptions that antiviral therapy eliminates HIV from semen.  Until more information on transmission risk is available, it would be prudent to advise sexually active HIV-infected men to use condoms and other risk-reduction strategies throughout all stages of HIV disease regardless of treatment status."  Click here to read more on this study.  (sb)

Marijuana and CD4s: new HIV treatment strategy?

medmarijuanaFor years, marijuana--purchased legally or not--and either smoked or ingested, along with its synthetic counterpart Marinol (dronabinol) have been used by many people living with HIV (and other chronic illnesses) to manage various symptoms of illness, including pain, depression, nausea, neuropathy and weight loss.  Now a new study conducted by the Mt. Sinai School of Medicine in New York suggests that the active ingredient in marijuana (tetrahydrocannabinol) may prove effective at blocking a form of HIV that has been linked to faster disease progression during late stages of the infection.  It all involves complex interactions between various types of CD4s, CD2s, and other immune cells.  The science is a bit thick, but it's worth a look here.  While the Mt. Sinai researchers stop short of concluding that marijuana could be one of nature's best antiretrovirals, they suggest the possibility certainly merits further study of cannabinoids and their effect on HIV replication and immune cell response.  (sb)

 

Advocacy 
The Affordable Care Act, the Supreme Court and HIV communities 
obamahealthcare
As the U.S. Supreme Court reviews the Patient Protection and Affordable Care Act (the "ACA") in coming weeks, people living with HIV/AIDS and activists should be watching closely and critically.  And those who do not have access to healthcare through organizations such as D.A.P. ought to be especially alert.  For many of approximately 1.2 million people living with HIV in this country, the Court's decisions will directly affect access to quality care and life-saving treatment over a very long term.  Among many health-related communities that will be profoundly affected by the new healthcare law, those with HIV represent an exceptionally strong example of the positive impact the ACA will have, and a particularly compelling argument for the constitutionality of the controversial "mandate," which requires everyone to purchase health insurance.  Click here and here for assessments of what's at stake for our communities.  Click here for a great summary that spells out specifics for ACA and HIV-positive patients.  And if you feel especially ambitious, click here for Lambda Legal's amicus curiae brief to the Court.  Keep in mind there will be massive publicity--both pro and con, liberal and conservative--on this case over the next few weeks, but that final rulings by the Court are not likely until June at the earliest.  (sb) 

 

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Volunteer for AIDS 2012 Conference
aids2012xxThe success of the AIDS 2012 Conference (July 22 - 27 in Washington, DC) will depend heavily on the support of up to 2,000 volunteers who will fill a range of crucial positions, including helping coordinate program activities, greeting and registering delegates and staffing various offices. Volunteering can be a great way to gain international experience and support the world's largest international meeting on AIDS.  In addition, volunteers can participate in the conference, with unlimited access to all conference sessions outside their shifts. The online volunteer application will be available on the AIDS 2012 website as of April 1.  Click here for more information on volunteering. (sb)  

 

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State Senator Bill Emmerson votes against ADAP

antiemmersonThe AIDS Drug Assistance Program (ADAP) is a tremendous support to people living with HIV who are unable to afford the substantial cost of lifesaving medications.  Recently there was concern that the new California budget would implement a co-pay for ADAP.  Earlier this month the issue came up for a vote in the Health and Human Services Subcommittee of the Senate's Budget and Fiscal Review Committee and fortunately, the proposal was defeated 2-1.  Unfortunately, the lone dissenting vote was cast by our own State Senator, Bill Emmerson!  Send a note to Senator Emmerson telling him that his vote was unacceptable, that you demand his full support of ADAP and as a constituent, will remember his vote on this vital issue as he runs for re-election this year.  Emmerson is a conservative Republican and consistently receives very low ratings from groups that monitor public officials' positions on HIV/AIDS, marriage equality, pro-choice and LGBT interests.  Click here to read an account of the subcommittee vote and about the importance of ADAP to Californians living with HIV/AIDS.  (jl) (sb) 

 

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Tell your representative to protect FY 2013 funding for HIV programs!
congressalertBudget discussions in Congress on the next fiscal year will continue for some time so it's not too late to contact your senators and congressperson to urge continued funding for HIV-related programs that keep people healthy and housed.  Five different "Dear Colleague" letters are now circulating on Capitol Hill asking that Congress give adequate funding to domestic HIV programs. Tell your representative to sign letters and support HIV/AIDS program funding in next year's budget.  (jl) (sb)

 

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This & That
New observations: Milky Way may harbor billions of habitable planets
milkywayWhen we get tired of health issues, insurance hassles, bills and pills, we like to contemplate bigger things.  New studies by astrophysicists at several observatories around the world suggest that our Milky Way Galaxy may contain billions of potentially habitable planets, places that are in the "Goldilocks Zone" of their star, in the same way that Earth is at an ideal distance from our sun to harbor life.  So far, just a few such planets have been confirmed, but extrapolations from the survey and the fact that the Milky Way includes 200 - 400 billion stars suggest such bodies are quite common throughout the galaxy.  And about 100 are within earth's cosmic neighborhood.  Click here for a cool article and explanatory video.  (sb)

 

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Editor's Corner
Paging ACT UP...
by Steve Bolerjack 

larrykrameractup
"Every treatment for HIV/AIDS exists because gay activists, almost all from ACT UP, fought like tigers to get them," writes Larry Kramer (pictured), one of the surviving founders of what was officially known as the AIDS Coalition to Unleash Power.  Kramer is right.  The fact that many of us are still even here is in part, traceable to the demonstrations, arrests, civil disobedience, often outrageous and always controversial activities of ACT UP.  It was the first organized, radical movement whose primary purpose was to force America's attention onto AIDS and the appalling death toll it was taking by 1987.

    

We don't hear much about ACT UP anymore and it may be a surprise to learn that this month marks its 25th anniversary.  Well, I remember it vividly and I'm sure many DAPCAN readers do as well.  I first heard about ACT UP shortly after its formation, which happened to coincide around the same time I tested HIV-positive.  Living in New York City, I'd already been to many funerals of friends, knew others who were ill or soon would be, but I didn't give much thought to something like ACT UP.  I was still young, healthy and caught up in a demanding career.  I had a lot of stuff to do, I told myself, and didn't have time to be much of an activist.  I essentially remained in denial--about having HIV, about illness, about the life and death issues of political involvement.

 

Meanwhile, ACT UP quickly attracted national attention through demonstrations at places like Wall Street, the New York Stock Exchange, the FDA, St. Patrick's Cathedral and many sites around the country.  The organization and Kramer especially, were brutally criticized in some circles, even within the gay community, for what some called "anarchy" and "blasphemy" (the Cathedral incident remains notorious).  Yet it's undeniable that ACT UP combined with the "Silence = Death" project succeeded as nothing else had in finally shaking the country out of its apathy toward AIDS.

 

Eventually, I did participate in some ACT UP events and not just because my health began to decline.  I attended some demonstrations and marches, waved signs and yelled a lot.  But I never got arrested, never got interviewed, never got into fights, never scuffled with police.  And today I regret that.  I deeply wish that I had had the foresight, courage and maturity to contribute more to ACT UP, and to do so much earlier.  If not for the spark of ACT UP, the government, FDA, researchers and pharmaceutical companies are unlikely to have done anything urgent or timely.  Lifesaving drugs would have taken more years to come and the death list would be even longer.

 

Today, ACT UP continues, but barely.  Yet that is not out of lack of need.  Larry Kramer, still outspoken and irascible at 76, sums up what happened to ACT UP here and emphasizes how much could still be accomplished by similar tactics for LGBT rights and HIV/AIDS solutions.  Kramer's article is important history.  It's significant to remember that his anger, energy and the offbeat organization he helped found have much to do with why we are still here to remember at all.  A new film documentary, United in Anger: A History of ACT UP will be released this spring.  Click here to learn more about it.  

 

  

Quote of the Week

"It's exhilarating to be alive in a time of awakening consciousness; it can also be confusing, disorienting and painful."
                                           
--Adrienne Rich, pioneering feminist poet and essayist
                                                                        1929 - 2012
Benefits & Resources

The NestEggg Group offers free tax preparation for D.A.P. clients
taxesThe NestEggg Group is offering free filings for 2011 IRS and California taxes for clients of D.A.P.  The free service does not include research or amended returns, past years returns, or other complex tax matters.  Processing fees apply for electronic filings and appointments are required.  Please call NestEgg at 760.322.4622, ext. 205, or email them at accounting@nesteggg.com.  (Be sure to reference D.A.P. taxes in the subject line). (jl)


Discounts at Revivals! 

malemodelsRevivals stores continue to offer 10% discounts for "seniors"--anyone over 55--every Tuesday.  In addition, Revivals offers 50% off men's clothing the first Thursday of each month and 50% off women's clothing on the first Friday of each month.  Discounts are available on all donated items but does not include consignment or "new" items.  Visit Revivals' website for store locations, hours and other information. (jl)  

  

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D.A.P. Resources: website and toll-free number
 
oldphoneops
Remember that the Desert AIDS Project toll-free phone number is always available at 866.331.3344, as is the website at www.desertaidsproject.org. (jl)

 computeroldlady    

   

 

 

 

  

DAPCAN archives always available online
archives2Do you need to take another look at something you read in DAPCAN somewhere only to find that it's long gone from your inbox?  You can find past DAPCAN issues online by clicking this link.  As always, you can also read the most current edition of DAPCAN on the D.A.P. website by visiting www.desertaidsproject.org/newsletter.
 
(jl)

 

Medically Indigent Services Program  (MISP) 

AIDS Drug Assistance Program (ADAP)

For those who qualify, medical care and help paying for your medications are available through the MISP and ADAP programs.  You can find out if you qualify by scheduling an appointment by calling the numbers below.  You can schedule your MISP and ADAP appointments together for Moreno Valley office ONLY.  If you qualify for ADAP only, there is a local ADAP office right here at Desert AIDS Project.  Specify the Palm Springs office when you call to make your appointment.  Here are the numbers:

877.501.5085 - toll free 

951.486.5375 - English         

951.486.5400 - Spanish

951.486.4635 - fax   

  

NOTICE: Faxed MISP applications can get lost in the process. Most persons who have faxed their application have had to re-apply later. It's best to apply in person in Moreno Valley, and get a "receipt of application", and use that as proof that you applied to avoid any uninterrupted services with your DAP medical doctor visits. (rv) (jl)

 

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ADAP may pay Medicare Part D premium

ADAP-eligible clients who have to purchase Part D prescription drug coverage may qualify to have their Part D premium paid by the State of California.  Follow this link to the Part D Premium Payment Program Application. You can also call the State of California at 916.449.5900 for more information. (jl) 

 

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Call 211 for essential human services in Riverside County

2-1-1 is a toll-free service for residents looking for information about essential human services such as affordable housing, food pantries, help for an aging parent, free or low cost health services, addiction prevention programs, employment, support groups, volunteer opportunities, and 1,700 additional services! (jl)

 

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To contact state and federal officials click on name:

President Barack Obama
Senator Diane Feinstein
Senator Barbara Boxer
Congresswoman Mary Bono Mack 
Congressman Jerry Lewis
Governor Jerry Brown
State Senator Bill Emmerson
State Senator Juan Vargas
Assembly member Brian Nestande
Assembly member Manual Perez

 

Desert AIDS Project - Community Action Newsletter (DAPCAN) presents published material, reprinted with permission, and neither endorses or opposes any material.  All information contained in this newsletter, including information relating to health conditions, products, and treatments is for informational purposes only.  It is often presented in summary or aggregate form.  It is not meant to be a substitute for the advice provided by your own physician or other medical professional.  Always discuss treatment options with a physician who specializes in treating HIV.  Publication of the name or likeness of any individual in articles in this newsletter is not to be construed as any indication of the HIV status of such individual.  If you do not wish to receive this e-newsletter, please notify us by using the email address below:

 

For questions, comments, or unsubscribe contact us at: DAPCAN@DesertAIDSProject.org 

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