Catalyst Center Quarterly
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Fall 2012
Quote

 

"Children can never have too many people who love them."

 

~Unknown

Message from the Catalyst Center

 

Greetings!,

 

Fall can be a time to celebrate new beginnings - the scent of freshly sharpened pencils and new shoes lend a sense of anticipation to the start of the school year and the learning ahead. Here at the Catalyst Center, we have been learning about the needs of an under-recognized group of children and youth with special health care needs (CYSHCN): those in foster care. This issue of Catalyst Center Quarterly focuses on this group of vulnerable children with the launch of a primer that discusses the challenges and opportunities in the coverage and financing of their health care.

 

Since our last issue of Quarterly, the U.S. Supreme Court came out with its ruling upholding the constitutionality of the Affordable Care Act (ACA). As outlined in our statement immediately following the rulingthe Catalyst Center has been working since the passage of the law in 2010 to provide states and stakeholders with information and analyses on the implications of the ACA for CYSHCN. One example came as part of our recent webinar series focused on Medicaid and the Children's Health Insurance Program (CHIP). We invite you to listen to the recording of our September 19th webinar titled What Changes Can I Expect from the ACA and How Do I Make the Case for Partnership in My State?

 

Another of the many ACA-related topics that we have been following closely is the Supreme Court's decision that made the Medicaid expansion optional for states. Read about the implications of the Medicaid expansion for CYSHCN and young adults with special health care needs and please e-mail Meg Comeau with any additional questions you may have.

 
Sincerely,

The Catalyst Center Team
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Article3Financing the Special Health Care Needs of Children and Youth in Foster Care: A Primer
PrimerSnapshotOver the past several months, the Catalyst Center has done extensive research and consulted with experts in the field to create a primer in which we focus on the health care coverage and financing needs of children and youth in foster care. 

 

State Title V Maternal and Child Health (MCH) and CYSHCN programs can play a significant role in improving the system of coverage and care for this group of vulnerable children. With the informa�tion provided in this primer, we hope to spark interest in and facilitate a deeper understanding of the health care coverage and financing needs of children in foster care.

 

 Executive SummaryGo to link

 

 

Children in foster care are children with special health care needs.

 

Currently, approximately 700,000 children in the U.S. receive foster care services over the course of a year, and an estimated 400,540 children were reported to be in foster care on September 30, 2011.[1] A high percentage of children enter foster care after hav�ing experienced extreme poverty, parental substance abuse, homelessness, neglect, and sexual and/or physi�cal abuse.[2,3] Children in foster care are vulnerable in many ways and should be considered important members of the population of CYSHCN because of their increased risk for and prevalence of poor physi�cal, developmental and mental health status and out�comes.[4] Compared with children from similar socio�economic backgrounds, children in foster care are in poorer overall health and have higher rates of serious emotional and behavioral problems, chronic medical conditions, and developmental delays.[3]Children in foster care also have a higher incidence of diagnosed dis�ability than the general population of children do.

 

Children in foster care face challenges in the cover�age and financing of their health care.

 

The child welfare system is a complex arrangement of federal, state, and private partnerships with multiple stakeholders. Only a small percentage of children who enter the child welfare system are placed in some form of out-of-home care.[5] There are a variety of different types of foster care settings and where children end up is due to their level of need and the resources avail�able within a state to meet that need. Different foster care settings have varying implications for coverage and financing of health care for children. For example, children in formal kinship care placement are five times more likely to lack health insurance than chil�dren in non-relative foster care and are also less likely to receive mental health services.[6]  

Endnotes
  1. U.S. Department of Health and Human Services, Administration for Children and Families, Administration on Children, Youth and Families, Children's Bureau. (2012). The AFCARS Report: Preliminary FY2011 estimates as of July 2012. Retrieved August 7, 2012 from http://www.acf.hhs.gov/programs/cb/stats_research/afcars/tar/report19.pdf
  2. U.S. Department of Health and Human Services, Administration for Children and Families, Administration on Children, Youth and Families, Children's Bureau. (2011). Child maltreatment 2010. Retrieved May 1, 2012 from http://www.acf.hhs.gov/programs/cb/stats_research/index.htm#can
  3. American Academy of Pediatrics. (2002). Health care of young children in foster care. Pediatrics, 109(3), 536 -541.
  4. American Academy of Pediatrics, District II Task Force on Health Care for Children in Foster Care. (2005). Fostering Health: Health care for children and adolescents in foster care. 2nd Ed. Retrieved June 10, 2011 from http://www.aap.org/fostercare/FosteringHealth.html
  5. Waldfogel, J. (2003). Welfare reform and the child welfare system. Children and Youth Services Review, 26(10), 919-939.
  6. Berman, S. & Carpenter, S. (2004). Findings brief: Children in foster care and kinship care at risk forinadequate health care coverage and access. Retrieved August 7, 2012 from Changes in Health Care Financing Organization, Academy Health website:http://www.hcfo.org/pdf/findings0704.pdf
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QuestionsYour Questions About the Medicaid Expansion Provision of the Affordable Care Act Answered

 

The Catalyst Center responds to questions from stakeholders about policies related to coverage and financing of care for children and youth with special health care needs (CYSHCN). On June 28, 2012, the U.S. Supreme Court announced its decision that the Affordable Care Act (ACA) as a whole is constitutional. However, the Court also said that the provision in the ACA that required state Medicaid programs to increase eligibility contained a "coercive" penalty. Therefore, the Medicaid expansion provision is optional. States may choose to implement it, but it is not mandatory for them to do so. Since that time, stakeholders have had questions about the implications of the optional Medicaid expansion for CYSHCN. The following provides some answers.

What is the Medicaid expansion provision and to whom does it apply?

Title II, Section 2001 of the ACA describes Medicaid Coverage for the Lowest Income Populations.1
This provision directs states in 2014 to expand their Medicaid eligibility to include legally residing, non-pregnant, non-disabled individuals, ages 19 to 65, with family income of less than 133% of the federal poverty level (FPL).2 Currently, non-disabled, childless adults between ages 19 and 64 are not eligible for Medicaid in most states regardless of their income. (See the Kaiser Family Foundation State Health Facts chart Medicaid Waiver and State-Funded Coverage Income Eligibility Limits for Childless Adults, 2009 to learn about the status of non-disabled, childless adult coverage in your state.)
Note: With income disregards, individuals can qualify for Medicaid up to 138% FPL. We will use 138% throughout the rest of this document. 

 

What impact did the U.S. Supreme Court decision have on this ACA provision?

 

In June, the U.S. Supreme Court issued its ruling on several key questions regarding the constitutionality of the ACA. (See the Catalyst Center's analysis of the ruling.) The Court decided that the ACA as a whole is constitutional - with one exception.

Read on...

  1. http://www.healthcare.gov/law/resources/authorities/title/ii-role-of-public-programs.pdf
  2. http://aspe.hhs.gov/poverty/12poverty.shtml 
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Article4Announcements and Events

 

Catalyst Center Medicaid/CHIP Tutorial and Webinar Series

 

Earlier this year, the Catalyst Center released its latest technical assistance tool, Public Insurance Programs and Children with Special Health Care Needs: A Tutorial on the Basics of Medicaid and the Children's Health Insurance Program (CHIP). The tutorial provides an overview of the state Medicaid and CHIP programs, the many different populations served by them, pathways to eligibility, models for service delivery and quality improvement, and the changes these programs will undergo as the Affordable Care Act (ACA) is implemented. Each section of the tutorial also includes ideas and activities that Title V programs and others might undertake to build partnerships with and improve public benefit programs for children and youth with special health care needs (CYSHCN).

As a follow-up to the release of the tutorial, over the past several months the Catalyst Center has hosted a series of five webinars to introduce it to stakeholders. The goal of the webinar series was to help participants:

  • Increase their understanding of state Medicaid and CHIP programs and policies;
  • Learn how partnerships with other stakeholders can maximize Medicaid and CHIP program capacity to meet the needs of CYSHCN; and
  • Begin to identify specific opportunities to promote partnerships with the Medicaid and CHIP programs in their own state.

The tutorial emphasizes the importance of partnerships among stakeholders in improving coverage and financing of care for CYSHCN. To model the benefits of partnership, we invited a guest to co-present material in each webinar with us. We extend our thanks to our partners at the Maternal and Child Health Bureau (MCHB), the National Association for State Health Policy (NASHP), several state Title V programs, CHIPRA (Children's Health Insurance Program Reauthorization Act) Quality Improvement grantees, the Association of Maternal and Child Health Programs (AMCHP) and the many family leaders who generously shared their time and expertise with our audience.

 

The objective of this webinar series was to help you understand how to use this new resource in your work on behalf of CYSCHN. During open discussion, which was part of each webinar, participants learned from each other by sharing how they have used the information to build partnerships with Title V, Medicaid/CHIP staff, family leaders, and  other stakeholders to improve health care coverage and financing for CYSHCN. We sincerely thank the webinar audience for their time, attention, and thoughtful questions.

 
Listen to the recording and download the slides for each webinar
 

The Catalyst Center has updated its web-based state data pages on coverage and financing of care for children and youth with special health care needs (CYSHCN) for each state, the District of Columbia, and Puerto Rico. The state pages now include the most recent data from sources that include the 2009-10 National Survey of Children with Special Health Care Needs, the Kaiser Family Foundation, and the American Board of Medical Specialties, among others. 

Use these pages to look up data for your own state, as well as to compare data from two states and the nation in a single, printable table. You can also display detailed source information and tips for interpreting specific data.  

Our goal at the Catalyst Center is to support your efforts to improve coverage and financing of care for CYSHCN in your state. The online state data pages are an important tool to help. Explore the improved and updated state pages. Contact Meg Comeau, Catalyst Center project director, at 302-329-9261 for additional technical assistance on coverage and financing of care for CYSHCN in your state.  

Besides updating the information in our web-based state data chartbook, we have improved the web pages to ensure that the information is presented correctly when read by screen reader technologies. The Catalyst Center is committed to providing access to information for everyone, including people with visual impairments. If you are having trouble accessing information on our site, we want to know about it. Please send us a message with any questions or concerns.
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MediaHighlightsMedia Highlights

By Susan L. Parish, Subharati Ghosh, and Jamie Swaine

Lurie Institute for Disability Policy

The Heller School for Social Policy and Management, Brandeis University

September 2012

In order for children with disabilities younger than 18 years of age to be eligible for the Supplemental Security Income (SSI) program, they must meet the SSI childhood listings of impairments, family income must be very limited, and assets cannot exceed $3,000 for a two-parent family or $2,000 for a single parent family. This year, the SSI cash benefit is $698 per month, although some states supplement this federal maximum. Using data from the 2004 and 2008 Survey of Income and Program Participation  (SIPP), the authors examined the relationship between families whose children receive SSI and their ability to meet household expenses such being able to purchase adequate food and pay rent and utilities. Forty-one percent of families reported they could not meet expenses or purchase enough food. Thirty-six percent said they could not pay utility bills; 20% went without dental care; 19% could not pay rent; and 16% did not receive medical care. Families with more than one child with a disability experienced increased financial hardship. For all families with income less than 200% of the federal poverty level (FPL), families whose children received SSI experienced significantly greater hardship than families of children without disabilities. Based on these findings, the authors concluded that SSI cash benefits are inadequate and put children with disabilities at increased physical, emotional, social, and academic risk due to deprivation. 

By Michelle Diament

Disability Scoop

September 18, 2012

The Aging and Disability Resource Centers (ARDCs) assist individuals with disabilities in identifying the services and supports for which they are eligible. These one-stop resource centers will now also receive some much-needed support. The U.S. Department of Health and Human Services (HHS) is providing $12.5 million to help fund counselors who will help consumers, regardless of income, navigate the system of services and access supports.

 

Learn more about the ARDCs. Visit the Aging and Disability Resource Center Technical Assistance Exchange to connect with the ARDC in your state.  

 

By Phil Galewitz

Kaiser Health News

September 12, 2012

Sometimes being wrong can be good news. Despite the predictions of health policy experts that there would be an increase in the number of people without health insurance, the number of uninsured Americans is on the decline for the first time since 2007. The U.S. Census Bureau report, Income, Poverty, and Health Insurance Coverage in the United States: 2011 found that 15.7% of Americans were uninsured in 2011, down from 16.3% of Americans without health insurance in 2010. According to the Census Bureau, two major factors account for this trend. While the number of people with private health insurance has not changed significantly in the last 10 years, the number of people enrolled in Medicaid or other public benefit programs has increased. Young adults, ages 19 to 25, made the biggest gains in obtaining health insurance coverage. While the Census did not collect data on which category young adults were insured under, this Kaiser Health News article reports that the Housing and Household Economic Statistics Division of the U.S. Census Bureau thinks the increase "is likely due" to young adults gaining coverage through a parent's health plan. This article also reports that directors from the Economic Policy Institute and the Urban Institute agree that "it appears" as though young adults are benefitting from the provision of the Affordable Care Act (ACA) that allows parents to extend health coverage to their adult children. Additionally, John Holahan, director of the health policy research center at the Urban Institute is quoted as saying, "the health law's 'maintenance of effort provision' has blocked states from making it harder to qualify for Medicaid," which may also contribute to the decrease in the number of uninsured.

From the Center for Medicaid and CHIP Services

August 28, 2012

In order to focus its efforts on the identification and deportation of individuals who represent a high priority security or public safety risk, the U.S. Department of Homeland Security (DHS) announced a process for Deferred Action for Childhood Arrivals (DACA). As of June 15, 2012, individuals younger than 31 years old, who were brought to the U.S. as children, and certain others, will be considered for "temporary relief from removal." Beginning on August 15, 2012, individuals could apply to DHS for "consideration of deferred action." This letter from Cindy Mann, the Director of the Center for Medicaid and CHIP services, reports the decision by the U.S. Department of Health and Human Services (HHS) with regard to public health coverage. Individuals who remain in the U.S. under DACA are not considered to be "lawfully present;" therefore, they are not eligible for Medicaid or the Children's Health Insurance Program (CHIP). 


By Shaun Heasley

Disability Scoop

September 11, 2012

This article reports the results of a U.S. Department of Justice (DoJ) investigation of six nursing homes in Florida. Investigators found more than 200 children with disabilities who could potentially live in community-based settings with appropriate supports were instead living in these residential facilities. Thomas Perez, the U.S. Assistant Attorney General, advised the Florida state attorney general that the state was in violation of the Americans with Disabilities Act (ADA). Disability Scoop reports Attorney General Perez as writing, "The state's reliance on nursing facilities to serve these children violates their civil rights and denies them the full opportunity to develop bonds with family and friends and partake in education, social and recreational activities in the community." In interviews with investigators from the DoJ, many of the parents said they were unable to obtain the supports they needed in order to care for their children at home. Community support programs for individuals with developmental disabilities in Florida have sustained budget cuts, while nursing homes that serve children have received increased reimbursement, at double the rate they receive to care for older residents. The Florida Agency for Health Care Administration (AHCA) disagrees that their policies and practices contribute to the number of children in institutional placements. Secretary of AHCA Elizabeth Dudek is reported as stating that the agency has a rigorous system of quality control that ensures families receive the level of care their children need.
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ResourceResource

By Rob Cunningham

Health Affairs

August 30, 2012

Prior to the Affordable Care Act (ACA) individual and small group health plans had "incentives to enroll healthy" people who cost less to cover and "disincentives to enroll less healthy" individuals, who cost more. This created a vicious cycle that led to the rising number of uninsured, which in turn spurred a rise in health insurance premiums to help cover the costs of care for the uninsured. In addition, insurers could charge higher premiums to individuals who used more health services due to a chronic health condition, and in the individual insurance market they could deny coverage to those with pre-existing conditions. 

Since September 23, 2012, a provision of the ACA prohibits health plans from denying coverage to children with pre-existing conditions. Starting on January 1, 2014, insurers will also not be able to deny coverage for adults with pre-existing conditions. In addition, insurers will not be able to charge higher premiums based on an individual's health history.

Risk adjustment is one way to help insurers balance their need to stay financially solvent with these new requirements. Risk adjustment is a corrective tool that "levels the playing field" and protects insurers that attract beneficiaries with higher health care costs. This brief provides an overview of the methods available for risk adjustment and the challenges that states will face in choosing and applying them. Risk adjustment relies in large part on a person's past health care costs to assess the risk to the health plan in the future; this is called their "risk score." One of the biggest challenges will be the difficulty of assessing the risk scores of the millions of previously uninsured individuals who will now be able to purchase affordable health insurance through the state Exchanges.

Learn about the importance of risk adjustment strategies for children and youth with special health care needs (CYSHCN), in particular the associated challenges, risk adjustment models, how costs are distributed across CYSHCN, and other financial protections for CYSHCN in the recent Catalyst Center brief Risk Adjustment and Other Financial Protections for Children and Youth with Special Health Care Needs.

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NewsNews You Can Use from Our Partners

National Center for Ease of Use of Community-Based Services: Case Studies Nomination

The National Center for Ease of Use of Community-Based Services works to advance the Maternal and Child Health Bureau (MCHB) outcome measure that "community-based service systems are organized so that families can use them easily." This center is preparing a series of case studies that will highlight innovative programs that make community-based services easier for families of CYSHCN and others to navigate. Community-based organizations, providers, Title V programs, family organizations, and others are invited fill out a National Center for Ease of Use of Community-Based Services Case Studies Nomination Form. The information you share may be selected as a case study, which will provide examples of partnerships, activities, and lessons learned, and identify programs that can be replicated in other states. Learn more about the types of programs and activities they are looking to profile, e-mail Jacquelyn Bialo or call 617-287-4349. 
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The Catalyst Center is a national center dedicated to working with states and stakeholder groups on improving health care insurance and financing for Children and Youth with Special Health Care Needs (CYSHCN). For more information, please visit us at www.catalystctr.org or contact Meg Comeau, Program Director, at [email protected].


The Catalyst Center is funded under cooperative agreement #U41MC13618 from the Division of Services for Children with Special Health Needs, Maternal and Child Health Bureau, Health Resources and Services Administration, U.S. Department of Health and Human Services. Lynda Honberg, MHSA, MCHB/HRSA Project Officer. The contents of Catalyst Center Coverage are solely the responsibility of the authors and do not necessarily represent the views of the funding agencies or the U.S. government.